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Aardvark
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03 Jan 2007, 10:23 am

Has anyone heard of or watched the documentary Autism Is A world? Sue Rubin is functionally non-verbal and uses facilitated communication. She attends university and writes extensively.
her website is: www.sue-rubin.org
Ive never heard it mentioned in any of the articles (or maybe I just missed them), but what is the probability that she has something else going on apart from autism, or that is causing the autistic symptoms?
She has a very short stature, short limbs and if I recall large hands that are out of proportion with the rest of her body, which would indicate some form of dwarfism. She also has what I would call a certain distinctive facial appearance, i.e. that would alert people to the possibility that she has some sort of developmental condition (her photo is on the website, but it's even more apparent if you watch the documentary which i think is up on youtube).



logitechdog
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03 Jan 2007, 10:37 am

http://www.stateart.com/productions/dis ... n/tips.asp

Nice how you dont show the link lol but then its fast for me to find the stuff video clips on the left...

Missed tones over here of autism stuff on tv....

http://suedweb.syr.edu/thefci/Video_and ... tions.html



Last edited by logitechdog on 03 Jan 2007, 11:01 am, edited 1 time in total.

SteveK
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03 Jan 2007, 10:53 am

Aardvark wrote:
Has anyone heard of or watched the documentary Autism Is A world? Sue Rubin is functionally non-verbal and uses facilitated communication. She attends university and writes extensively.
her website is: www.sue-rubin.org
Ive never heard it mentioned in any of the articles (or maybe I just missed them), but what is the probability that she has something else going on apart from autism, or that is causing the autistic symptoms?
She has a very short stature, short limbs and if I recall large hands that are out of proportion with the rest of her body, which would indicate some form of dwarfism. She also has what I would call a certain distinctive facial appearance, i.e. that would alert people to the possibility that she has some sort of developmental condition (her photo is on the website, but it's even more apparent if you watch the documentary which i think is up on youtube).


Dwarfism is not merely a lack of growth, it is a difference in growth that includes short stature. THAT is why she has "large hands", and the facial appearance. Different types of dwarfism have different characteristics.

Judging from all the things here, it is hard to say if she is even autistic. Frankly, I don't trust "resumes" like that. She spent all her life giving lectures, etc?

Steve



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03 Jan 2007, 11:13 am

Until she was 13, most believed Sue to be ret*d. Repeated tests put her IQ at 29—“the level of a 2 year old.” Rita says that her hopes for Sue, then, were modest—to keep her out of an institution, to educate her in special classes, to someday help her get a job “cleaning tables off or something like that that ret*d people do.” But then, just before she was 13, Sue’s psychologist, Jackie, introduced her to “facilitated communication.” Jackie and Rita worked with Sue tirelessly and, slowly; the person trapped inside her silent, strange behavior began to communicate and to emerge into the world an aware, intelligent young woman. When Sue was retested months later, the results were stunning—a 133 IQ. Sue entered regular high school classes.

Sue has become a tireless disability rights advocate. We watch her write a speech for a conference on autism. During the long process of writing, Sue’s support staffer Lisanne keeps her focused. Here, Sue demonstrates her wit, intelligence, and compassion. She starts by telling her audience, “If you think living with autism is difficult, try getting into college” and ends, in a tender moment, with a very personal offer to help others with autism who hope to follow in her footsteps.

Sue shares her final thoughts as the film concludes. Her words are simple: “The last thing I want to clarify is that no matter how much social interaction one has, one will never be free of autism. The tendencies to be and act in certain ways may subside but I will always be autistic.”



DoctorJest
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03 Jan 2007, 1:39 pm

Aardvark wrote:
She has a very short stature, short limbs and if I recall large hands that are out of proportion with the rest of her body, which would indicate some form of dwarfism. She also has what I would call a certain distinctive facial appearance, i.e. that would alert people to the possibility that she has some sort of developmental condition (her photo is on the website, but it's even more apparent if you watch the documentary which i think is up on youtube).


Could be Rett Syndrome. It causes physical mutations like those you describe, and is a Pervasive Development Disorder, like Autism and Aspergers.



Mnemosyne
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03 Jan 2007, 2:30 pm

DoctorJest wrote:
Aardvark wrote:
She has a very short stature, short limbs and if I recall large hands that are out of proportion with the rest of her body, which would indicate some form of dwarfism. She also has what I would call a certain distinctive facial appearance, i.e. that would alert people to the possibility that she has some sort of developmental condition (her photo is on the website, but it's even more apparent if you watch the documentary which i think is up on youtube).


