Page 1 of 2 [ 20 posts ]  Go to page 1, 2  Next

fifasy
Veteran
Veteran

User avatar

Joined: 4 Mar 2010
Gender: Male
Posts: 1,264
Location: England

03 Jan 2019, 4:32 pm

This might seem like I'm fishing for sympathy but don't misunderstand me, I'm wanting a debate here.

As a child while playing with friends in a field one of them threw a large rock up at a tree to try to knock something off it and it accidentally landed on my head. I briefly saw black and was bleeding on the head and in pain for hours. Another time in school a boy dropped a backpack full of bricks he'd put in it onto my head from the top of a stairwell onto me where I was standing on the ground floor. I collapsed, was in agony and bleeding badly in the head again.

I think but can't prove that these gave me brain damage. I've read that boxers and American football and rugby players often get brain damaged from head injuries, even soccer players from heading the ball too. Does anyone think it's worth bringing up with the doctor? I fear they won't consider it worth their attention and in any case I had a brain scan in the past after these incidents a few years ago (for unrelated reasons) and apparently it didn't show anything of note because the people who did the scan didn't mention anything unusual.

Sometimes when I struggle to make eye contact, even more than most aspies who I've met in social meet-ups, and when I seem more slow at processing things, I'm wondering how much of it is Autism or whether it's compounded by brain damage.

Has anyone else experienced a bad head injury?



kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

03 Jan 2019, 4:34 pm

I did get a pretty big rock slammed on my head once when I was 7 years old in summer camp.

I guess it wasn't all that bad an injury----but who knows?

But....this occurred long after my severe autism which occurred before the age of 5.



dragonsanddemons
Veteran
Veteran

User avatar

Joined: 19 Mar 2011
Gender: Non-binary
Posts: 6,659
Location: The Labyrinth of Leviathan

03 Jan 2019, 4:51 pm

I got a concussion from sledding into a tree (there was a coating of ice over the snow, making it super slick) when I was 5. Pretty sure I was showing signs of autism before then, though, but I'm moderate-to-high functioning, so my parents didn't get me checked for autism until they heard about AS when I was in fourth grade. My parents say one of my first words was "caterpillar" and one of my earliest memories is trying to get a spider to crawl onto a book I was holding (because I wanted to hold it but didn't want to get bit) - I think I was 3 at the time. So I can at least say the special interests (insects/arthropods were my first) were there for sure. I've never really thought I had any reason to believe the concussion caused any lasting damage, though I haven't asked my parents if they noticed any changes in me after that - presumably they would have had me checked out if they did, and I don't remember having any scans other than the initial one to confirm I had a concussion.


_________________
Yet in my new wildness and freedom I almost welcome the bitterness of alienage. For although nepenthe has calmed me, I know always that I am an outsider; a stranger in this century and among those who are still men.
-H. P. Lovecraft, "The Outsider"


BeaArthur
Veteran
Veteran

Joined: 11 Aug 2015
Posts: 5,798

03 Jan 2019, 6:29 pm

My daughter has had multiple concussions since middle school. They probably do add to her functioning problems from Asperger's. She has serious light sensitivity and difficulties with sound, too. One thing a lot of people don't realize is that once you have had one or more serious concussions, small, subconcussive blows can have an additive effect.

You probably could ask for a referral to neurology to work on specific functioning areas where you could use help. In some ways, brain injury gets more respect as a disorder than autism does; you might be able to get help from an occupational therapist or something of that nature. Possibly you would even get a thorough assessment of your life function problems, and strategies to help you, including visits from a home aide.

You should be prepared, though, to have your alcohol consumption questioned. Alcohol can definitely have both transient effects and long-term brain damage. Anybody who already has brain issues from autism, and also a history of concussions, should not push their luck with any form of substance abuse.


_________________
A finger in every pie.


fifasy
Veteran
Veteran

User avatar

Joined: 4 Mar 2010
Gender: Male
Posts: 1,264
Location: England

03 Jan 2019, 7:05 pm

BeaArthur wrote:
My daughter has had multiple concussions since middle school. They probably do add to her functioning problems from Asperger's. She has serious light sensitivity and difficulties with sound, too. One thing a lot of people don't realize is that once you have had one or more serious concussions, small, subconcussive blows can have an additive effect.

You probably could ask for a referral to neurology to work on specific functioning areas where you could use help. In some ways, brain injury gets more respect as a disorder than autism does; you might be able to get help from an occupational therapist or something of that nature. Possibly you would even get a thorough assessment of your life function problems, and strategies to help you, including visits from a home aide.

