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OuterBoroughGirl
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29 Jul 2012, 11:18 am

I can relate to "Joe" somewhat. I definitely don't blend into the neurotypical population as well as he does. Anyone who has spent time with me would pick up on the fact that there's something "different" about me, something "off." However, few people would ever guess the true extent of my impairment. I've learned to conceal the worst of it when I'm around other people (with the exception of my parents).
I couldn't gauge exactly how other people see me, as I don't hear what they say when I'm out of the room. I do know that my public persona does not fit the profile of the stereotypical autistic. As I reach some degree of comfort, and people get to "know" me (become familiar with the self I present to others) I can present as funny, insightful and sensitive. I'll make silly remarks or witty observations that make people laugh. I make sharp, sometimes critical observations of problems and injustices I notice that have people nodding in agreement. I work with preschoolers, and though the children don't afford me the same level of respect as an authority figure as they do the other staff, they love me. I have a strong rapport with these kids, and they are always happy to see me. I work as a floater teacher, covering in various classrooms as needed. I'm shifted around to suit the needs and convenience of the school. At times, I'll be in one classroom every day for a period of time, and then I'll be moved to something else. I'm told that children often ask for me when I'm not in the classroom with them. In my interactions with the children, I tend to present as funny and playful, and I often have children telling me that I'm "funny."
About half of these children are on IEPs due to special Educational needs, and struggle significantly with learning certain skills and concepts as I result. I find that I make more effort to understand the "why" behind these difficulties than many of my coworkers, making an effort to determine exactly what it is going on with a child's brain, processing and perception to make specific skills more difficult. Children appreciate that I honestly acknowledge their difficulties, without disparaging them for said difficulties. I've had people comment on how I'm one of the most "caring" teachers there. Though I struggle in certain aspects of my work, I present as funny, insightful, caring. Of course, no one at work sees how I collapse at the end of the day, how exhausted I get from not only the interaction, but even just remaining tuned in to my external environment as opposed to automatically retreating into my own head. They don't see my thoughts, how much I obsess on specific topics. I could write a thick volume on all the parts of me other people don't see.
The general population has such a rigid, stereotyped view of what individuals on the spectrum are "supposed" to be like that anyone who doesn't fit that profile, anyone who has learned to adapt to a degree, isn't taken seriously.
I apologize if this post is more rambling and incoherent than my usual. For several reasons, I"ve been in a massive fog lately.


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TheSunAlsoRises
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29 Jul 2012, 1:24 pm

ShamelessGit wrote:
I find it is much easier to get through life if you ignore people's expectations and let them know that you're choosing to do so. They stay out of your way and it is much less stressful.


I agree.


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29 Jul 2012, 1:37 pm

OuterBoroughGirl wrote:
I can relate to "Joe" somewhat. I definitely don't blend into the neurotypical population as well as he does. Anyone who has spent time with me would pick up on the fact that there's something "different" about me, something "off." However, few people would ever guess the true extent of my impairment. I've learned to conceal the worst of it when I'm around other people (with the exception of my parents).
I couldn't gauge exactly how other people see me, as I don't hear what they say when I'm out of the room. I do know that my public persona does not fit the profile of the stereotypical autistic. As I reach some degree of comfort, and people get to "know" me (become familiar with the self I present to others) I can present as funny, insightful and sensitive. I'll make silly remarks or witty observations that make people laugh. I make sharp, sometimes critical observations of problems and injustices I notice that have people nodding in agreement. I work with preschoolers, and though the children don't afford me the same level of respect as an authority figure as they do the other staff, they love me. I have a strong rapport with these kids, and they are always happy to see me. I work as a floater teacher, covering in various classrooms as needed. I'm shifted around to suit the needs and convenience of the school. At times, I'll be in one classroom every day for a period of time, and then I'll be moved to something else. I'm told that children often ask for me when I'm not in the classroom with them. In my interactions with the children, I tend to present as funny and playful, and I often have children telling me that I'm "funny."
About half of these children are on IEPs due to special Educational needs, and struggle significantly with learning certain skills and concepts as I result. I find that I make more effort to understand the "why" behind these difficulties than many of my coworkers, making an effort to determine exactly what it is going on with a child's brain, processing and perception to make specific skills more difficult. Children appreciate that I honestly acknowledge their difficulties, without disparaging them for said difficulties. I've had people comment on how I'm one of the most "caring" teachers there. Though I struggle in certain aspects of my work, I present as funny, insightful, caring. Of course, no one at work sees how I collapse at the end of the day, how exhausted I get from not only the interaction, but even just remaining tuned in to my external environment as opposed to automatically retreating into my own head. They don't see my thoughts, how much I obsess on specific topics. I could write a thick volume on all the parts of me other people don't see.
The general population has such a rigid, stereotyped view of what individuals on the spectrum are "supposed" to be like that anyone who doesn't fit that profile, anyone who has learned to adapt to a degree, isn't taken seriously.
I apologize if this post is more rambling and incoherent than my usual. For several reasons, I"ve been in a massive fog lately.


