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JayneLayne
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12 Feb 2016, 2:49 pm

This is my first time posting here. Apologies for no real introduction.

I went in for testing 3 weeks ago and today is my feedback session. 1 hour and 12 minutes to go. I'm so nervous and a bit terrified. What if this isn't the reason and I'm back to square one? There are so many what if's.

This has been the longest 3 weeks of waiting and I feel like my head is going to explode.

I just needed to get this out there. :oops:



Noca
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12 Feb 2016, 3:43 pm

Good luck, I hope you find the answers your're looking for. I know how hard the wait can be. I had to wait a little over a month for my assessment results last fall.



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12 Feb 2016, 6:46 pm

How did it go?


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Chickadeesingingonthewrongplanet
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13 Feb 2016, 5:11 pm

I hope it went okay for you. I'll look out for your reply.

I just had feedback from screening this week;
it was a wait, and the wait was a bit hard.
Actual session was positive and helpful but I felt 50 minutes
was way too short to cover all the things that came up. I was
emotionally exhausted because I was worried about not
getting Dx and then felt huge relief, also some grief, when I did.
Still fitting things together and wishing I could find more
discussion here about
'what next' after Dx...



ZombieBrideXD
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13 Feb 2016, 5:20 pm

Good luck. Remember, if it comes back that you are autistic; thats good, you can get the support and help you need.

If it comes back that your not, thats good too, you can try and find out whats causing your issues and you would have ruled out a probable cause.

Whatever happens, WP is here for you


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13 Feb 2016, 5:32 pm

I think the Aspergers-Autism Spectrum is some or all of the following:

1) sensory issues,

2) patchy social skills, or maybe just needing more alone time or different types of alone time,

3) intense intellectual or artistic or experiential interests,

4) stimming*

*now, baseball players and poker players stim, to name just two examples. But we tend to stim in different ways, for which we are criticized. And yes, I'm all in favor of a public vs. private distinction.

5) and maybe meltdowns, for which we can learn to allow to happen in less destructive ways. Most of the time, for none of us are perfect.

========

Professionals are one resource, but only one resource. They're not always right.

I kind of hope we follow the model of lesbian and gay rights. Yes, we're happy to draw upon the wisdom of professionals, but we're running our own show thank you very much. And in the future I hope we have a variety of different organizations available to us, some public, some private, so each of us will be free to choose which ones we feel will work best for each of us.



ZombieBrideXD
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13 Feb 2016, 6:57 pm

AardvarkGoodSwimmer wrote:
I think the Aspergers-Autism Spectrum is some or all of the following:

1) sensory issues,

2) patchy social skills, or maybe just needing more alone time or different types of alone time,

3) intense intellectual or artistic or experiential interests,

4) stimming*

*now, baseball players and poker players stim, to name just two examples. But we tend to stim in different ways, for which we are criticized. And yes, I'm all in favor of a public vs. private distinction.

5) and maybe meltdowns, for which we can learn to allow to happen in less destructive ways. Most of the time, for none of us are perfect.

========

Professionals are one resource, but only one resource. They're not always right.

I kind of hope we follow the model of lesbian and gay rights. Yes, we're happy to draw upon the wisdom of professionals, but we're running our own show thank you very much. And in the future I hope we have a variety of different organizations available to us, some public, some private, so each of us will be free to choose which ones we feel will work best for each of us.



A high I.Q is NOT always present unfortunately, i myself have intellectual difficulties, Niether is Stimming. These symptoms are more consistant

- Inability or great difficulty communicating or Socializing
- Sensory sensitivites
- RORR (Repetitive, Obsessive, Ritualistic and/or Routines)
- Executive Functioning Issues.

All symptoms need to be present at the age latest of 18 months old, all symptoms impact people differently.


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kraftiekortie
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13 Feb 2016, 7:00 pm

You might have "learning disabilities." But you have good intelligence.



JayneLayne
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15 Feb 2016, 11:44 am

Thank you for all the positive messages. My feedback session went well but my head was spinning the entire time so the details are a bit smudged. Her diagnosis was Autism Spectrum Disorder Lvl 1 along with some other little troubles like social anxiety.

and there it is. I still don't really know how I feel about it or where to go from this point. I'm still trying to process it.



Chickadeesingingonthewrongplanet
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15 Feb 2016, 1:12 pm

sending you solidarity. it is a lot to take in.



ZombieBrideXD
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15 Feb 2016, 7:26 pm

kraftiekortie wrote:
You might have "learning disabilities." But you have good intelligence.


Actually my IQ was quite low except for my visual and Spatial IQ


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kraftiekortie
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15 Feb 2016, 8:30 pm

I think you're pretty intelligent. I would bet your IQ is affected by your autism.



ZombieBrideXD
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15 Feb 2016, 8:38 pm

kraftiekortie wrote:
I think you're pretty intelligent. I would bet your IQ is affected by your autism.


Well yes, im smart, im just slow and some things i learn just dont stick. My brain is weird, ever sonic characters name is logged in my brain and ww1 and ww2 facts are easy to remember, The entire movie of The Hateful 8 (2015) is ready to watch in my head (silent though i cannot remember the script except for a few key lines such as "Talk that Sass N*****, TALK THAT SASS!", " I heard him Hillbilly" "you overrating him N*****, i get it, he got guts, but in the brains department, he's like a man that would take a high dive in a loowwwwww wellll..."

But i forget how to do my laundry in order and often forget whats said to me as soon as someone says it..

My I.Q has nothing to do with what i know but has everything to do with how i learn something.


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Obsessing over Sonic the Hedgehog since 2009
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Diagnosed with Autism Spectrum Disorder Level 1 severity without intellectual disability and without language impairment in 2015.

DA: http://mephilesdark123.deviantart.com


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20 Feb 2016, 2:04 pm

ZombieBrideXD, I like your list. And I'm open to the idea of including some of these items and making my list longer. And I do want to highlight the point that not all autistic persons have all these traits. I think we both agree on this point.

Regarding executive function skills, that might be another example of patchy skills. And because we tend to be good in some areas but not in others, some people may believe we're "not trying hard enough" or some similar nonsense. Actually, I think I've run into more trouble by trying too hard!



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20 Feb 2016, 2:23 pm

Temple Grandin said persons on the Spectrum tend to have one of three cognitive orientations:

(this is my paraphrase)

1) math abstract, which can include music and chess,

2) story-narrative, for example, this person might really engage with a case study in business or medicine, and might also like well-written autobiography or history, and

3) visual thinking, which can include people good at art and some branches of engineering, and probably a lot of other fields as well. And this is the orientation where Temple places herself.

I saw this in a youtube speech, and will try and find the link.

CSULB - Temple Grandin - Focus on Autism and Asperger's Syndrome

https://www.youtube.com/watch?v=bgEAhMEgGOQ

and see about 21 minutes into it



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20 Feb 2016, 3:27 pm

JayneLayne wrote:
Thank you for all the positive messages. My feedback session went well but my head was spinning the entire time so the details are a bit smudged. Her diagnosis was Autism Spectrum Disorder Lvl 1 along with some other little troubles like social anxiety.

and there it is. I still don't really know how I feel about it or where to go from this point. I'm still trying to process it.

Take your time with this. Most people have more than one feeling in response to receiving their diagnosis. Feel free to share your thoughts and feelings here at WP.


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