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Do you think that we need to take more care in how we present ourselves to society?
Yes 38%  38%  [ 42 ]
Yes 38%  38%  [ 42 ]
No 13%  13%  [ 14 ]
No 13%  13%  [ 14 ]
Total votes : 112

Catffienated
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16 Nov 2004, 12:52 pm

I observed Aspergia, but really didn't like it. I felt already alienated, and it seemed to think Aspies were an entirely different species! I'm not NT, but I'm not a different species. They did seem arrogant to me. If we treat ourselves as a different species, then we are only further alienating ourselves. I want to be accepted for my differences. I think Aspies are more like people with a different perspective and mindset. Just my thoughts.


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17 Nov 2004, 7:42 pm

I agree with you fully on that. I just don't feel the point of alienating ourselves further in general. I don't consider myself a 'minority' or different 'species', I'm just myself, I'm an Aspie but only because it's what I consider my temperament. It's part of who I am but I don't find that it needs to dictate 'what' I am because I have some control over my life and what I do.



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19 Nov 2004, 9:09 am

MishLuvsHer2Boys wrote:

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I just don't feel the point of alienating ourselves further in general. I don't consider myself a 'minority' or different 'species', I'm just myself, I'm an Aspie but only because it's what I consider my temperament.


I understand that you wish for you and your sons to be accepted. I think all autistic folk wish to be accepted somewhere in the world. Maybe we don't "fit" in the "minority category" but if not, we sure have alot in common. Maybe we don't "fit" the different "species" category either, but that doesn't stop us from feeling like we are on the WrongPlanet, does it?

I am just myself, too - this doesn't seem like such a different and odd thing to me until I am around folks that are considered "normal" to the world. (Those that are "normal" notice my "oddness" too.) This is the rub....autism touches more than just my temperament. It affects how I view the world...it affects all of my senses and my thought patterns and my emotions. I cannot feel any more alien from others than I do at this point unless I try as hard as I can to Emulate or Copy What the Neurotypical folks do. When I do this, I am more alien than ever because I realize that I am not being true to my nature.....I am a fake....and during my life, this has been the only time I have ever been depressed. I don't mind being different so very much now that I have gotten older, although I sure wouldn't mind finding our RightPlanet.



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19 Nov 2004, 1:55 pm

monastic wrote:
I understand that you wish for you and your sons to be accepted. I think all autistic folk wish to be accepted somewhere in the world. Maybe we don't "fit" in the "minority category" but if not, we sure have alot in common. Maybe we don't "fit" the different "species" category either, but that doesn't stop us from feeling like we are on the WrongPlanet, does it?


That is one thing I never once alluded to in anything I've said, I wouldn't be here period if I didn't feel that way myself. I knew I was always different but I guess my point of view of things comes in from a difference in that I spent 30 years not knowing I was anything but NT, not till after I had Dylan and he was dx'd with HFA, that I was even aware there was a term or group of people that shared a lot of things in common with me. I didn't have the benefit of this information before as people kept saying I was just shy and not very outgoing, a geek, a bookworm, etc. I think you get the point. I would have done most anything to have understand more of myself much much earlier than I have and had an answer much more earlier. That is part of the reason why I am now 31 and decided I need an answer and am seeking official diagnosis to settle things for myself. I accepted years ago I was different and didn't quite belong anywhere in particular before I even found out my oldest son was autistic or that there were several others on my father's side of the family or that it was even possible that everything in my life that people thought were 'quirky' were traits of something more.

I just figure for me, I don't need to be a 'minority' or a 'species' to feel accepted and understood by the people that matter the most to me. That's my family, everyone else than can ever gain an understanding of me or acceptance of me is a bonus, if they can't. Oh well.



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19 Nov 2004, 2:44 pm

Catffienated wrote:

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I want to be accepted for my differences.


MishLuvsHer2Boys wrote:
Quote:
I agree with you fully on that.


also...

Quote:
That is one thing I never once alluded to in anything I've said,


I'm sorry, but when you said you agreed fully, I took that to mean you agreed with the full post from Catffienated.



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19 Nov 2004, 3:53 pm

I should have worded things better, I would like if it people could accept me and understand me, and for those that can, sure it'd be great, but if not, I don't tend to focus on it. I prefer to just live my life and move on.



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19 Nov 2004, 5:47 pm

Believe me MishLuvsHer2Boys, I wish for the very same things. I have 2 sons, too, that I love very much, just as you do. My youngest, dx'd high functioning autistic, is an adult now and I am terribly afraid of the future for him. I understand I will not be around forever for him and I need to make sure the future is a little brighter for him than it was for me. The news I have read lately in the paper has had a chilling affect on me, though. These are the stories I have read lately:
I read about a young man accused of the murder of a young girl. He has been tried and is presently in jail. His parents say he has been dx'd with aspergers, the reporter wrote.
I read about the burning of cars that another man has been charged with. The paper mentions the fact that he is also dx'd aspergers.
I read about the parents that committed suicide because they could not handle the "spending" that their daughter continued to do with no regard to the finances of the parents. The daughter is dx'd asperger the paper maintained.
Yesterday, I read about the father that appologized for the poison cake his child had brought to school and fed to classmates. The father said, in this report, that his daughter was dx'd this past year with aspergers and the doctor said that she should not be in a conventional school - this was all in the paper.

