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Edna3362
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22 Aug 2025, 10:08 am

Huckleberry Finn wrote:
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Edna3362 wrote:
The biggest trigger and possibly the cause of my burnout, is the chronically dismissed as an allergy relentless congestion and sneezing.

Imagine you have sinusitis...
... Except it never went away.

Meds don't work?? Then avoid this, drink that, yadda yadda yadda -- you have an allergy. :roll:

Oh, but nothing works!
Why?? Because your attitude, your autism, if you're an NT you would manage it better -- fricking more blah blah blah


Actually, the trigger is literally just inhaling through the nose.

Yes, just inhaling through the nose.
Nothing special. Not fur, not particular smells, not dusts, not mites, not pollen, not whatever seasonal crap, not food; no-nothing.

Doesn't matter when or where, tho that'll be worse and certain time and place triggers it even without breathing through the nose.


Anti-asthma inhaler, when it was still effective -- it was the best.

Then because of a long enough absence, not getting exhausted, not getting irritated, not getting triggered, not being 2-3 steps away from melting down...

Deduced that one way for me to manage this crap without medication is to literally do not breathe through the nose.

And just avoid getting triggered altogether by not letting not even a wisp of wind touch that nuisance in my head, else, it won't stop or it won't go away.

That, and it also meant sleeping will inevitably trigger it since I literally cannot control how I breathe while at it.
Could explain why I hate sleep so frickin much and why I suspect that sleeping is making me ill every nighttime, and wake up with flu like symptoms.

I don't mind skipping sleep at certain days, because I'll inevitably get sick if I do. Better than helplessly getting myself ill for just breathing "wrong". :roll:


Just how fricking maddening is that?! :x :x :x

Show Spoiler
Even if I eat foods that until recently didn't do me any good, now they're devastating for me.
A huge list.
OF the wrong foods.

Plus, there are food preservatives and vacuum-packed foods, and chemicals used to preserve ham or other things in trays.

I can't drink a canned beverage.

I can't eat anything but the same meal every time: everything hurts me terribly.
Plus, it shows up on my skin in the form of dermatitis. I can only rarely shave because it irritates my skin the next day.
Then it flakes off.

Anything else I can't describe would require a whole mile-long post otherwise.

§
I've reached a temporary solution after a year and a half of nonsense from dermatologists and allergists and the money I gave them.

The tests cost a lot.
Including those useless doctors.
§
I think it depends on something that has permanently interfered with my immune system.

A protein from a vaccine or a component of the vaccine, for example.

This is not an anti-vaccine post, let's be clear.

§
I figured out some things on my own.
I studied medicine for quite a while before switching.
Other subjects too, but that was my favorite.

§

I wrote to my doctor.
I asked for an antihistamine and a cortisone treatment.
*Then I waited for his response.
Immediate: on Sunday morning, 1 hour after I wrote to him.
In detail
§
I thanked him and tried the treatment.

The problems have eased by 90%.

I asked him if I could continue with the same procedures.
Okay.

Until yesterday, everything was fine.
The symptoms have recurred.

Symptoms are useful.
To help us understand, but specialists often confuse them.
Also because they certainly don't have a clear picture due to the lack of diagnostic tests that they can't prescribe.
Or that are very expensive.

Anything else I can't describe would require a whole mile-long post otherwise.

§
I've reached a temporary solution after a year and a half of nonsense from dermatologists and allergists and the money I gave them.

The tests cost a lot.
Including those useless doctors.
§
I think it depends on something that has permanently interfered with my immune system.

A protein from a vaccine or a component of the vaccine, for example.

This is not an anti-vaccine post, let's be clear.

§
I figured out some things on my own.
I studied medicine for quite a while before switching.
Other subjects too, but that was my favorite.

§



Then ask for them to be medically evaluated to see if they exist or not.
§
Things trigger them in us, and why, when, and how.
These are the questions to ask.

The nose is also a filter.
The air is clean.
Not so much through the mouth.

But if you get congested with allergic rhinitis, then it's not fulfilling its role and causes suffering.

What should be done to prevent the chaos that follows?

Why it should be prevented, after having understood what triggered it and why, where, and how.

§
I'll add a part of the post later, hoping it'll be helpful.

(I hope)

