Modern day autism stigma
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 68
Gender: Male
Posts: 39,637
Location: Long Island, New York
Autism had the ret*d stigma. That is why in 1981 Lorna Wing proposed The Aspergers disorder diagnosis. Her idea was if you don’t call “high functioning” Autism, Autism parents would more readily seek an ASD diagnoses.
As much as we abhor the Rain Man stereotype today that 1988 movie was groundbreaking in it’s time and humanized Autistics to a degree.
In the early 90’s Wing’s proposal was adopted. What the members of the DSM who adopted Wing’s proposal could not have anticipated was the widespread adaptation of the Internet and how that tool would allow people to find each other. Still as we entered the 2010s the ret*d stigma was prevalent. A combination of the nuerodiversity movement and helicopter/snowplow parenting led to the Autistics have superpowers stereotype which has gained widespread currency.
Autism as a made for profit plague gained a lot of currency in the late 2000’s. Through the efforts of scientists and the neurodiversity movement it went underground but did not go away and has come roaring back with RFK Jr.
As far as the mass shooter stereotype goes that emerged in 2012 with rumors that turned out to be true that the suspect in the Sandy Hook elementary school shooting was Autistic. Since then defense attorneys have widely adopted the “autism defense” in an attempt to lower sentences. The good news is starting at the time of Sandy Hook both the anti neurodiversity movement and neurodiversity movement both have decried the stereotype. The autism defense has largely failed and autistics as mass shooters is not part of public discussions. While this has been a lot better then I feared I have to wonder what unspoken beliefs that autistics are dangerous have had on not obvious policies.
Aspergers was meant to describe Autistics who had no language delays and with average to above average intelligence. When the diagnosis was subsumed into the Autism Spectrum diagnosis it moved from a medical term to a colloquial one. This means Aspergers means whatever people want it to mean. Today it means socially awkward genius. The Aspie supremacists got what they wanted.
As far as people who identify as Aspie are Nazi’s stereotype I agree that is mostly a within the Autistic community controversy. Up until 2018 it was believed Hans Asperger was subtly working within the system to help Autistics. That year a journal article and a book by two historians with expertise in that time and place concluded that Hans Asperger while not a full fledged Nazi was complicit in the Nazi euthanasia program against disabled children. He did what he did to keep his career. For how Wrong Planet members reacted to the historians work in 2018 see this thread.
We have gone from the non human ret*d stigmas to a whole bunch of often conflicting harmful stereotypes including ret*d. While we are in an overall better place then 20 years ago the current situation is a hot mess.
_________________
“Self Acceptance is a process not a performance”
“You are autistic enough. And you always have been”
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
Last edited by ASPartOfMe on 31 Dec 2025, 11:19 am, edited 5 times in total.
As an Aspie I don't call myself a genius. I'm just a socially awkward bag of nerves.
When I first watched Rain Man I actually considered him lower-functioning, or at least moderate-functioning. But not high-functioning.
High-functioning is based more on how a person's social and self-care skills have developed, not so much intelligence. Usually high-functioning autistics (formally known as Asperger's syndrome) are more or less quirky individuals. This is not to say we don't have their own challenges, because we do. But we're just more complex and harder to diagnose.
I don't appreciate being called a "superior". But when you had no speech delays in childhood and you are more socially skilled than the autism criteria typically describes us as, it's just difficult to understand how you are positioned on the spectrum with the majority of autistic people who sit around the moderate-functioning area.
_________________
My diagnosis story and why it was a traumatic experience for me:
viewtopic.php?f=35&t=416910&start=1056#p9695026
Please notify me if there's a spelling mistake or an obvious autocorrect error in my posts.
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 68
Gender: Male
Posts: 39,637
Location: Long Island, New York
When I first watched Rain Man I actually considered him lower-functioning, or at least moderate-functioning. But not high-functioning.
