AutismSpeaks and WrongPlanet Reconciliation

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I think the question is more along the lines of, "are you sure that the way Autism Speaks spends money has no effect in your life?"

I raise money all the time. None of it goes to me. If you want to raise money be innovative and use the money as you see fit. If other autism organizations are successful at it and you don't get any of it then I'm not sure if you should expect it nor should you decide where money goes if it's not yours but you can ask kindly and maybe that will change things. Did you earn it? Money money money.. The root of evil in root beer!

This issue is much bigger than whether you or I personally see that money.


That's certainly one position. Not everyone agrees with it in this context, however.


Same response as above.


I think people have -- with a modicum of success maybe(?)


And in eugenics?

Getting angry over abortion politics leads to no where and lots of hurt feelings. I long ago decided to stay out of it. I interviewed Autism Speaks when it was C.A.N and interviewed pride politicians way back then. Most autism advocacy for the pride stuff has to do with the image of autism and at times or more then just at times ultimately the abortion issue. Both sides have their fibs and biases to protect extreme views of autism. That's why I disdain pride beyond a good self-esteem and remain out of the abortion issue. If demanding to be part of this unresolvable issue I will simply backfire and one blogger already did accusing me of horrid things which were lies. Drama queens and drama kings need to back off from the folks that take what is and try to make it better. That's why I believe in local self-advocacy and group advocacy as the internet has to many unknowns and frankly people at times are fanatical nuts. In person I'd be able to tell them in person but online it's just text and I cannot impress enough my disgust at the mal-productive and irritating bull.

As if I'm god to change the direction of these things and to plight in hate at me as if it's my fault.

ci, I think those are all reasonable views. I'm happy for you that you've managed to move beyond an issue that for me is still quite disturbing. Maybe I'll get there?

All it takes is respect and not forcing opinions. The whole movements PR is a mess. I am available for consult with a proven track record in general public relations. However I consult not to lead for others and so people can be civil, get along more, be friendly and increase productive advocacy that changes lives. The abortion issue is unfortunate.

Wait, you cannot compare abortion and autism and just relate it to drama. It is not only about a debate on "Is Autism a illness?" it goes way beyond that, it is far more complex. It's not only about "Do we do it or not" of the abortion debate where we know what abortion exactly is.

Autism Speaks is a centralized organization with a strategy, and it seems expensive to run. Wrong Planet is a succession of good ideas that redraws its strategy dynamically. WP is built from the ground up and Autism Speaks is built from the top down.


There is no opposition here: we don't know precisely what autism is and both organizations are not direct competitors.

Now, about coping with autism each organization targets a different audience:
Autism Speaks is targeting parents of autistic children (when I read the website I don't feel like they are speaking to ME, if fact I feel like is I don't exist)
WP is targeting anybody that is old enough to create an account on the forum


You are a good fundraiser, good for you. But I think Alex will raise funds when Alex will have a good idea, create videos? buy a camera and some hardware. Make interviews? find money to pay the trips... I haven't seen a sophisticated PR campaign begging for money anywhere here, so I think Alex is really good.
On the other side: Autism Speaks, its own weight require a constant flow of donations. With the mass of money accumulated and the pressure of a cure they that they created themselves they fund research in a way that seems totally random to me (it was the logic I was looking for in my previous post)

Now tell me: Can you understand why some people here are pissed up by an organization that almost denies that a full range of autistic people exist and pretend at the same time that it fights for their cause? I'm not pissed but I understand, and this is the drama and it have a clear cut answer. How can they be on the right track if they totally miss a big chunk of "the problem"?

As said before, Autism Speaks has strategy money and pressure. I think they realized they forgot some people in their fight or should I say, in their strategy. So they come to help WP as a correction of their strategy, I think aspies should be happy with that development.
Again, Alex did the right move, he accepted their help. But I'll say to him: they need you more than you need them, use them to fund your ideas.