Could be Rett Syndrome. It causes physical mutations like those you describe, and is a Pervasive Development Disorder, like Autism and Aspergers.


She doesn't have Rett's (to start with, she doesn't have seizures), she's got Autistic Disorder and Noonan's Syndrome, which is what causes the physical aspect.

I uploaded the video to YouTube a while ago. Here's the links:
Part 1: http://www.youtube.com/watch?v=HphYgLklJX4
Part 2: http://www.youtube.com/watch?v=oCFr5gIb55U
Part 3: http://www.youtube.com/watch?v=uyXpD4zoy6Y
Part 4: http://www.youtube.com/watch?v=NIuVoTratPk



CockneyRebel
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03 Jan 2007, 3:05 pm

She certianley is an interesting young lady.



anbuend
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03 Jan 2007, 11:09 pm

DoctorJest wrote:
Could be Rett Syndrome. It causes physical mutations like those you describe, and is a Pervasive Development Disorder, like Autism and Aspergers.


She has said she has Noonan's syndrome, which can also go with various forms of autism. They're not mutually exclusive. Believe it or not, probably most autistics are not some vision of "pure autism".


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04 Jan 2007, 10:03 am

anbuend wrote:
DoctorJest wrote:
Could be Rett Syndrome. It causes physical mutations like those you describe, and is a Pervasive Development Disorder, like Autism and Aspergers.


She has said she has Noonan's syndrome, which can also go with various forms of autism. They're not mutually exclusive. Believe it or not, probably most autistics are not some vision of "pure autism".


Yeah, that is all too obvious at this point, and part of what is giving autism such a bad reputation.

Steve



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04 Jan 2007, 10:11 am

I don't think Noonan's syndrome or anything like it constitutes a bad reputation, or that "pure" autism is better than "impure" autism. I've gotten flack for the way I look from other autistic people, because I look (to some) as if I could have something else going on in addition to autism, but guess what, there's nothing worse about that than there is about people whose only diagnosis is autism.


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SteveK
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04 Jan 2007, 10:33 am

Anbuend,

I didn't mean to insult anyone. I don't even know what you look like. For all intents an purposes, I don't care. I ALSO have tried to be more accepting than you could believe, so I won't try to convince you. I just made a blanket statement that is generally true. As for noonan syndrome giving autism a bad reputation, only a VERY small number of autistics could have it. So I doubt it would have much of an impact. If most had it, people would tie them together, etc...

As for pure autism, does anyone REALLY know what that is? I mean nobody can have all the symptoms(You can't be more AND less sensitive to pain everywhere, for example), so who is to say what PURE autism is? Pshyciatrists just found some very common traits, lumped them together, and gave them a name. They realize the traits aren't THAT consistant, so they are almost like mix/match.

Again, I certainly didn't mean to insult anyone. And beauty certainly IS in the eye of the beholder.

Steve



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11 Nov 2010, 3:16 pm

logitechdog wrote:
Until she was 13, most believed Sue to be ret*d. Repeated tests put her IQ at 29—“the level of a 2 year old.” Rita says that her hopes for Sue, then, were modest—to keep her out of an institution, to educate her in special classes, to someday help her get a job “cleaning tables off or something like that that ret*d people do.” But then, just before she was 13, Sue’s psychologist, Jackie, introduced her to “facilitated communication.” Jackie and Rita worked with Sue tirelessly and, slowly; the person trapped inside her silent, strange behavior began to communicate and to emerge into the world an aware, intelligent young woman. When Sue was retested months later, the results were stunning—a 133 IQ. Sue entered regular high school classes.

Sue has become a tireless disability rights advocate. We watch her write a speech for a conference on autism. During the long process of writing, Sue’s support staffer Lisanne keeps her focused. Here, Sue demonstrates her wit, intelligence, and compassion. She starts by telling her audience, “If you think living with autism is difficult, try getting into college” and ends, in a tender moment, with a very personal offer to help others with autism who hope to follow in her footsteps.

Sue shares her final thoughts as the film concludes. Her words are simple: “The last thing I want to clarify is that no matter how much social interaction one has, one will never be free of autism. The tendencies to be and act in certain ways may subside but I will always be autistic.”


That sounds like an extreme version of me. Currently, I'm at an IQ of 97 (which my mom says is inaccurate), but I'm getting re-tested, and I think my IQ has changed since then. (The testing coordinator said that I did well on seeing how things were alike, and I got all but one on the vocabulary portion. The blocks...well, that was another story.)