§

How can you prevent allergic rhinitis? Preventing exposure to inhalant allergens can be complicated, but there are some precautions you can take: consult the pollen calendar online to check the presence of pollen in the air and avoid going outside during peak pollen hours, the hottest hours of the day. If necessary, you can use protective masks and goggles. Ventilation systems can also be equipped with appropriate filters to reduce pollen entry into homes and cars. However, if you have a dust mite allergy, it's important to follow environmental cleansing guidelines, such as frequent cleaning of your home and workspace, paying attention to items such as armchairs, sofas, rugs, pillows, beds and linens, and air conditioners, and using vacuum cleaners with high-efficiency filters. You should also maintain optimal humidity in your living space, avoiding overly dry or humid climates and avoiding exposure to cigarette smoke. Diagnosis: The diagnosis of allergic rhinitis initially requires a thorough examination by an allergist to investigate a possible family history of allergic diseases, the patient's symptoms, lifestyle, and habits. The specialist will then recommend the necessary tests for further diagnosis, which include: Skin allergy tests (prick tests), in which small amounts of allergens are applied to the forearm and any immediate skin reactions are observed, suggesting sensitivity to the tested substances; Rast Test, a serological test for the detection of IgE immunoglobulins responsible for the allergic reaction; Alex Test, a serological test available at Humanitas, which detects specific IgE antibodies for over 200 allergens. In the presence of complications such as sinusitis or nasal polyps, an ENT examination with nasal endoscopy is recommended. Treatment: The treatment of rhinitis varies depending on its duration and severity. Allergic rhinitis can be mild or moderate, intermittent or persistent. Once the type of allergic rhinitis and the substance(s) to which the individual is allergic have been established, various treatments are available: Oral or nasal antihistamines, histamine receptor antagonists that block the production of histamine and relieve most symptoms, particularly itching, sneezing, or watery eyes, but are less effective against nasal congestion; Decongestant sprays, but for no more than 10 days and no more than twice a month; Topical nasal steroids; Nasal rinsing with a sterile saline solution can also be beneficial; Desensitization therapy or allergen-specific immunotherapy, the so-called allergy "vaccine," a treatment that induces the immune system to become less reactive to the allergen over time. It involves taking tablets or oral drops conveniently at home for a relatively long period of time (3 to 5 years). It is the only treatment currently available, capable of acting on the cause of the allergy and not just on its symptoms as drugs do (which are precisely called symptomatic).

Antihistamines, decongestants, and the supposedly addicting nasal spray doesn't work for me.
And if it did, it won't last for few hours at most.

I figured -- this isn't an allergy. No amount of "avoiding" can.
Whether it's seasons, food, scents, and anything in between.

I could down like 3 different antihistamines in one go, and no change will happen except for potential side effects.
And what I've been hoping is making whatever dry, which doesn't always happen either.

I could be in the most sterile of rooms for days, and it'll still happen. All because the air is cold enough and I breathed.

I don't think it even is. There's just something utterly stupid in this nose.
Whether it's a defect, or something else.


It literally took getting treated for bilateral pneumonia to not ever sneeze a few days straight, let alone weeks in a row at all.
That had never happened in my last 25+ years of suffering from this damnable curse until around 5 months ago.


Now since sleep is my suspect...
... I'd nominate myself that I will not sleep at certain days.

If the weather gives me flare ups and symptoms despite the nose being relatively warm, it'll be a sign that going to sleep at an entire night isn't worth it.

Why? I will wake up sick.
It won't be limited to usual phlegm every morning or that occasional mild fever that will go away in the afternoon.

It'll be something that can reach my lungs, affect my voice, and then a full blown flu that will last for a week if I did not skip a night sleep from sleep activated overreacting immune response.

I refuse to waste any more of my weeks or even months worth of days every year because of this nuisance.



Going for a check up?
Yeah, my birthday gift to myself someday -- that is, if I ever have the time and money -- on top of having the mental faculties and the language to be able to actually explain the whole thing without another fool thinking this is just an attitude issue or something stupid like treating it still as if it's still an allergy but it isn't. :roll:


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22 Aug 2025, 6:28 pm

Emetophobia is more crippling than autism, in my experience anyway. It's too much of an affliction to be called a phobia, as probably everyone with Emetophobia AND Arachnophobia would most likely say they'd rather touch a spider than be sick - which is saying something, because I'm TERRIFIED of spiders, but not in the same sort of way as I am of being sick. Arachnophobia can bring some thrill even though you're fearful, but there is NOTHING thrilling about vomiting. Nothing, ever. It's even more terrifying to us than dying.

I've had therapy but it didn't really do much. Well it felt good to be able to talk to someone in depth about it, but she just told me what I already knew, like how vomiting saves your life and all that. Um, no, I don't care if it does save your life, I'd rather not throw up ever. But I'm only 35, so I'm likely to throw up again at least once between now and when I'm an old lady. One day my immune system might not win against norovirus. Despite washing my hands and keeping hygienic, it still might somehow enter my body, and then there's nothing you can do other than be sick.

This Emetophobia isn't just an irrational fear that can be managed, it's a rational fear as well. It involves physical things as well, such as R-CPD (which makes it really difficult to be sick). Having a strong stomach like me has a lot of benefits, but can really be frightening when it comes to vomiting.

It's why I don't drink alcohol. It's why I don't smoke weed. It's why I don't have a biological child. It's why I can't work in a preschool. It's why I don't travel very far. It's why I rely on people with very good cooking skills to cook my meals. It's why I stick to safe foods. It's why I don't go on fairground rides.

It restricts me in life more than autism ever will.


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23 Aug 2025, 4:35 am

Why would a person without adhd want to take medication for adhd

What does it do for a person without adhd


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Edna3362
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23 Aug 2025, 7:37 am

babybird wrote:
Why would a person without adhd want to take medication for adhd

What does it do for a person without adhd

Usually its...

Either to replace coffee...
... Or to get high.

Either (maybe both) of the two out of the few most addicting effects humans tend to abuse.