You should be prepared, though, to have your alcohol consumption questioned. Alcohol can definitely have both transient effects and long-term brain damage. Anybody who already has brain issues from autism, and also a history of concussions, should not push their luck with any form of substance abuse.


That's a really helpful reply. I appreciate it.



jimmy m
Veteran
Veteran

User avatar

Joined: 30 Jun 2018
Age: 77
Gender: Male
Posts: 9,832
Location: Indiana

03 Jan 2019, 7:22 pm

As a young boy I was kicked by a thousand pound bull and knocked unconscious for around 8 hours. And brain injuries in athletes can cause some symptoms similar to those exhibited by Aspies. But now when I think over the relationship of Aspie traits at least in my case, I see similarities in my relatives. So I am inclined to believe its all in my genes.

But when you see your doctor, you should pass onto him/her your past brain injuries. More information is better than less information in this case. Let the doctor sort it out.

The one question you might consider is when did your injuries occur and did you exhibit any Aspie symptoms prior to those injuries. Your parents might be able to answer these questions.


_________________
Author of Practical Preparations for a Coronavirus Pandemic.
A very unique plan. As Dr. Paul Thompson wrote, "This is the very best paper on the virus I have ever seen."


ASS-P
Veteran
Veteran

User avatar

Joined: 9 Feb 2007
Age: 66
Gender: Male
Posts: 8,980
Location: Santa Cruz , CA , USA

03 Jan 2019, 7:34 pm

[quote="fifasy"]This might seem like I'm fishing for sympathy but don't misunderstand me, I'm wanting a debate here.

As a child while playing with friends in a field one of them threw a large rock up at a tree to try to knock something off it and it accidentally landed on my head. I briefly saw black and was bleeding on the head and in pain for hours. Another time in school a boy dropped a backpack full of bricks he'd put in it onto my head from the top of a stairwell onto me where I was standing on the ground floor. I collapsed, was in agony and bleeding badly in the head again.

I think but can't prove that these gave me brain damage. I've read that boxers and American football and rugby players often get brain damaged from head injuries, even soccer players from heading the ball too. Does anyone think it's worth bringing up with the doctor? I fear they won't consider it worth their attention and in any case I had a brain scan in the past after these incidents a few years ago (for unrelated reasons) and apparently it didn't show anything of note because the people who did the scan didn't mention anything unusual.

Sometimes when I struggle to make eye contact, even more than most aspies who I've met in social meet-ups, and when I seem more slow at processing things, I'm wondering how much of it is Autism or whether it's compounded by brain damage.



This has nothing to do with the substance of this, but do persons and media in Britain refer to the American NFL game as " American Football "?


_________________
Renal kidney failure, congestive heart failure, COPD. Can't really get up from a floor position unhelped anymore:-(.
One of the walking wounded ~ SMASHED DOWN by life and age, now prevented from even expressing myself! SOB.
" Oh, no! First you have to PROVE you deserve to go away to college! " ~ My mother, 1978 (the heyday of Andy Gibb and Player). I would still like to go.:-(
My life destroyed by Thorazine and Mellaril - and rape - and the Psychiatric/Industrial Complex. SOB:-(! !! !! !! !! !! !! !! !! !!


fifasy
Veteran
Veteran

User avatar

Joined: 4 Mar 2010
Gender: Male
Posts: 1,264
Location: England

03 Jan 2019, 7:51 pm

ASS-P wrote:
This has nothing to do with the substance of this, but do persons and media in Britain refer to the American NFL game as " American Football "?


We do, yeah. Most of us wouldn't know the league there is called the NFL. There are probably a few million fans of NFL football here though. It's shown on TV in the early hours of the morning sometimes.



ASS-P
Veteran
Veteran

User avatar

Joined: 9 Feb 2007
Age: 66
Gender: Male
Posts: 8,980
Location: Santa Cruz , CA , USA

03 Jan 2019, 8:57 pm

...Thank you! More later. I'm relatively near to Oakland, you know :| ...


_________________
Renal kidney failure, congestive heart failure, COPD. Can't really get up from a floor position unhelped anymore:-(.
One of the walking wounded ~ SMASHED DOWN by life and age, now prevented from even expressing myself! SOB.
" Oh, no! First you have to PROVE you deserve to go away to college! " ~ My mother, 1978 (the heyday of Andy Gibb and Player). I would still like to go.:-(
My life destroyed by Thorazine and Mellaril - and rape - and the Psychiatric/Industrial Complex. SOB:-(! !! !! !! !! !! !! !! !! !!


