Page 1 of 4 [ 50 posts ]  Go to page 1, 2, 3, 4  Next

skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 59
Gender: Female
Posts: 8,498
Location: my own little world

02 Jan 2019, 8:24 pm

I went to skating practice and had to leave as soon as I got there because the hockey team was having a function upstairs at the rink and I could not handle the music. People asked me why I left and I told them and they seemed upset with me for leaving and they always tell me that I have to understand that people are going to do this or that the store has to play music or that whatever has to do this or that, whatever whatever blah blah blah. I get this kind of response all the time and I hate it.

When I leave like that people get upset with me like it hurts their feelings because I have to leave. One of my coaches said, with a reprimanding tone, "You have to understand that it's hockey season and that's going to happen all the time."

I don't know why people feel the need to say stupid s**t like that. I don't know why they need to reprimand me. I am not complaining, I am not asking them to stop, I am not making a fuss, I am not even upset. I wasn't even going to say anything at all but I felt it would be courteous to let her know that I was going and when she asked why, I told her.

Why do people try to make me feel like I am doing something wrong when I am simply leaving an environment that is harmful to me? I am not asking them to leave. What if I was allergic to shellfish and peanuts and I showed up and they were having a seafood and nut party? I would have to leave. It's the exact same thing. Would they then tell me, "You have to understand that this happens all the time and everywhere. " Do they think I don't understand this already? Do they magically think that my disability, which I have no control over, have to live with every day of my life and did not ask for, will magically go away because I understand that other people will do what they do?

It's hard enough living with a severe disability, especially an invisible one. I don't need people telling me that it also hurts their feelings when I am trying to deal with my suffering especially when they are not affected. It does not make one bit of difference to them if I am there or not. I am not hurting or inconveniencing anyone by leaving. I am the only one missing out and wasting gas, time, and money having driven to something I had hoped to enjoy. So to be told what I need to understand like I don't understand it already, is just rude.


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph


Keladry
Veteran
Veteran

User avatar

Joined: 11 Jul 2017
Age: 41
Gender: Female
Posts: 1,681

02 Jan 2019, 9:23 pm

Maybe what they are really saying is, "I don't understand"......why you are leaving this place, us, and the "fun." They don't have the same perception as you, and what for you is unbearable is really only a slight irritation for them - they cannot comprehend what it actually is like for you, and therefore see you leaving only for petty reasons. (I know you already get this and are more venting). I understand your frustration completely. I've also had experiences like this, where the people I went end up blaming ME and are upset at ME for leaving an environment that, were they to experience it the same way as me, would never willing go to, nor would stay in should they happen to it. I suspect I've even lost a couple of friends to this.

I understand.

It is not you who needs to understand, it is them.



starcats
Veteran
Veteran

User avatar

Joined: 30 Aug 2017
Age: 49
Gender: Female
Posts: 531

02 Jan 2019, 9:41 pm

I think you answered your own question--

skibum wrote:
When I leave like that people get upset with me like it hurts their feelings because I have to leave.


I would be right out of there with you, but people that have a better noise and commotion filter just don't get it and see us as overreacting. Once I'm overstimulated I can't even form coherent thoughts to explain. It took me a long, long time to understand what I quoted you on.



BeaArthur
Veteran
Veteran

Joined: 11 Aug 2015
Posts: 5,798

02 Jan 2019, 10:41 pm

skibum, did you tell them that you have a sensory processing disorder? You might have to say more than "the music bothers me," if you want them to understand what you are going through.

I'm not clear if you are supposed to be part of a team that skates or performs together. You did mention a coach, suggesting this was not just a casual recreational skate. If you can't attend practices, that becomes a problem for other team members, for the team as a whole. I doubt people's "feelings" were "hurt," it sounds more like they may have been concerned whether you can participate in team activities in the future if this noise issue is a problem for you - since it is likely to recur rather often.

What about ear plugs or noise cancelling headphones? Is this something you could discuss with the coach?