Excellent Post. It makes me wonder just how many diagnosed and undiagnosed people who are out here with a similar profile.


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AftertheFall
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29 Jul 2012, 6:05 pm

Quote:
Excellent Post. It makes me wonder just how many diagnosed and undiagnosed people who are out here with a similar profile.
TheSunAlsoRises


We are many and to be perfectly honest the diagnoses of autism ,no matter the position on the spectrum, is nothing less of a social-political death sentence. Thanks to illustrious organizations such as Autism Speaks the mere utterance that I was diagnosed as a child to any social circle results in a flurry of conversations of “but your not a ret*d or anything like that….” So I and a few close friends have become very good at masking anything that is odd and for myself the worst I come off as is highly enthusiastic happy person and at the best utterly normal.



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29 Jul 2012, 6:42 pm

AftertheFall wrote:
Quote:
Excellent Post. It makes me wonder just how many diagnosed and undiagnosed people who are out here with a similar profile.
TheSunAlsoRises


We are many and to be perfectly honest the diagnoses of autism ,no matter the position on the spectrum, is nothing less of a social-political death sentence. Thanks to illustrious organizations such as Autism Speaks the mere utterance that I was diagnosed as a child to any social circle results in a flurry of conversations of “but your not a ret*d or anything like that….” So I and a few close friends have become very good at masking anything that is odd and for myself the worst I come off as is highly enthusiastic happy person and at the best utterly normal.


Thank you for confirming what i have sensed.

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AftertheFall
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29 Jul 2012, 7:35 pm

It takes you knowing me over two years for me to even think about telling you…..the information is just to damaging in the wrong hands to the natural politics of the small college I attend. It takes even longer for some of my friends to admit to it, thought to be fair they we more persecuted because of their inability to socialize as effectively as myself.

So if your thought is right but most of us wouldn’t be caught dead telling someone about it outside of these forums. and even with amenity of the internet I still feel at “risk”



IndieSoul
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29 Jul 2012, 8:00 pm

I see much of myself in this, too, though I imagine I'm not as good at hiding it in public. When I come home from school, I often nap for hours on end. This worries my mother because she sees it as a sign of depression. I doubt this - it's just the way my mind recharges after a busy, mentally-taxing day.

Sometimes I wish I knew how people really see me. My guess is that they think I'm just a shy, nervous person. When most people hear the word "Asperger's", they think of the cognitively-impaired who are placed into special education and kept separate from the rest of the student body (my school does this). Little do they know how many of us walk around with our symptoms hidden and thus remain "under the radar".


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29 Jul 2012, 8:24 pm

I'm not surprized BUT i find all this fascinating.

Now, i wonder how many received an official Autism diagnosis BUT had it either removed or rejected with the consent of a guardian for fear that a label would socially handicap their child ?

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AftertheFall
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29 Jul 2012, 8:28 pm

Mine did



Nadiar
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30 Jul 2012, 6:09 pm

Joe needs to use Google Calendar.

I have events set up for people 2 weeks in advance to ask what kind of gifts they want for their birthday, 5 days in advance for purchasing gifts, and 10am on their birthday or other anniversary.

My phone alarms when each event happens. It's the only way I can ever "remember" anything. Everytime someone gets upset about me forgetting something that happens every year I punch it into my calendar so that I get a reminder the next time.