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babybird
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23 Aug 2025, 9:47 am

I think I may have mastered the art of communicating with people who are outside my own head

It's quite fun actually

It is a completely different style of dialogue, even if I do say so myself

The mechanics of it are quite different as well...I'd love to be able to explain this more explicitly but I can't


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23 Aug 2025, 9:53 am

babybird wrote:
I think I may have mastered the art of communicating with people who are outside my own head

It's quite fun actually

It is a completely different style of dialogue, even if I do say so myself

The mechanics of it are quite different as well...I'd love to be able to explain this more explicitly but I can't


This sounds rather interesting ..? keep us posted ? perhaps.


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babybird
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23 Aug 2025, 11:01 am

Well yeah, it's something that's happening kind of seemlessly

It's not something that I ever expected to happen and it's not even something I ever considered needed fixing

Best not ponder on it too much


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25 Aug 2025, 9:53 am

I've wasted a lot of time looking for reasons; reasons for this, reasons for that, reasons for the other

Sometimes there are none.


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babybird
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25 Aug 2025, 1:23 pm

I wonder what personality disorder Travis Bickle (Taxi Driver) had


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26 Aug 2025, 3:50 pm

It's been a weird year for me

Like a big event year
But I've got like a backlog of stuff to get through before I can get it processed and filed away properly

Sucks dunnit


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27 Aug 2025, 5:11 am

It's funny what your brain can do innit


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babybird
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27 Aug 2025, 5:22 am

Jakki wrote:
babybird wrote:
I think I may have mastered the art of communicating with people who are outside my own head

It's quite fun actually

It is a completely different style of dialogue, even if I do say so myself

The mechanics of it are quite different as well...I'd love to be able to explain this more explicitly but I can't


This sounds rather interesting ..? keep us posted ? perhaps.


The best way for me to explain this at this point is; it's like the people who used to talk inside my head have started to talk to people outside my head


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27 Aug 2025, 5:36 am

Maybe I started to feel safe in the world


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27 Aug 2025, 4:53 pm

@Edna3362
You could be right, and it's not an allergy.

But something else or a contributing cause.

So in my case: I have an allergy to nickel (sulfate) and dust mites.

The point is that histamine produced or induced by food (most of it in my case) creates serious problems.

If I eat the wrong food, I feel terrible: abdominal cramps for hours and other symptoms similar to irritable bowel syndrome.

§

Then skin symptoms: irritations that don't heal, and more.

What do I think?
I avoid the wrong foods, but they're almost all wrong.
I eliminate alcohol...and,and,and.
I no longer have diarrhea.
I eat things I've always eaten in my life, and the histamine reaction kicks in.
I can't describe it.

I get home hours later and immediately take an antihistamine.
After a few minutes, I feel the burning on my skin subside.
Then I write to my doctor and ask him for cortisone.

The situation calms down, and the sores on my skin are reduced by 90%.

It's not the solution: obviously it isn't.

But it does indicate something to focus on: the abnormal histamine release.
Specialist doctors and the analyses and tests are expensive.
Furthermore, this doesn't solve an unclear situation.

I'll consult a doctor, then I'll try to get an allergist to help me decide which path to take.

It's not easy at all.

We'll see in the next few weeks.

§
Your case: you could be right.
It's not an allergy.
But something else, or both.
You keep a detailed diary of everything you do, the environment you're in, the humidity level, environmental conditions, every detail.
Of course, a doctor should evaluate solutions after a sensible diagnosis tailored to your case.
*Non-allergic rhinitis (vasomotor):
Excessive reaction of the nasal mucosa to environmental factors such as smoke, pollution, strong odors, spicy foods, but also stress, changes in temperature and humidity.(?)

§
Immune system reaction to substances like pollen, dust mites, mold, or animal dander. (?)
For now, I'll give you two hypotheses other than allergies.

Something's wrong: but it doesn't have to be a mystery to find the causes.
They exist: just don't rule them out at the root.
In any case, focus on what you tell your doctors.
So they can discern what's wrong with you.
Narrow down the hypotheses, without wasting a lot of money, stress, and health on something researchable.
Okay, it's not easy, we know.
Saying it's an allergy might point to a flawed modus operandi.
There are no wrong answers, but rather wrong questions, and they have to carefully evaluate all the possible ones.
Blaming the patient is annoying: they're already sick, so why blame them for things they're not guilty of?
§
By chance, I found a very good doctor.
As soon as she found out I had Asperger's, she said she'd see me for free to listen to me, see me, read the tests I've had so far, and give me her assessment.
Precisely because she knows I've already spent a lot of money and time, and it's not right for someone to have an already difficult life, on top of which there's even more.



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28 Aug 2025, 1:06 am

babybird wrote:
Maybe I started to feel safe in the world



Hooray...? :D


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28 Aug 2025, 4:39 am

I learned that emotions don't last forever. so if I feel sad then I know that it's not a permanent thing so then I know that it's OK to feel it

In my head I can see it like a spider and the legs are the emotions and the body is the neutral part

So when I feel something I'm on the spiders leg and then after a bit I go back to neutral aka the spiders body


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