faith wrote:
wow i am very glad some other ppl have this. i have had trich for 6 yrs one time to the point where i was completely bald and had to where a wig which SUCKED! right now i have hair down to my neck (right to the top of my neck) but there is a big bald spot in the back which isnt good so i have to where hats all the time. does anyone else have trichotillomana to this degree? id anyone does how is it going? have u ever stopped pulling? how did u stop? i wanna know!!

I've heard that changing your diet can help, and that eliminating refined wheat products, artifical sugars and yeast products will reduce the urge to pull. Right now I'm off the diet wagon, but the few times I tried it, it seemed to help. But that also might have coincided with times of low stress/been a placebo effect. I do wonder if it has any link with Candidia, though, like we're more super sensitive to it than other people coupled with a propensity towards high anxiety. But there is no proof of that, but it might be worth a try.
I've had trich this bad since I was 11 years old (I'm 26 now), and in 5th and 6th grade it was so bad I didn't have eyebrows and had to wear a wig. Its never been as bad as it was then, when I was 80% bald, but I always have two spots (one on the very tip top of my head and one on the right side behind my ear, under most of my hair) that I pull from and it grows in size from completely un-noticable some years to big, impossible to hide holes other years. Right now its the worst it has been since I was 15, and am going to have to break out the scarves to hide the top of my head. I hate going to the hairdresser, too, and have stopped seeing anyone who pokes at it or makes a big, loud deal about it being there. It took me a long time to realize I don't deserve a hairdresser's abuse for a physical difference, and the power was in my pocketbook to find someone appropriate and compassionate.
Its almost like an itch, almost a burning itch, a physical pain in my hairs that I have to get out, and pulling the "right" hairs out makes it go away (for the moment). I find that these hairs are usually coarse and differently textured and/or have a different type of root from others, and when I pull them out I feel great relief. I also need to bite the end of the hair when it has this kind of root. I do not know what is up with that, and if anyone else ever told me they did it, I'd think its totally gross, but I find I need to do it. Its something I never tell/talk about, and if people have noticed me doing it, they never say anything to me about it.
I also have really curly hair and it also seems to be intensified when I let my hair be curly or put a mouse or gel product that makes it easier to grab onto, so I also use A LOT of conditioner and a straightener, which also seems to help the urge sometimes.
I know there isn't a lot of information about it out there (it took me forever to be diagnosed in the southern U.S.) and I'd love to hear more about people's experiences with this/how it feels to them/management techniques. I hope this helps someone struggling with the same.