IsabellaLinton
Veteran
Veteran

User avatar

Joined: 1 Nov 2017
Gender: Female
Posts: 72,433
Location: Chez Quis

03 Jan 2019, 9:51 pm

I suffered a CVA (Cerebrovascular Accident) -- otherwise known as a stroke. It was an embolic stroke from a blood clot in my left cerebellum. It caused permanent damage. This was in 2015 though, so it definitely didn't cause my autism. It did, however, add to my distress. Not only did I need a year of stroke clinic visits (3 full days per week) for Vestibular Rehab, Physiotherapy, Occupational Therapy and Speech Pathology, but I lost my ability to "mask" my autism as I had before. My mutism and autism are much more pronounced since the stroke, and I simply can't 'fake it to make it' any more in social situations.

Other than my stroke I don't recall any major head injuries.


_________________
I never give you my number, I only give you my situation.
Beatles


BTDT
Veteran
Veteran

User avatar

Joined: 26 Jul 2010
Age: 63
Gender: Non-binary
Posts: 8,488

03 Jan 2019, 10:11 pm

Yes. In a lot of ways I came out better than before the event. But, I'm a polymath.



fifasy
Veteran
Veteran

User avatar

Joined: 4 Mar 2010
Gender: Male
Posts: 1,264
Location: England

04 Jan 2019, 1:25 am

ASS-P wrote:
...Thank you! More later. I'm relatively near to Oakland, you know


Do you ever watch the Raiders games? I looked up, that's the team in Oakland.

IsabellaLinton wrote:
I suffered a CVA (Cerebrovascular Accident) -- otherwise known as a stroke. It was an embolic stroke from a blood clot in my left cerebellum. It caused permanent damage. This was in 2015 though, so it definitely didn't cause my autism. It did, however, add to my distress. Not only did I need a year of stroke clinic visits (3 full days per week) for Vestibular Rehab, Physiotherapy, Occupational Therapy and Speech Pathology, but I lost my ability to "mask" my autism as I had before. My mutism and autism are much more pronounced since the stroke, and I simply can't 'fake it to make it' any more in social situations.

Other than my stroke I don't recall any major head injuries.


That sounds like a really, really difficult thing to have experienced. That's exactly what I was wondering, whether a brain injury could add a new layer of challenge to someone's Autism/Asperger's. Thanks for sharing your experience.

BTDT wrote:
Yes. In a lot of ways I came out better than before the event. But, I'm a polymath.


Can I ask what came out better for you?



IsabellaLinton
Veteran
Veteran

User avatar

Joined: 1 Nov 2017
Gender: Female
Posts: 72,433
Location: Chez Quis

04 Jan 2019, 1:39 am

I remember one of my post-stroke neurologists thought that I was 'faking' or exaggerating some of my behavioural characteristics months after the stroke. She kept saying "But this isn't a stroke response ... ", or "But this mannerism is ATYPICAL for stroke recovery!" (undertone: you're faking it). She didn't know me pre-stroke so I just had to grin and bear her condescension. All I could say in response was "I never said this behaviour is attributed to my stroke. It's just ME. Deal with it."

(rolls eyes) :roll:


_________________
I never give you my number, I only give you my situation.
Beatles


BTDT
Veteran
Veteran

User avatar

Joined: 26 Jul 2010
Age: 63
Gender: Non-binary
Posts: 8,488

04 Jan 2019, 9:15 am

I got speech therapy to get rid of the monotonic voice. I got OT/PT to improve my lousy coordination.

I got over my sensitivity to being touched by other people. I got lot of social skills training in rehab.

I expanded my diet.

I worked on achieving a healthy weight and keeping it.

I continue doing rehab type exercises to stay shape without putting too much stress on my joints.

I learned I was cross dominant. Then I figured out that "normal" limitations about what I can learn don't apply because I'm not normal.



BeaArthur
Veteran
Veteran

Joined: 11 Aug 2015
Posts: 5,798

04 Jan 2019, 9:52 am

BTDT wrote:
I got speech therapy to get rid of the monotonic voice. I got OT/PT to improve my lousy coordination.

I got over my sensitivity to being touched by other people. I got lot of social skills training in rehab.

I expanded my diet.

I worked on achieving a healthy weight and keeping it.

I continue doing rehab type exercises to stay shape without putting too much stress on my joints.

I learned I was cross dominant. Then I figured out that "normal" limitations about what I can learn don't apply because I'm not normal.

This is what I mean by "brain injuries get more respect than autism." Who here has gotten this much help in adulthood with just an autism diagnosis? (rhetorical question)


_________________
A finger in every pie.


BTDT
Veteran
Veteran

User avatar

Joined: 26 Jul 2010
Age: 63
Gender: Non-binary
Posts: 8,488

04 Jan 2019, 10:08 am

Part of social skills training was the realization that I could get far more help than average by being an enthusiastic patient who provided positive feedback to the hard working professionals.