_________________
A finger in every pie.


BTDT
Veteran
Veteran

User avatar

Joined: 26 Jul 2010
Age: 63
Gender: Non-binary
Posts: 8,489

02 Jan 2019, 10:51 pm

I just bought some high fidelity earplugs that are designed for musicians to wear. I wore them when I went to see the latest Transformer's movie, Bumblebee so it wasn't so loud.



ezbzbfcg2
Veteran
Veteran

User avatar

Joined: 15 Feb 2013
Age: 43
Gender: Male
Posts: 1,991
Location: New Jersey, USA

03 Jan 2019, 5:07 am

Are you on a team or part of some skating group, or are you simply paying for lessons during a group session?

If you're paying for lessons with a group, or attending some come-as-you-are ice skating session, then you have the right to leave anytime you want.

If you've joined a team and can't practice with them due to your problems, then it's understandable they might not be too happy and it may be best you leave the team.



skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 59
Gender: Female
Posts: 8,498
Location: my own little world

03 Jan 2019, 5:38 am

Keladry wrote:
Maybe what they are really saying is, "I don't understand"......why you are leaving this place, us, and the "fun." They don't have the same perception as you, and what for you is unbearable is really only a slight irritation for them - they cannot comprehend what it actually is like for you, and therefore see you leaving only for petty reasons. (I know you already get this and are more venting). I understand your frustration completely. I've also had experiences like this, where the people I went end up blaming ME and are upset at ME for leaving an environment that, were they to experience it the same way as me, would never willing go to, nor would stay in should they happen to it. I suspect I've even lost a couple of friends to this.

I understand.

It is not you who needs to understand, it is them.
I totally agree with you. Thank you. I have also lost friends for this. It is really pathetic. I guess they were not really friends to begin with.


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph


skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 59
Gender: Female
Posts: 8,498
Location: my own little world

03 Jan 2019, 5:41 am

starcats wrote:
I think you answered your own question--
skibum wrote:
When I leave like that people get upset with me like it hurts their feelings because I have to leave.


I would be right out of there with you, but people that have a better noise and commotion filter just don't get it and see us as overreacting. Once I'm overstimulated I can't even form coherent thoughts to explain. It took me a long, long time to understand what I quoted you on.
Yep., I totally get you. I can actually go into shock. It gets pretty extreme for me. I think the people find it personally offensive when I have to leave or when I have to cover my ears. I think they think that something they enjoy or are able to tune out can't possibly hurt someone else so they take it personally that I am displaying signs of distress. It's a bit ridiculous, like blaming the victim of a crime for responding or reacting to being violated.


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph


skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 59
Gender: Female
Posts: 8,498
Location: my own little world

03 Jan 2019, 5:50 am

BeaArthur wrote:
skibum, did you tell them that you have a sensory processing disorder? You might have to say more than "the music bothers me," if you want them to understand what you are going through.

I'm not clear if you are supposed to be part of a team that skates or performs together. You did mention a coach, suggesting this was not just a casual recreational skate. If you can't attend practices, that becomes a problem for other team members, for the team as a whole. I doubt people's "feelings" were "hurt," it sounds more like they may have been concerned whether you can participate in team activities in the future if this noise issue is a problem for you - since it is likely to recur rather often.

What about ear plugs or noise cancelling headphones? Is this something you could discuss with the coach?
Everyone at the skating rink knows. I have Special Olympics there. And earplugs and ear muffs don't work for deep bass, in fact they can make it much worse and they are often excruciatingly painful. I do wear them together sometimes but the pain becomes unbearable. But sometimes I put up with the pain of wearing them in order to try to get some relief. I even have to sleep with them pretty often. But they only block out certain sounds. The sounds that really affect me the most to the point of collapse and over stimulation shock are the deep bass beats and fast music like rap and lots of hip hop. Unless I can pay more money than I make in two months for super expensive stuff that might or might not work, there is nothing that keeps out the deep bass beats. I even had a counselor buy me hunting ear plugs and they still don't make a big difference. And sound ear muffs are dangerous to wear while skating. They can cause injury if you fall on them.