And personally, what WP has made for me, with no heavy lifting lobbing in Washington, with no dramatic videos, is giving ME, for MYSELF an unlimited access to unlimited and precious resources. I say it again, for ME, WP beats Autism Speaks hands down, and with an amazing internal and external efficiency.

Fund raising for the sake of fund raising? Wrong planet is the wrong site for that, pal

Long live Wrong Planet

*Wait, you cannot compare abortion and autism and just relate it to drama. It is not only about a debate on "Is Autism a illness?" it goes way beyond that, it is far more complex. It's not only about "Do we do it or not" of the abortion debate where we know what abortion exactly is.*

I was speaking in context to people that really just don't want to get along and never tried to get along. I don't view WrongPlanet as one person but rather a collective and at this point W.P is not a movement in of itself but comprises socially components of various sub-movements.

*Autism Speaks is a centralized organization with a strategy, and it seems expensive to run. Wrong Planet is a succession of good ideas that redraws its strategy dynamically. WP is built from the ground up and Autism Speaks is built from the top down.*

Up is up and down is down. Wrong Planet is simply a business and it's members obviously do not vote as if it was a collective board. Although somewhat different comparatively Autism Speaks has a larger following that might be assumed as agreeing with each other whereas the planet website is a website of a social diversity. I perceive two different sides, the one of cure and the other anti-cure. Ultimately how the law speaks is individuals have a right to treatment which is cure and also a right to dignity and these are personal choices. Abortion is not up to an individual whom is not pregnant. I did not create these laws and it doesnt matter if I agree or disagree. I cannot control that.

*Now, about coping with autism each organization targets a different audience:
Autism Speaks is targeting parents of autistic children (when I read the website I don't feel like they are speaking to ME, if fact I feel like is I don't exist)
WP is targeting anybody that is old enough to create an account on the forum*

They are two different things entirely. Let's call organizations on one side pro-cure and organizations on the otherside anti-cure. WrongPlanet from my experience thus far does not dictate either or. There are many social online groups that will ban someone for not adopting a view point.


*You are a good fundraiser, good for you. But I think Alex will raise funds when Alex will have a good idea, create videos? buy a camera and some hardware. Make interviews? find money to pay the trips... I haven't seen a sophisticated PR campaign begging for money anywhere here, so I think Alex is really good.*

What would be the purpose of wrong planet raising money for autism? Wrong Planet and Autism Speaks are entirely different models. Whereas Autism Speaks and for instance the Autism Society of America are similar. The Autism Society is less dramatic and it would appear openly includes individuals with autism. Organizations opposing another cluster of organizations are part of factions. While people can focus on whatever they want I really do not believe in the long-term the extremes will be dominant but those that are moderate, sensible, balanced and that help individuals whom have disabilities in day to day life will be enabled the most.


*On the other side: Autism Speaks, its own weight require a constant flow of donations. With the mass of money accumulated and the pressure of a cure they that they created themselves they fund research in a way that seems totally random to me (it was the logic I was looking for in my previous post)*

A poor business model is one that depends upon donations instead of innovation regardless of the politics. Bad politics can be very profitable to either or both derive attention or provide what is desired and if provided given an avid demand will forget the politics. Kind of like smoking addiction.

*Now tell me: Can you understand why some people here are pissed up by an organization that almost denies that a full range of autistic people exist and pretend at the same time that it fights for their cause? I'm not pissed but I understand, and this is the drama and it have a clear cut answer. How can they be on the right track if they totally miss a big chunk of "the problem"?*

The drama is derived from dispute and it's a horrific dispute that at times you have to choose a side or your one of them or an enemy, outsider and so on. In the whole of things when it comes to quality of life the extremes alienate themselves from the everyday needs in advocacy of individuals with substantial enough disabilities that need assistance. Both sides have drama. It is drama at times filled full of hatred and that does not help people that need help. The idea of thinking outside of the box is limited by the abortion issue if one is fighting to prevent it in ways that intrude upon more productive discourse by let's say not making it as important at very least. I have no desire in utilizing the autism speaks platform so I have no specific desire to appease them nor need to. It is imagined as a great emotional hardship to others the attempts to prevent prenatal testing research but should this divide prevent and even distract from the rightful human outreach those with substantial disabilities need I consider it mal-productive.