High-functioning is based more on how a person's social and self-care skills have developed, not so much intelligence. Usually high-functioning autistics (formally known as Asperger's syndrome) are more or less quirky individuals. This is not to say we don't have their own challenges, because we do. But we're just more complex and harder to diagnose.
I don't appreciate being called a "superior". But when you had no speech delays in childhood and you are more socially skilled than the autism criteria typically describes us as, it's just difficult to understand how you are positioned on the spectrum with the majority of autistic people who sit around the moderate-functioning area.
When the film was released in 1988 his presentation was thought of as high functioning. When a psychiatrist was explaining autism to the Tom Cruise character he used the words “very high functioning”.
_________________
“Self Acceptance is a process not a performance”
“You are autistic enough. And you always have been”
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 68
Gender: Male
Posts: 39,637
Location: Long Island, New York
1. Asperger’s was not subsumed into ASD because of Hans Asperger’s Nazi complicity which was little known at the time. It was subsumed because the Asperger’s was thought to be a form of autism and the Aspergers diagnosis was blamed for alleged over-diagnosis of ASD’s.
2. The Aspergers Disorder diagnosis was not renamed but subsumed into the Autism Spectrum Disorder diagnosis. Anybody with a prior valid Aspergers Disorder diagnosis now automatically had an Autism Spectrum Disorder diagnosis.
_________________
“Self Acceptance is a process not a performance”
“You are autistic enough. And you always have been”
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
It's been a while since the last time I saw it, but in an online transcript of the film I found the following quote: "He's very high-functioning. Most autistics can't speak or communicate."
Canadian Freedom Lover
Veteran
Joined: 16 Dec 2022
Age: 29
Gender: Male
Posts: 634
Location: Vancouver Canada
It's been a while since the last time I saw it, but in an online transcript of the film I found the following quote: "He's very high-functioning. Most autistics can't speak or communicate."
Yes, high functioning by 1980's standards.
Look up Mosaic Down Syndrome. It's kind of the Asperger's of Down Syndrome.
Yeah, I think I've met someone with that, at this youth centre I used to go to for teenagers with disabilities. One girl had Downs syndrome, but seemed quite mature and articulate. She loved reading and she always spoke in a very polite manner. She didn't seem to have any of the learning difficulties associated with Downs syndrome.
It reminds me, intellectual difficulties is also a spectrum. You get people with a "severe" learning disability who can't function by themselves, and then you get people with only "mild" learning difficulties. My sister is one with mild learning difficulties. She's capable of working full-time and bringing up a child, even though she can be naive and easily led. She had speech delays when she was a child (unlike me), and required speech therapy, but once she caught up she was articulate, like me.
I'd rather be her than me though, because she's an underthinker, while I'm an overthinker, and I hate being an overthinker.
_________________
My diagnosis story and why it was a traumatic experience for me:
viewtopic.php?f=35&t=416910&start=1056#p9695026
Please notify me if there's a spelling mistake or an obvious autocorrect error in my posts.
1. Asperger’s was not subsumed into ASD because of Hans Asperger’s Nazi complicity which was little known at the time. It was subsumed because the Asperger’s was thought to be a form of autism and the Aspergers diagnosis was blamed for alleged over-diagnosis of ASD’s.
2. The Aspergers Disorder diagnosis was not renamed but subsumed into the Autism Spectrum Disorder diagnosis. Anybody with a prior valid Aspergers Disorder diagnosis now automatically had an Autism Spectrum Disorder diagnosis.
Unless I misunderstand you, you seem to be saying in 1. that the AS diagnosis was blamed for over-diagnosis, which by my logical analysis means that many people who were diagnosed with AS in the day would be assessed as normal in today's world. Although I just made my point, I'd like to add that a lot of the celebrities who are nowadays "known" to be autistic could well be examples of that.
I was diagnosed about 20 years ago. I can't actually remember which term was used, beyond 'severe functional impairment'. I no longer have the bit of paper. But that was at the end of a reasonably stringent (though flawed) diagnostic process.