I don't know if this scares anyone else, but it looks to me like a character assasination is being done to autistic adults. I'm not even sure how the mentioning of aspergers in these articles is legal. It sure isn't good/fair reporting, as far as I'm concerned because it just scares neurotypicals into thinking we are walking, talking timebomb-like monsters just waiting for a chance to go off. I will do my part to let newspapers know how I feel about this type of "discrimination" because that's exactly what it is. My son is one of the kindest, most gentle human beings I have ever met and I never want people to look at him in such a light.

I want to live my life without focusing on such things but as long as autistics need advocates, I will work to do my best. Speaking out so that others won't get the "wrong information" about autistics.



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19 Nov 2004, 7:08 pm

I think it's great to speak out but it all depends on how you do it. We want people to be able to understand us as well as autism/aspergers in a positive context not as a negative context that autistics/aspies are rebellious, bitter, etc and that their children could end up that way if no intervention/therapy is had. There is a gray area there that it all could fall into and not always intentionally. It's better to have positive 'role models' to look up to and see that things aren't the way others think they are.



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20 Nov 2004, 8:34 am

Quote:
It's better to have positive 'role models' to look up to and see that things aren't the way others think they are.


Are you ready to stand up and take your place as one of those positive role models? Are to ready to be heard as that positive force? Are you ready to commit to Random Acts of Advocacy not only for your childrens sake but for other children and those autistic children that will (hopefully) be allowed to be born in the future? Let's not leave it to others but do our part (no matter how great or how small our contribution) to educate the masses. Are you with me Mish?

I can't allow myself to sit idle any longer, hoping that someone else will do the work that needs to be done.



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26 Nov 2004, 1:04 am

aspergia.com does not advocate anything like aspergian supremacy. in fact, every time i've seen a person post something to that effect on the discussion board there they have been severely reprimanded. i think the site is more about forming a community where we can feel accepted for our differences and provide support for each other.

the message i got from the article that you posted is that we are not inferior; we do not have a disorder; we are different. i definitely didn't get any kind of aspie superiority vibe from the article.



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26 Nov 2004, 3:10 pm

monastic wrote:
Are you ready to stand up and take your place as one of those positive role models? Are to ready to be heard as that positive force? Are you ready to commit to Random Acts of Advocacy not only for your childrens sake but for other children and those autistic children that will (hopefully) be allowed to be born in the future? Let's not leave it to others but do our part (no matter how great or how small our contribution) to educate the masses. Are you with me Mish?

I can't allow myself to sit idle any longer, hoping that someone else will do the work that needs to be done.


I do stand up and try to educate others on my son's sake, my sake and those others. I would rather do it through positive awareness instead of promoting 'resentment of NTs' etc. NTs are able to be educated and able to be aware of differences if they choose to open their minds. I think there are ways to get a good response and there are ways to not. Simple as that. I don't believe in 'supremacy' of any form, be it NT or Aspie, neither group is better than the other if they think they are superior than the other.

followMe wrote:
aspergia.com does not advocate anything like aspergian supremacy. in fact, every time i've seen a person post something to that effect on the discussion board there they have been severely reprimanded. i think the site is more about forming a community where we can feel accepted for our differences and provide support for each other.

the message i got from the article that you posted is that we are not inferior; we do not have a disorder; we are different. i definitely didn't get any kind of aspie superiority vibe from the article.


Yes I agree, it's better to form a community which positive role models can be found, support can be found and be seen and respected for differences by others by our support for each other.



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08 Dec 2004, 2:01 am

Taineyah wrote:

This idea, which I've had since I read the diagnostic criteria for AS and realised that I fit the description to a "t", was highlighted recently when I read an article on Aspergia.com. ("Rebranding Asperger's" http://www.aspergia.com/lead.htm[/url]) It sounds a bit like one of Magneto's mutant supremacy speeches, if you ask me.


I read that web page and there is nothing supremacist about it.



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08 Dec 2004, 3:15 am

Taineyah wrote:
Something I should clarify, since it wasn't in the movies, but only in the comics and some people might not know: Magneto's gone through several phases when he wanted to just separate from the human world.

Also, someone asked why my NT bf thought we shouldn't be allowed to speak.

Here's the answer:

I'm a little crazy.... in the way that I have grandiose schemes and weird ideas. He's afraid that if enough people like me got to gether, one of my ideas, or one like it, could be realised.

(ie, I get this insane urge to just start walking sometimes, to go find someplace where there are no people.) I have other schemes, but this is one that scares him a lot. He's afraid you guys might encourage me.