The coaches are used to me leaving whenever I need to but every now and then I get this response as if it frustrates them that I have to leave. But during some of the practices, my Special Olympics coach will have people turn off music if they are just playing for fun and not using it for a program. If they are using it for a program, I leave the area and they are all fine with me leaving. But this type of response is one that I get so often from so many people in so many situations. I am just tired of it. And people keep asking me if I have ever tried ear plugs or ear muffs like I have never heard of them before. I am 52 years old. I have tried every affordable thing in existence.


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph


skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 59
Gender: Female
Posts: 8,498
Location: my own little world

03 Jan 2019, 5:56 am

BTDT wrote:
I just bought some high fidelity earplugs that are designed for musicians to wear. I wore them when I went to see the latest Transformer's movie, Bumblebee so it wasn't so loud.
A few yeas ago I paid $150 to have a pair of custom musician ear plugs make and I used the highest filters. The filters broke and cost $25 to replace so I did not replace them. The problem with me is that I can go into shock even if it's not loud. It can be barely detectable and it will affect me just as much because I am frequency sensitive not just loud noise sensitive. So unless the plug cuts the noise out 100% I can go into shock even if it is so quiet that no one else can hear it. And often times plugs will cut out other frequencies instead so all I end up hearing is the bass beat. And even if it is super soft, my brain magnifies it to the point of explosion. So there is really nothing I can do except leave. There have been times when my own heartbeat has made me have meltdowns. Many times if I try to put my head directly on my pillow I can't sleep because the pounding of my heartbeat of of noises coming from the streets coming through the pillow are deafening.


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph


skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 59
Gender: Female
Posts: 8,498
Location: my own little world

03 Jan 2019, 5:58 am

ezbzbfcg2 wrote:
Are you on a team or part of some skating group, or are you simply paying for lessons during a group session?

If you're paying for lessons with a group, or attending some come-as-you-are ice skating session, then you have the right to leave anytime you want.

If you've joined a team and can't practice with them due to your problems, then it's understandable they might not be too happy and it may be best you leave the team.
I am in Special Olympics


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph


skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 59
Gender: Female
Posts: 8,498
Location: my own little world

03 Jan 2019, 6:04 am

The skating rink is actually really amazing and they go out of their way to accommodate me. I love it there and the staff is really stellar. I should not have used that situation for the example. I really don't have any complaints about them at all and they have treated me better than family. The only reason I used them as the example is because the situation just happened last night and it reminded me of what I go through all the time and everywhere. There are a very few places and a very few people who do try to understand and accommodate but they are really super few. So I was just kind of at my wits end because of so many other situations that I have to deal with with that and now that my disability case has been indefinitely held up in federal court until the democrats and republicans can learn to get along, I just found out that all the federal court cases are being help up, I was really feeling it. So my apologies to the skating rink because they are some of the most wonderful and caring people that I know. But that response is really getting old and I get it from so many people.


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph


Edna3362
Veteran
Veteran

User avatar

Joined: 29 Oct 2011
Gender: Female
Posts: 13,727
Location: ᜆᜄᜎᜓᜄ᜔

03 Jan 2019, 6:43 am

Well, :twisted: this is exactly why I don't justify myself to others; they very likely won't understand. And kinda why I would rather be someone who accommodates...


In my case, I prefer not to tell others if I'm currently overwhelmed and confused, or how my senses work to be more specific. All I say is 'I don't like this', 'this bothers me that', 'I'm tired', etc.
I won't say that I feel the weight or space, or that I'm sensorially encumbered because people don't deal with those things or ever had the terms. Therefore they don't have to know.

I would rather dismiss the whole thing myself, than some fool who doesn't understand dismisses them. I could never forgive such fool nor I would waste my time teaching them things they don't ask or ever think about.
Because it just reminds me how much I don't like people and how I don't like being human.