The diagnostic process these days seems significantly less stringent. In fact the 'walk in, walk out' that I have sometimes seen described seems to me... not a diagnostic process.
Perhaps paradoxically, in my opinion this has contributed to social stigma. Autism functions in some spaces more like a cultural label than a medical diagnosis, and it's been drawn into issues of personal politics and self-expression, and it can feel weirdly fraught or like weirdly contested ground.
I think the arbitrariness of the label has created space for confusion and distorted representation. As other people have mentioned, 'being on the spectrum' is sometimes understood these days as simply a failure to cope in modern society, or poor social development (which is rife due to various societal factors), or social awkwardness or anxiety.
I don't think those things should be stigmatised either, but the extent to which they've been conflated with autism as a diagnosis has been profoundly unhelpful, in my opinion.
This is a site where must members are supposed to be autistic. Still people are all over the place here in this thread with their different personal theories about Asperger vs Autism, high and low function etc. How are members of the general public supposed to know what autism is?
_________________
English is not my first language.
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 68
Gender: Male
Posts: 39,637
Location: Long Island, New York
1. Asperger’s was not subsumed into ASD because of Hans Asperger’s Nazi complicity which was little known at the time. It was subsumed because the Asperger’s was thought to be a form of autism and the Aspergers diagnosis was blamed for alleged over-diagnosis of ASD’s.
2. The Aspergers Disorder diagnosis was not renamed but subsumed into the Autism Spectrum Disorder diagnosis. Anybody with a prior valid Aspergers Disorder diagnosis now automatically had an Autism Spectrum Disorder diagnosis.
Unless I misunderstand you, you seem to be saying in 1. that the AS diagnosis was blamed for over-diagnosis, which by my logical analysis means that many people who were diagnosed with AS in the day would be assessed as normal in today's world. Although I just made my point, I'd like to add that a lot of the celebrities who are nowadays "known" to be autistic could well be examples of that.
Why Claim Asperger's is Overdiagnosed? - Psychology Today November 21, 2012
Proponents of the over-diagnosis argument don’t provide supporting data. That’s because there aren’t any. On the contrary, Francesca Happe, a member of the relevant DSM-5 workgroup, referred in a 2011 editorial to studies indicating “clinicians show good agreement about who falls within versus outside the autistic spectrum.”
Although the clinical understanding of autism influences casual conversation, casual conversation should not influence the clinical understanding of autism. And yet it so frequently does. The overdiagnosis argument, in which Asperger syndrome is accused of a major role in the alleged over-medicalization of the American population, is a prime example. It is particularly unnerving when it comes from DSM-5 professionals, since it suggests pre-emptive justification for “undiagnosing” a significant cadre of autistic people.
In February, science writer Emily Willingham delivered an intricate critique of the flabbery jabbery coming from some of these autism “experts”: anecdote cited as evidence, opinion as certainty. A less measured commentator accused the DSM team of pseudoscientific delusional syndrome. Some of the overdiagnosis comments sampled below have achieved notoriety in the autism community, but still, the Asperger’s Alive! archive would be remiss not to include them. And its worth remembering that social communciation and Theory of Mind present challenges for some autism researchers.
Susan Swedo, chair of the DSM-5 neurodevelopmental disorders workgroup, said in May that many people who identify with Asperger’s Syndrome “don't actually have Asperger's disorder, much less an autism spectrum disorder.”
David Kupfer, chair of the task force charged with the DSM revisions, blurted to the New York Times in January: “We have to make sure not everybody who is a little odd gets a diagnosis of autism or Asperger Disorder. It involves a use of treatment resources. It becomes a cost issue.” (This was startling to those who’d missed the memo that declared costs and treatment resources the responsibility of the APA. Which was everyone.)
Catherine Lord, the director of the Institute for Brain Development at New York-Presbyterian Hospital, and another member of the workgroup, told Scientific American in January, “If the DSM-IV criteria are taken too literally, anybody in the world could qualify for Asperger's or PDD-NOS... We need to make sure the criteria are not pulling in kids who do not have these disorders.”