*As said before, Autism Speaks has strategy money and pressure. I think they realized they forgot some people in their fight or should I say, in their strategy. So they come to help WP as a correction of their strategy, I think aspies should be happy with that development.
Again, Alex did the right move, he accepted their help. But I'll say to him: they need you more than you need them, use them to fund your ideas.*

The government and members of the public fund my ideas. Wrong Planet could further develop it's brandology and derive funding these ways.

*And personally, what WP has made for me, with no heavy lifting lobbing in Washington, with no dramatic videos, is giving ME, for MYSELF an unlimited access to unlimited and precious resources. I say it again, for ME, WP beats Autism Speaks hands down, and with an amazing internal and external efficiency.

Fund raising for the sake of fund raising? Wrong planet is the wrong site for that, pal

Long live Wrong Planet [/quote]*

Stated in my public policy is my organization which is in transition does not accept donations. The public relations including generalized marketing policy, disability representations and the projection of individual expression by means of it's medium is a democratic participant voting right covered under the Lanterman Act. I am simply a facilitator and not a dictator. Absent from the core liabilities including insurance, payroll for support staff and of up to 300% of these costations of it's fruits of labor participants may decide the allocation of funding with a percentile vote of seventy percent and including voting in representation. Typical organization are comprised of an elite deciding group which is in fact still a right regardless under corporate law. Most advocacy organizations don't empower it's collective participants to decide the direction of the entity.

What I like about this site is thus far it has not forced me to think a certain way or else be removed. The internet is a resource but wrong planet is a business in the vast.

ci I do appreciate your responses.

That are I think very insightful questions that have to be asked way before the cure/anti cure debate. And I am sure I'm not the only one having this perplex position here. The promise of the cure was a mistake that drove too many questions out of the real debates. We are not talking about getting rid of a nasty virus here (and still today, some viruses can't be completely eradicated) we're talking about a fix on how some people perceive the world.

But there is no cure for the moment, we don't know what autism is, we just know the effects. Is it an illness or is it a different development? If the origin of the difference is found, can it be really fixed? If it is fixed, can new problems emerge form the fix?

Science know the genes, science know the organs, but if you ask science how it goes from the genes to the organs, well, very very few things are know (even if you know how PAX6 and EMX2 compete, can you forecast precisely the consequences in the physical brain? no, so you can't forecast for the function of the result). If I think of a cure, I think first of a radically different approach in the early childhood. Then I'm not anti-cure, many people here are not anti-cure. It is Autism Speaks that suggested a magic pill like if Autism was a flu. And meanwhile people suffer.


Well, yes but the direction matters it is what makes the distinction between organization and emergence, between a forest and a city, between yahoo and google.


WP already delivers as we speak, it gives support between members that learn and discover how to improve their life while helping other. Does it make sense to label some dietary products "made on the Wrong Planet"? Only if Alex wants to buy a new camera or have a new idea or sees an interesting idea proposed by the community And I think he has was always prudent and it seems he's right.
It's emergent, it's efficient and it is working for years, or if you prefer: it has a good business model and has found the audience, and it is the Internet.


As you said the internet is vast and autism is vast and some people suffer more than other. There are many battles on many fronts. I checked your website and see you work on the field to help the integration of autistic people and I really would like to know more about it, you should create a topic dedicated to this. I'm sure you have some insightful opinions and good ideas.

I just found out the presentation of what you do:
http://www.wrongplanet.net/posts144584-highlight.html

I think you deserve some congratulations for what you do

I have covered the relevant topic in the other post.