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ASPartOfMe
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29 Feb 2020, 4:29 am

Lauren Malina-Goldsmith is an ambassador for the National Autistic Society.
"I'm Autistic. This Is What It's Like For Me Using London Transport"

Quote:
When you look at me, you would not have a clue that I am autistic.

I am 21 and a university student. For the most part, I experience pretty much the same things as anyone else: lectures, hobbies and socialising.

Until you take a look inside my mind. I think about how I affect the world around me way more than the average person, even on things as simple as public transport. I am a Londoner, so I'm lucky I have had the chance to adapt to the city's underground and buses, but they still present challenges for me every time I use them.

I do not live in walking distance of a tube station, so my journey always begins with a bus. I quietly tap my Oyster and find somewhere on the bottom deck to balance, because I am scared of falling down the stairs while the bus is in motion.

Things don't stop there: I panic about where to sit or stand in case someone else needs the space, even though technically I can use priority spaces as autism is a disability. But even if I choose to wear a sunflower lanyard to indicate my hidden disability to people:
Most people are not aware of the sunflower lanyard and what it means.
Should I really have to disclose that I am disabled to a stranger?
Would they care once they knew?

This has not been a massive issue in London; I am able-bodied so I can attempt to balance while holding onto a pole. But one time I was not so lucky. I had my headphones on as I was stressed and had zoned out from the outside world while sat on an ordinary seat on a tram, when a woman screamed at me for not offering up my seat. I completely would have if I had noticed, but I was not given the chance. Instead, I was yelled at before and after I gave up my seat. Lucky for me, I was a stop away from my destination and I had the coping mechanisms to walk to where I needed to be safely. After that, I proceeded to have a full-scale meltdown that then wiped out my energy for the rest of the day. You may think that this is dramatised, but I have been known to fall down on buses and that's embarrassing for anyone before you take into account my diagnoses of autism and anxiety

That is all before I have set foot in a tube station.

Normally ticket barriers are fine, however once on National Rail I got stuck in a barrier as I did not understand how group tickets work. I was not in a lot of pain but the shock stayed with me for some time.

However, National Rail staff are very helpful. Last summer, I was travelling with two friends, one of whom is also autistic and has a condition called discoid meniscus, which can make walking and balancing difficult. We wanted to sit together, but our tickets were not reserved. We could not find anywhere, and my friend was afraid of falling over. We then spoke to Paul, a member of Great Western Rail staff, who said there were plenty of seats in another carriage and he took us to there, which was lovely.

Anyway, back onto my underground journey. Escalators, while helpful for keeping London moving, are my biggest challenge. As I go to get on one, I hesitate. The fear of falling down or even up one hits me. Four or five steps pass, and I finally get on, infuriating the people behind me.

This could be avoided with lifts, which are slowly being placed in many tube stations and will make stations that were completely inaccessible before available to anyone with a disability, improving transport options for everyone on the spectrum and more. I am proud that my local station — Mill Hill East — is only a month or two away from opening its lift to the public.

Finally, I make it to the tube platform. I know which way to go now, but not understanding how certain lines work made my trips difficult to start with. Yes, I have even messed up the Jubilee line, a straight line. The doors open and I get on with both speed and hesitation, nervous of the gap between the train and the platform and the doors closing on me simultaneously. I try and find a seat or something to lean on. Rush hour particularly makes me nervous. Being only five feet tall, I cannot always find something to hold onto and I balance for my life. Off I go, to whatever adventure lies ahead of me.

I tend to start on an overground part of the Northern line, which is not so bad, but the moment I go underground it feels like another world. The howling sound you get from being inside a moving tube means I cannot hear a thing and occasionally even leaves me in pain. This is particularly fun when you are trying to talk to a friend next to you, as if communicating was not hard enough. Add that to the force when the tube starts and stops if you are standing and that can be quite disorientating. Sometimes it is so sharp, I have been only an inch away from falling into someone.

As for the Overground? It is not something I really come into contact with and also something that I just do not really know how to use. If I needed to really use it, I would try but would probably ask somebody at a station, as TfL staff can be very helpful. With time I hope to become confident with the Overground too.

When I get to my stop, I follow the crowd to find my way out and then get to wherever I need to be. I love London, it is my home and I am proud to live in a city that in time will become accessible to everybody. London will really be open.


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“Self Acceptance is a process not a performance”
“You are autistic enough. And you always have been”

Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.


jimmy m
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29 Feb 2020, 10:42 am

Many times when autistic sensory overload is discussed, it is focused on the five main senses. These are the five senses traditionally ascribed to humans, which are vision, hearing, taste, smell and touch. But we possess more than just five. The sixth sense is called proprioception, the perception of body position, which is important for balance and agility in movement. The seventh sense is vestibular, which is the perception of our body in relation to gravitational force and acceleration.

Proprioception is the sense of the relative position of neighboring parts of the body and strength of effort being employed in movement. This sense is very important as it lets us know exactly where our body parts are, how we are positioned in space and to plan our movements. This sense encompasses fine and gross motor skills. Examples of our proprioception in practice include being able to clap our hands together with our eyes closed, write with a pencil and apply with correct pressure, and navigate through a narrow space.

The vestibular system explains the perception of our body in relation to gravity, movement and balance. The vestibular system measures acceleration, g-force, body movements and head position. The vestibular system includes the parts of the inner ear and brain that help control balance and eye movements. Examples of the vestibular system in practice include knowing that you are moving when you are in an elevator, knowing whether you are lying down or sitting up, and being able to walk along a balance beam.

I personally do not have problems with these two senses - proprioception and vestibular. I have a very fine sense of balance. So I suspect this is due to learned experiences. When I was very young I climbed up trees and sat on limbs. I loved the monkey bars at school. Later in high school I was in gymnastics and wrestling. I suspect these experiences helped resolve any issues in these last two senses.


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Rahere
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22 Nov 2025, 9:44 pm

To augment your reply, classic psychiatry recognises 4 physiological subclasses of perception and 1 neurological.
The neurological one was a fascination of Abraham Maslow's, at the pinnacle of his Pyramid of Aspiration, which he termed the Transpersonal. This is, effectively, perception of the intangible, with a major contiguous field running from the empathic through third sector medicine into the numinous.
Moving into the physiological, the innermost is the connection between the mid-brain gyri and the hypothalamus, giving us feedback on what we are thinking. This is termed neuroception.
Going outwards slightly, we add the polyvagal and nervous system, giving us awareness of how we feel corporeally. This is interoception.
We now come to the classic 5 senses, in proprioception, awareness of our immediate surroundings.
Finally we have exteroception, an understanding f the wider world around us.

The reason I've drawn attention to what we might as well call transception is because it's not tied to physiological immediacy. I'm hyper-perceptive, dealing with precision with matters in the future. The empathic is very much our domain.



Rahere
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22 Nov 2025, 10:03 pm

Having twice been prosecuted for meltdowns caused by the failure of staff at my local underground station to go the extra inch in making allowance for stress caused in the first instance by serious service disruption, and in the second by their failure to control the local secondary school pupils, I now find it too dangerous to frequent the area.

Given TFL actually engaged a psychiatrist to disprove CPTSD, I'm forced to ask whether the Mayor foe London is actually implementing the Autism Act 2009 on the ground. Having been out of the country when the Act was passed, I was not aware of the provision, and wonder if administrative measures should have been implemented to cut some slack.