Say Something Random: psychological Conditions Version
my Quote to myself after having faced years upon years of this crud , Eventually came up with my saying :
" It is merely the "Appearances of Hostility, In a Otherwise Peaceful environment" . ...stuck it on the back of my refrigerator .. To help remember that , when I came home from being out in the World . Even if my brain wandered into dangerous territory, I still had to eat, and there was my sign ,right there facing me on the back of the refrigerator.
SURE beats my earlier mantra. in Music the tune by the Talkingheads ,I believe? " Life during Wartime"
Cheers. , with my first cup of Alka Seltzer this moring . ![]()
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Diagnosed hfa
Loves velcro,
Coming richer out of hell is amazing.
I'm glad you found a quote that gave you a better feeling but you sound pretty cool Jakki. I watched this music video. Neato.
I've been having all these feelings about women as survivors (not that it's only women who do, obviously, just that my own experiences were linked to being born a woman).
There are people in these forums modelling sanity and humanity and grace under fire in a way I haven't had in my life for ages.
The strength and compassion in their responses has made a huge difference to me. It's sanity-affirming.
I wish neither of you had gone through it, but I'm grateful to you for being who you are and being here and speaking about it.
I just wanted to say something you already know but which I think is often really, really hard to act on:
Everyone who knows you is going to want to support you. Many people hesitate to offer support in case it is offered in a form that is not good for you. Nobody wants to make things worse.
So, if there's ever a moment in which you find yourself thinking, I would like A to give me a hug, or I would like B to hold my hand, or I would like C to just sit with me, or I would like D just to say that they know how hard it's been, or I would like E to stop talking about x, anything like that, anything at all -
the best, kindest, most loving thing you can do for that person is to let them know.
It is hard.
(Sometimes I had to keep being told this.)
You are fighting.
Every inch of ground is so hard won.
But, every tiny smidgen of relief is very, very good. You are due some smidgens of relief. It seems like it's been unrelenting.
I remember some moments in which it hurt just a tiny bit less and I caught a glimpse of the vastness of how much it had been hurting and found that scary too.
So... you are fighting very hard and you are conquering territory. Hope you will go easy on yourself as much as you can and that you will let the art class ladies fuss over you again, they must have absolutely loved that ![]()
I'm learning to trust women
I used to find relationships with women difficult and I think it's because they spot that I'm vulnerable easy and they seem to want to mother me. And I used to run away from that
But I'm learning like it now
There's a lot to do but as long as I'm getting a bit better each day then I must be doing the right things
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we have existence
Coming richer out of hell is amazing.
I'm glad you found a quote that gave you a better feeling but you sound pretty cool Jakki. I watched this music video. Neato.
I've been having all these feelings about women as survivors (not that it's only women who do, obviously, just that my own experiences were linked to being born a woman).
There are people in these forums modelling sanity and humanity and grace under fire in a way I haven't had in my life for ages.
The strength and compassion in their responses has made a huge difference to me. It's sanity-affirming.
I wish neither of you had gone through it, but I'm grateful to you for being who you are and being here and speaking about it.
Thank you for this Writing. kuen..
And Thank you both for being here and having made it as far as you have to be here
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Diagnosed hfa
Loves velcro,
I think I read somewhere in a doctor's surgery that Asperger's is more comparable to mental health conditions such as anxiety, depression and bipolar, while autism is more comparable to developmental conditions such as learning disabilities, savant skills, and lacking significant social skills in less complex ways than those with Asperger's.
I know this sparks controversy, but I think there is a bit of truth to it. Often I have met or heard of people who are social but highly emotional and stressy and a bit eccentric and cling on to interests, whom later get a diagnosis of an ASD. But the people with already diagnosed autism that I have met seem more obvious in their mannerisms, appear less eccentric, more emotionally withdrawn, and have some sort of learning delays but savant skills at the same time.
It's probably quite a good way to explain the differences between Asperger's and autism, because I believe that the two aren't the same, despite an overlap of symptoms such as sensory problems.
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My diagnosis story and why it was a traumatic experience for me:
viewtopic.php?f=35&t=416910&start=1056#p9695026
Please notify me if there's a spelling mistake or an obvious autocorrect error in my posts.
I have an apology for babybird.
In case you do not like apologies I will put it in a spoiler box
it is not something you have to read unless you want to.
That is all. I am sorry.
If you want this wiped off the record, please just say, I will ask Cornflake for help if too much time has passed for me to do it.