You misspelled simply in your first post (simly) and now together (to gether).
What is so crazy about crazy ideas? Didn't they tell the Wright brothers, man will never fly? Or think Hunley was crazy for thinking submarines could fight in war? or Robert Goddard? or Galileo for thinking we lived in a Heliocentric universe? or Ben Franklin for thinking we could harness the power of electricity? Or Alexander for thinking he could conquer the world? or Imhotep for building the tallest structures in the world for many centuries? or Eiffel for building that iron contraption in Paris? stop me if I am rambling. Or Archimedes for the first computers during the time aroudn the Punic Wars? Flavius Aetius for thinking he could stop Atilla? Or Leonides for thinking he could fight an army of a million with about three companies? Breather...I could go on for a long time. Like the old saying goes there is a fine line between madness and genius.



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08 Dec 2004, 3:25 am

monastic wrote:
Believe me MishLuvsHer2Boys, I wish for the very same things. I have 2 sons, too, that I love very much, just as you do. My youngest, dx'd high functioning autistic, is an adult now and I am terribly afraid of the future for him. I understand I will not be around forever for him and I need to make sure the future is a little brighter for him than it was for me. The news I have read lately in the paper has had a chilling affect on me, though. These are the stories I have read lately:
I read about a young man accused of the murder of a young girl. He has been tried and is presently in jail. His parents say he has been dx'd with aspergers, the reporter wrote.
I read about the burning of cars that another man has been charged with. The paper mentions the fact that he is also dx'd aspergers.
I read about the parents that committed suicide because they could not handle the "spending" that their daughter continued to do with no regard to the finances of the parents. The daughter is dx'd asperger the paper maintained.
Yesterday, I read about the father that appologized for the poison cake his child had brought to school and fed to classmates. The father said, in this report, that his daughter was dx'd this past year with aspergers and the doctor said that she should not be in a conventional school - this was all in the paper.

I don't know if this scares anyone else, but it looks to me like a character assasination is being done to autistic adults. I'm not even sure how the mentioning of aspergers in these articles is legal. It sure isn't good/fair reporting, as far as I'm concerned because it just scares neurotypicals into thinking we are walking, talking timebomb-like monsters just waiting for a chance to go off. I will do my part to let newspapers know how I feel about this type of "discrimination" because that's exactly what it is. My son is one of the kindest, most gentle human beings I have ever met and I never want people to look at him in such a light.

I want to live my life without focusing on such things but as long as autistics need advocates, I will work to do my best. Speaking out so that others won't get the "wrong information" about autistics.


My mother once said "You can hurt people" not in an emotional way or accident, but as in a skill. I think I learned to control the aggression streak a little better after counselling at age 13, but not for AS. I've been in many fights when younger. While still had occassional problems with bullys I was for the most part left alone, because I did not take it. I even frequently protected my younger NT brother with my aggressive streak. The first fight I remember ever being in nearly resulted in a circulation challenged condition, that was second time I was counselled at about 5 or 6. When I fought I took it more seriously I think than other people and therefore fought like Davy Crockett on the wall. You could also mention jail, which gradually affected my behavior as an additional deterent. I can't neccessarily say the beast is gone for good, since conditions that warrant its appearance are rare, but it does not get set off as easily as it used too.

PS. The article on this site said that AS was suspected but never dx'd for the daughter in the poison cake incident.



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08 Dec 2004, 2:43 pm

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PS. The article on this site said that AS was suspected but never dx'd for the daughter in the poison cake incident.


This is one of the most aggravating things to me.

My Local Newspaper (I live in Indiana) not only printed that one of the girls had been dx'd with aspergers this past summer, but the dad supposedly said that it was recommended to him (by the Dr that did the Dx) that his girl should not be in "a conventional" school. That really ticked me off.
Just the whole way the article was presented was enough to get me writing an email to the newspaper that published this article. Now you're telling me that the girl was never dx'd at all? Where do these reporters get their facts? Don't they even check anymore to see if they do have the truth before they print this stuff? :x



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08 Dec 2004, 3:02 pm

monastic wrote:
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PS. The article on this site said that AS was suspected but never dx'd for the daughter in the poison cake incident.


This is one of the most aggravating things to me.

My Local Newspaper (I live in Indiana) not only printed that one of the girls had been dx'd with aspergers this past summer, but the dad supposedly said that it was recommended to him (by the Dr that did the Dx) that his girl should not be in "a conventional" school. That really ticked me off.
Just the whole way the article was presented was enough to get me writing an email to the newspaper that published this article. Now you're telling me that the girl was never dx'd at all? Where do these reporters get their facts? Don't they even check anymore to see if they do have the truth before they print this stuff? :x


The article went on to say the Dad wanted put her in a special ed setting and/or be officially diagnosed, but the school ignored his requests, and he complains the very same school overseeing punishment was the same that refused to do anything to help in the first place and thus avoid this problem.

I can sympathize, my school system repeatedly gave up on me.
Don't have much regard for schools.