_________________
Gained Number Post Count (1).
Lose Time (n).

Lose more time here - Updates at least once a week.


quite an extreme
Veteran
Veteran

User avatar

Joined: 20 Aug 2018
Age: 326
Gender: Male
Posts: 1,922
Location: Germany

03 Jan 2019, 8:06 am

Sounds to me they are upset just because they like you so much otherwise they wouldn't care. But even if you tell them the reason they would be unable to understand and accept it.
It's better to come up with an false excuse (Have to see a doctor aso.) then telling the truth that they are unable to accept. You should speak with your coach that he or she isn't to much upset because of this.
May be there exists even some music that fits for the hockey players and you?
The other thing that you could try is to adapt to that music by hearing related music outside of the training at level that you can stand. Try to like it instead of being against it. Music is just a way of expressions emotions. May be you are able to become a bit used to this music after a while even if you aren't totally into it.
I didn't like any kind of hard rock at all as a child. Later - at a time that I was totally emotional down - I started to like it. The brain is able to learn and to adapt. :) But it takes a while ... :|


_________________
I am as I am. :skull: :sunny: :wink: :sunny: :skull: Life has to be an adventure!


Ichinin
Veteran
Veteran

User avatar

Joined: 3 Apr 2009
Gender: Male
Posts: 3,653
Location: A cold place with lots of blondes.

03 Jan 2019, 8:34 am

"But you have to understand"... *sigh* they are NTs, what do you expect, understanding? The TV watching beer drinking average joe-hockey fan with no ability to put themselves in other peoples shoes is pretty much a waste of time trying to explain things like this to, it's a waste of time that you could have used to increase the travel distance between you and them.

Just walk away and ignore their rants. If they feel offended, let them be. They are morons.


_________________
"It is far better to grasp the Universe as it really is than to persist in delusion, however satisfying and reassuring" (Carl Sagan)


skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 59
Gender: Female
Posts: 8,498
Location: my own little world

03 Jan 2019, 12:35 pm

quite an extreme wrote:
Sounds to me they are upset just because they like you so much otherwise they wouldn't care. But even if you tell them the reason they would be unable to understand and accept it.
It's better to come up with an false excuse (Have to see a doctor aso.) then telling the truth that they are unable to accept. You should speak with your coach that he or she isn't to much upset because of this.
May be there exists even some music that fits for the hockey players and you?
The other thing that you could try is to adapt to that music by hearing related music outside of the training at level that you can stand. Try to like it instead of being against it. Music is just a way of expressions emotions. May be you are able to become a bit used to this music after a while even if you aren't totally into it.
I didn't like any kind of hard rock at all as a child. Later - at a time that I was totally emotional down - I started to like it. The brain is able to learn and to adapt. :) But it takes a while ... :|
I know what you mean. But sensory integration therapy does not work for me. It's not a matter of me not liking the music. It's that my brain literally cannot properly process those sounds. It actually over processes them. So it sends me into actual overload shock which can lead to a heart attack or literal collapse, loss of ability to breath and actual types of shock. I can't therapy out of this one. And yes, there are thousands of kinds of music that I can not only listen to but that are actually very therapeutic for me. But these days, the only kind of music that people consider music is either rap or heavy bass beat. I have this argument with people everywhere I go. I tell them, why can't you just play something else in your store or in a public area. The answer is always the same, "We play heavy bass beat and rap because it's what everybody likes and we don't care if it can actually kill you. You don't have to shop here, you don't have to come here, you can leave your home and find somewhere else to go when they play it in their car stereos, you can leave the nature park or the ski resort when they blast it in the parking lot, never mind that the city actually has sound ordinances and that they are breaking the law. We get to play it as loud, as often and at whatever time of day or night we want and even parked right outside your house at three in the morning because we like it." But for my brain to be able to handle it, I would need a neuron or complete brain transplant. I am not willing to pay for that because I am sure that medicaid won't cover it. But no therapy will work for me. It has not worked half a century, it's not going to work now. My sensitivity is not trauma based, it is purely neurological.

I actually have neighbors that text me and ask me to leave my house for hours at a time so that they can blast their stereos and they tell me when I can come home again and they think they are being kind and considerate and accommodating to me because they tell me to leave before they blast their music so loud that you can hear it blocks away.


_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."

Wreck It Ralph