There are things that need to be said and things that don't need to be said, and in some ways the curse of my life has been that I can never tell which is which.
I have been a bit obsessed with this band these last few days. I find these songs very joyful, but they are about Overcoming, so I thought I would put them here instead of the obsessions thread, with loose translations in spoiler boxes.
The '90s:
I have fought God
I fought so much
I became scared of myself
don't make me fight again
it isn't good for me
don't make me fight again
for there is not a jot of desire in me
to waste the soul that is in me
hold on!
we will grow in all directions
hold on!
change is coming
I have not used the word 'fighting' for myself ever, but I think the word I have used, 'surviving', is something similar.
30 years later! What I love about this video is that everyone smiles so beautifully but you can see that they get it. It is ebullient, triumphant. And I just find it. Fecking adorable.
your friend
my friend
because you are my friend
I am yours
a friend whose eyes don't lie
their ear to my lips
hearing my side of the story
my friend
I've got your back
you know and I know
for a time what I carried was weight
pressing me into the ground
for a time there was an absence in me
where there should have been a friend
that's what was in me
it is not with me now
I am healed there now
I know
may it be with me
I carry it in me
This is straining my cúpla focal a bit past their limit, to be honest :p
I have seen some of these musicians in pub sessions, but I did not know of the existence of this band.
I just felt my life has been too boring. I'm not invalidating other people's experiences here of not receiving a diagnosis in childhood, but what I'm saying is from personal experience only and that I was very unhappy and angry and confused about knowing I had a diagnosis as what I may have been if I hadn't known what was ''wrong'' with me.
The thing is, being diagnosed in childhood and getting statemented at school, it feels like your life is mapped out for you. You can't really do the normal teenage rebellion because you're more watched closely throughout school by your mentor, so if you didn't turn up to any classes your mentor will take a note and pass it to your form-tutor and your parents, and it's just harder to get away with such things. Also having a mentor in class with me marred my reputation to my peers, making them think I was ''ret*d'' and feeling embarrassed about being seen hanging out with me. So I became socially isolated and lonely and just relied on my mentor for friendship, further socially isolating me from my peers.
So I did feel like my diagnosis had become a hindrance and looking back I think that I probably would have engaged more in friendships with my peers had I not have got diagnosed. I might have ''went off the rails'' a bit, but in a way I sort of wanted to but had nobody to go off the rails with. My sister went off the rails by getting involved with boys and having to be grounded by our parents, causing lots of normal teenage arguments. I'm NOT saying that's good, but all I could do was watch all this drama unfold and be no part in it and just live like a 5-year-old kid; always kept safe indoors and leading a predictable innocent life where nothing happened to me and no boys liked me and no friends wanted me. I was probably the ideal teenager really, but not really, as I had a lot of outbursts of feeling sorry for myself because of my overwhelming social isolation and worthlessness, which caused a different set of problems for my parents.
It's difficult to explain. I'm probably just seeing the grass as greener but I just felt disconnected and out of touch when I was a teenager. I tried to rebel a bit in school but it didn't really work. I tried seeming cool, while blissfully unaware that having unshaved legs exposed is totally socially unacceptable when you're female, so while trying to be cool I just looked like a jackass in PE class wearing shorts with legs covered in hair, to which everyone seemed too polite to say in the first couple of years of having hairy legs but then some girls pointed and giggled at my legs just as we were coming to an end of our school lives. I wish they had pointed and giggled earlier on so that it could have been a wake-up call I needed to make more effort to fit in as a teenage girl. My mum often told me to shave my legs back then but being so she was my mum I never listened to her, and I didn't exactly look at the other girls' legs and I had no close friends to learn these things from. So I learnt the hard way instead.
But I'm not, repeat, NOT, implying that I wish anything that could cause trauma happened to me. I'm just saying that I wish I had a more active teenage sort of life, in experimenting and having fun. Instead I just felt behind, watching all of it but never being party to it.
This is a rather old post by now but I have to say I really really resonate with this. I don't know how different my life would turn out had I not been diagnosed in childhood, I sometimes wonder if it would have been more successful. But it's too late to really find out. It is what it is now.
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MONKEY 2, 30s boogaloo
I'm a bit uncomfortable with how vague I've been about my own story.
Could I just say that if ever you have questions or you would like me to expand, anything I mention on these boards is something I can talk about without distress. Please feel free to ask questions if ever you have any ![]()
Do take care of yourself lads.