Paul Steinberg, a D.C. psychiatrist, declared in a New York Times op-ed in January that “with the loosening of the diagnosis of Asperger, children and adults who are shy and timid, who have quirky interests like train schedules and baseball statistics, and who have trouble relating to their peers” are erroneously and harmfully labeled autistic. He blamed a 1992 Department of Education directive that “called for enhanced services" for children diagnosed with autism spectrum disorders: “The diagnosis of Asperger syndrome went through the roof."
Dr. Bryna Siegel, a developmental psychologist at the University of California, San Francisco, told a Daily Beast reporter in February that she “undiagnoses” nine of out ten students with so-called Asperger’s. Siegel was a member of the panel responsible for the inclusion of Asperger’s in the DSM-IV, which the reporter cited to me in a phone call as evidence of Seigel's objectivity: implicitly, Seigel is critiquing her own work. But that same journalist made no mention in the piece of Dr. Seigel’s history as an expert witness for school districts fending off families’ claims for those “enhanced services,” and the obvious conflict of interest (as well as the selection bias in her client pool) this represents. In October, she told New York magazine that she undiagnoses six out of ten. That's quite a shift in eight months. Hope it was evidence-based.
_________________
“Self Acceptance is a process not a performance”
“You are autistic enough. And you always have been”
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
Last edited by ASPartOfMe on 01 Jan 2026, 12:09 pm, edited 1 time in total.
That's one of the things I have issues with. Those of us who have what previously would be called Aspergers are being lumped in with severe autism which I still consider inappropriate, and nowadays the definition seems to have widened even more so that even people with very mild symptoms (i.e. the sort you hear about on the news/in magazines/giving talks) are also lumped in.
I can't remember where this quote came from (might have been a Twitter post, or someone's website), but hopefully it will give you an idea of what I mean by modern-day stigma:
"Autistic adults may be nonspeaking but they are not “non-verbal”.
Excited whoops, contented sighs, spontaneous laughter and echolalic emulation are just some of the
rich language my neurokin draw on, even when they don’t use mouth words."
And there's also this one from the blurb of a book:
"Learn to: 1- Eliminate harmful stereotypes from your thinking..."
Perfectly reasonable, but then the description of the author says:
"She always drives the speed limit and loves reading the dictionary in her spare time."
And please don't get me started on the private clinic who renamed "autism diagnosis" to "collaborative autistic identification". The book they wrote on it also has a "statement of privilege".
A while back I listened to a BBC podcast about "auti-gender". ![]()
That's one of the things I have issues with. Those of us who have what previously would be called Aspergers are being lumped in with severe autism which I still consider inappropriate, and nowadays the definition seems to have widened even more so that even people with very mild symptoms (i.e. the sort you hear about on the news/in magazines/giving talks) are also lumped in.
People with things like depression or bipolar are being diagnosed with autism these days too. My brother is one example. There's no way he has autism, but he definitely suffers with a depressive disorder, which came after he left school and didn't really affect him as a child. Okay he was a shy boy, but he still had a decent group of friends, mostly with the popular kids who would often come by our house to hang out with him. He was widely accepted even though he was not into sports. I don't think a boy with autism who is shy and not into sports or have any other focused interest that he shared with his group, would be naturally accepted by the most popular kids in his grade all through school life. He just seemed so NT as a child.
But then again, with autism, anything is possible these days. The most popular girl or boy you remember at school, the sporty, popular, "alpha-NT" kid that every class had, could now be diagnosed with autism and was just an "exceptional masker" all their lives.
Just what is autism these days?
No wonder people say "everyone is a little autistic" lol. I'm beginning to think that's true. What if everyone is autistic but are all just extraordinary maskers making their way through life whilst struggling immensely inside?
_________________
My diagnosis story and why it was a traumatic experience for me:
viewtopic.php?f=35&t=416910&start=1056#p9695026
Please notify me if there's a spelling mistake or an obvious autocorrect error in my posts.