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02 Aug 2012, 7:23 am

The latest stats down here in South Australia show two percent of ten year olds on the spectrum. If you spread that across the population, that makes more than ten thousand autistic adults, of whom only a handful have diagnoses.

I've a personal interest because I was one of these forgotten people until recently. My father is still one of them.

For us to continue in denial helps sentence our autistic children to a life of rejection - is that what we want?



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02 Aug 2012, 7:55 am

fubar wrote:
I try to be friendly, but people tell me I come off as an ashole. I've learned to mimic others, and I am pretty good at it I think. Still, miscommunications at work and with family have driven me to failure at home and in the workplace time and time again. I think that Joe and I are a lot allike, except he somehow gets people to like him. I try to fiegn interest in american idol, or whatever trivial crap normal people generaly talk about, but that doesn't seem to get people interested in being friends with me. Maybe I have a lot more to learn. Unfortunately, I haven't found anyone to work with me who can help me get better at this stuff. As much as I pride myself at being an autodidactic pollymath, this is a topic that doesn't seem to be one of those things that I can teach myself. If I could, I probably would have known what reading people meant: before being diagnosed 2 years ago. Early intervention would have been nice, even late intervention, but instead I'm stuck in a loop of trying to comprehend something my mind wasn't meant to understand. So, I'm an a**hole? Sorry everyone, I only ever wanted to be liked. I never wanted to be someone who makes others feel bad, but I don't see what I'm doing wrong for that to happen. This is confusing, estoy confundito! Esta lluvia mierda, and there's no shelter anywhere.


I can relate to your experience. :(



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02 Aug 2012, 2:19 pm

nonneurotypical wrote:
If something other than AS doesn't describe "Joe" then I wonder if maybe his intense interests could simply be less apparent because they happen to be his profession and therefore less remarkable and less obvious. If he is an engineer or computer programmer for example, his intense interests just might be disguised as his job.

I'd be interested in knowing if Joe's IQ is in the range that might afford him a bit more horse power to cope better than most with AS. I've said it before and I'll say it again, I have a problem with the whole concept of a diagnosis being hinged upon clinically significant impairment of normal function and how that might be measured.

I knew a man who lost a foot in an auto accident. I had no idea he was missing a foot and that he used a prosthetic one until the day he told me the story of how he lost the foot. Was he effectively cured of missing a foot because he was so well adapted to using that prosthesis that missing a foot did not impair this activities to any significant degree?



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04 Aug 2012, 12:33 pm

I'm still constantly surprised at all the similarities to my life and the way I feel and perceive things,it just amazes me how many people endure the same things I do.All my life I tried to blend in,be a chameleon or try to be the image of what another person wants me to be always trying to anticipate what to say or do,how to look,always analyzing what I said,was it offensive,did I talk too much,why am I so F'ing tired after being around people,why do I dread parties and get togethers,why does it take me days to recover from a simple shopping trip.When I'm home alone it's like the sweetest breath of air,I feel light and free.It was always like this and now I don't force myself to do the things that thrash me,I don't have to go to parties,dances,holiday dinners,weddings and all that social hoopla,all I have to do is live and die.And I intend for the rest of my life to be as quiet and drama free as possible.I'm too old and tired to fake it anymore.



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04 Aug 2012, 1:45 pm

Misslizard wrote:
I'm still constantly surprised at all the similarities to my life and the way I feel and perceive things,it just amazes me how many people endure the same things I do.All my life I tried to blend in,be a chameleon or try to be the image of what another person wants me to be always trying to anticipate what to say or do,how to look,always analyzing what I said,was it offensive,did I talk too much,why am I so F'ing tired after being around people,why do I dread parties and get togethers,why does it take me days to recover from a simple shopping trip.When I'm home alone it's like the sweetest breath of air,I feel light and free.It was always like this and now I don't force myself to do the things that thrash me,I don't have to go to parties,dances,holiday dinners,weddings and all that social hoopla,all I have to do is live and die.And I intend for the rest of my life to be as quiet and drama free as possible.I'm too old and tired to fake it anymore.


Yes, yes, yes! I'm much happier now that I've given up trying to function like the normals.


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07 Aug 2012, 5:22 am

So the individual says he can't meet the criteria for an ASD, but says he has one?

That makes so much sense.