De-diagnosed

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https://www.bmj.com/content/390/bmj.r2023

Apparently Sweden are bringing in a thing where adults with a diagnosis forced on them as kids which they hate can apply to get 'de-diagnosed', and if the doctor or whoever it is doesn't feel they fit the current criteria then they will take it off their medical records. Apparently other countries might bring this in too, including the UK and the US.

I'll be the first in line, with the Asperger's one. I feel I can't live my life without fear of something awful happening with that on my medical records, such as AI somehow leaking it out for employers to see or something, or when people on autism sites sound like they're so sure Trump and Farage are going to target autistic people. Although I know this won't happen and people just like being pessimistic, it still hits a raw nerve and I'd feel much better without the s**t pasted on my medical records.

Also I hate sharing a spectrum with all these incels and serial killers, and eccentric historical weirdos like Mozart. I hate how autism is portrayed. I want rid of it.

Getting undiagnosed won't help you, if anything, it might hinder you.

In before all the folks with antisocial personality disorder, narcissistic personality disorder and borderline personality disorder start to abuse this to conceal their stigmatized disorders.

Girls are statistically underdiagnosed. But signs of autism and narcissism are easily confused. Maybe you got the wrong diagnosis?

Interesting. For me, I don't see my diagnosis as hindering me, and it's provided me some support in the past and may again in the future, even though I'm not vocal about it and not accessing services regularly. So I don't think I would consider going through any trouble to remove it. My diagnosis brought me understanding and community most of all, and it would feel so weird to just throw that away.

Getting diagnosed in my late 20s probably helped my life not to get completely ruined and it answered a lot of questions I had had for years. And what's so bad about Mozart?

Most incels and serial killers are men, I guess that means men should never identify as male anymore, even if they are cisgender?

My own gender has more anxiety problems than men and is generally too emotional and obsessed with their own superficial appearance, is supposedly bad at math, suffers from gender specific diseases and disorders such as PMS, premenopause, menopause, breast cancer, and is physically weaker due to small muscles, but I still identify as female. Maybe I shouldn't anymore???

My question to both you and Tamaya, would no longer identifying with something make it go away? Like, I'm pretty sure nonbinary folks with PMS (on average) have it just as bad as women with PMS (on average). Likewise, being de-diagnosed or not identifying with a diagnosis doesn't alleviate the symptoms that cause one to qualify for the diagnosis.

It would be external validation and then I could confidently put all the symptoms I did/do have down to everything else (ADHD, anxiety, and having a misdiagnosis that was broadcasted to the world). It may offer disclosure. Also if it were removed from my medical records then I could breathe easier, as I live in fear of it somehow being leaked and finding its way to my employer or something. And say if I went missing, or committed a crime, or became victim of a crime, etc, that made it onto the news, my diagnosis might be revealed without my consent, as often in the news when somebody autistic goes missing or they were involved in a crime (victim or otherwise) their autism seems to be part of the news story. It's all these tiny little things that I live in fear of, like you're not completely free of the risk of your diagnosis being revealed without your consent when it's floating about on your medical records, no matter how strict the confidentiality of medical records are in the UK.

And then there's the scare I hate hearing about on autism sites where they think Trump is building detention camps for autistic people, or that Nigel Farage will follow suit if and when he gets elected, and then they'll use medical records to round us up and throw us in them like the Jews in Poland during WW2. That severely panics me and makes my medical records feel like a threat.

Last edited by Tamaya on 15 Jul 2026, 5:27 am, edited 1 time in total.

I'm probably misinterpreting your posts here but...are you calling me a narcissist?

Validation isn't always beneficial, especially if it reinforces a perception that isn't aligned with reality.

It's possible that you were misdiagnosed, but assuming you were correctly diagnosed initially having it removed wouldn't change how autism impacts you.

Not liking a diagnosis, or feeling a condition is stigmatized aren't valid reasons for removing it from one's files, otherwise why wouldn't anyone with a stigmatized condition like the ones I mentioned earlier have those removed?

Well it's the same with my ADHD diagnosis. It's easy to just say I have ADHD but it felt more validating to get a diagnosis so that it couldn't be just put down to wishful thinking or fantasising. Same with autism but the other way around. If a professional was to de-diagnose me with AS then it wouldn't just feel like fantasising. No it won't undo my traumatic past but it might help me make peace with it or offer some sort of closure and I can feel like all my cousins and be medically diagnosedless. But it'd have to be confirmed medically that I was misdiagnosed, not a case of "I want to be undiagnosed because I hate the label".

I just hate when Aspies say, "phew, glad I didn't get diagnosed, now I'm safe from the nazis tracking me down by my medical records."
Yeah, all right for some lol, some of us had no f*****g choice.

To be fair, those people are almost certainly catastrophizing.

I'm not saying it couldn't happen, just that it isn't likely to happen.

It seems like their poor mental health is just slopping out and impacting your mental health. If they got help (which likely would include pursuing diagnosis) they'd possibly be better equipped to deal with their own mental health concerns, which would make for less splashing, making it less likely that they'd soak you with their problems.