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StuartN
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26 Nov 2012, 6:40 am

What are the top 10 most important issues for people with Asperger syndrome or autism? Including things that are not currently important, but were important at some time in the past?



whirlingmind
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26 Nov 2012, 6:56 am

in no particular order...

knowing what's coming next/routines
protection from sensory overload
alleviation of anxiety
quiet space to de-stress alone/zone out
people understanding monologuing as a necessary behaviour
access to interests to pursue it as special interest
easy access to services for people with ASD
public and services awareness and understanding of ASD needs (training?)
access to social skills programmes for people with ASD
People with ASD in key positions and sufficient numbers in services

I'm sure there are more!


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lonelyguy
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26 Nov 2012, 7:17 am

I think it's
important to feel understood by the people that are there to help you
important that doctors are trained to deal with the condition in the right way
important to feel happy and secure in your own home
important to get the support that you need in order to control your life
important for people to understand we are human..and deserve respect



important to get help trying to get and stay in a job
important that you are not left isolated and alone
important that friends and family understand you have a condition that effects the way we behave
important to be able to live a happy and productive life
important to get all the benifits you deserve as a person that struggles to find and keep a job

It could go on and on and there would not be enough space in the page..there is so many important things that people with AS deal with every day.and they are all different...but the most important thing of all is we deserve to have a decent and happy life and to be respected by others.



Kairi96
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26 Nov 2012, 8:15 am

In my experience, these ones (not in a particular order):

-Not being able to distinguish between the informations you schould say to people and the ones you shouldn't say to people;
-Interrupting other people while they're speaking (even the teachers) to say something that is considered pointless in that moment;
-Lacking the ability to understand body language/facial expressions;
-Not being able to focus on something you're not interested in;
-Not being able to ask help from others when you need it;
-Looking almost always feeling-less;
-Having oversensority issues;
-Having picky eating habits;
-Lacking the ability of understanding your own emotions;
-Overreacting in some situations.


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Roman
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26 Nov 2012, 8:50 am

-- Complete isolation. I only know a couple of people and that is it. During typical day dont talk at all other than order food.
-- Inability to approach people for conversation unless there is a concrete purpose I can justify it with, such as asking for help and/or discussion of some very involved subject. Inability to do the small talk.
-- Not being able to remember peoples names or faces
-- Monotone voice
-- Overanalyzing what is going on in peoples heads that makes them say/do what they do. Dwelling into details that others consider unimportant
-- Forgetting to brush my teeth and take showers
-- Difficulty controlling anger. Obsessions about various ways other people have wronged me in the past
-- Inability to figure out exactly where someones patience ends. For example, if its okay to ask for help 2 or 3 times I will end up asking for help 20 or 30 times, while I would have been able to self-help have I known their patience would run out.
-- Obsessions with specific set of topics
-- Inability to react to unexpected social situation fast enough, and then opportunity is missed once I figured out how to react



Mindslave
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26 Nov 2012, 9:16 am

Context and timing. Also, knowing how to use emotion in a controlled, socially appropriate way.



Trencher93
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26 Nov 2012, 10:38 am

1. Executive function deficit
2.
3.
4.
5.
6.
7.
8.
9.
10.



StuartN
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28 Nov 2012, 12:28 pm

Thanks for the replies.

It is interesting that diagnosis, therapy, treatment, etc are not mentioned. Most things that are mentioned relate to other people, even (I suppose) picky eating habits - which would not matter in the absence of other people.



whirlingmind
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28 Nov 2012, 12:37 pm

Ah, in that case then your post was ambiguous (a dangerous thing in the Aspie world!). Perhaps it should have been worded something like this:

"What are the ten most important needs/requirements to people on the spectrum?"

I'm afraid we took your question too literally! :lol:


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StuartN
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10 Dec 2012, 4:40 pm

whirlingmind wrote:
Ah, in that case then your post was ambiguous (a dangerous thing in the Aspie world!). Perhaps it should have been worded something like this:

"What are the ten most important needs/requirements to people on the spectrum?"

I'm afraid we took your question too literally! :lol:


People are free to interpret as issues / needs / requirements. I am interested to know what other people think is important and is specific to being on the autistic spectrum.