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cyberdad
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07 Jan 2021, 6:28 pm

I'm not sure if this is the correct place to post this but last year we took our then 14 yr old daughter off SSRIs so she has been drug free for about a year.

Very recently she's started squinting so we took her for an eye test and she's been diagnosed with optic neuropathy with ocular dominance of her right eye over her left.

No cause has been suggested but a cursory review of literature suggest giving children SSRIs in childhood can increase the risk of ocular neuropathy 300 fold.

I am furious our paediatrician never warned us of this risk when prescribing SSRIs to a 6 yr old. At the very least we could have conducted annual eye tests (which BTW nobody told us was necessary including her GP).

I am just wondering if anyone else had this experience relating to exposure to SSRIs being linked to eye damage to themselves or their children?



theprisoner
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09 Jan 2021, 5:13 am

Why doesn't this surprise me. Kids, shouldn't be taking drugs, a childs brain is still in development and is not finalized. I believe the scientists recently proved that toxicological brain injury is the main physical causation of ASD. Parents really should research a drug thoroughly before they decide to make a new guinea pig. Doctors rely on you unwavering acquiescence to their authority. You should always be ready to challenge a doctor to explains themselves, being at atleast fairly preppared on the medical issue at hand before even conversing with them.


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cyberdad
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09 Jan 2021, 5:32 am

I don't disagree but it would be nice if the doctors could inform parents of the risks rather than dispensing drugs like they selling lollies.



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09 Jan 2021, 5:54 am

I don't disagree either, doctors are state sanctioned peddlers of synthetic chemical drugs that are not as safe as they'd have you believe. The fact of the matter is the world is a dangerous place, its not Disney land. our air, sea, lands is riddled with chemical pollutants, a side effect of big pharma and other industries. Maybe I'm paranoid, or maybe I'm being realistic skeptical, we just have to call it as we see it, and hope for the best.


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cyberdad
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09 Jan 2021, 6:25 am

theprisoner wrote:
I don't disagree either, doctors are state sanctioned peddlers of synthetic chemical drugs that are not as safe as they'd have you believe. The fact of the matter is the world is a dangerous place, its not Disney land. our air, sea, lands is riddled with chemical pollutants, a side effect of big pharma and other industries. Maybe I'm paranoid, or maybe I'm being realistic skeptical, we just have to call it as we see it, and hope for the best.


You aren't wrong. My daughter's paediatrician reminded me of Dr Nick Riviera from the Simpsons.



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09 Jan 2021, 7:08 am

I’m right-eye dominant, but I don’t squint. I never was prescribed anything—except Ritalin when I was 13.

How does your daughter’s ocular neuropathy affect her everyday life? Is the squinting quite evident? Has she experienced loss of vision and of seeing colors? How is she in general?

I’m not really into meds myself unless they are absolutely necessary.

I’m sorry your daughter has had permanent side effects from medication.



cyberdad
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09 Jan 2021, 7:36 pm

She was on SSRIs and Ritalin from age 8 - 14. I've posted info on the parent forum on how she was medicated to cope with the stress of mainstream school.

She's been drug free for 12 months now. The squinting started from last year. It means when she closes her right her eye she cant read using the left and she says everything looks like a blur. Her teacher noticed the squinting which is what prompted us to get her eyes tested. When she had her last eye test at 6 she had 20/20 vision in both eyes. The optician thinks she is is overcompensating with the right eye.

My guess is her medical doctor and paediatrician never kept up with the medical literature on risk factors of giving drugs to children. With SSRIs there are clear instructions not to prescribe to children under 12 yet we were assured the dosage was never going to a problem.

I'm hoping the eye specialist we made an appointment will be able to give us advice on how to retrain the left eye



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09 Jan 2021, 7:58 pm

I am not sure, however, i wonder with regards to ASD causes.

There is a lot of speculation as to the cause, although i note that clinical psychologists during the diagnosis process always need to know as to whether the person being evaluated was born prematurely, had suffered problems at birth and whether the person being diagnosed suffered any form of head injury or trauma during the developmental years.

I believe that this is because that brain damage for various reasons is perhaps considered one of the causes as to why peoples brains end up developing abnormally.

I speculated that Brain damage caused by problems during the pregnancy, problems during the birth and problems during early development, especially if unilaterally present could cause unilateral problems with eyesight.

I also speculate that the anxiety caused by increased stress caused by the abnormally extra number of brain cells in Autistic people's brains (which has been proven by neurologists using fMRI scans), causes an increase in sense information and thus an increase in stress hormones, which if present for long enough will lead to the part of the brain that deals or regulates stress hormones and emotion getting damaged, which in turn tends to cause damage to one side of the brain that deals with stress hormones. Perhaps this causes abnormalities in eye sight as well?

I am not sure, as to whether damage to one side of the brain would then cause damage to one side of the eyesight.
I understand not all things in biology follows simple laws of cause and effect, although some conditions do.

On the bright side, your kid has 20 / 20 eye sight. A lot of kids do not.

I myself have a stigma on one of my eyes. Apparently i also blink a great deal less than normal people do.
I attribute this to growing up doing karate (don't want to get punched or kicked) and 100 cc go kart racing (don't want to crash or let people over take me), so from an early age (starting around 8 years old) I learnt to blink less.

I hope your kid will be fine.



cyberdad
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09 Jan 2021, 8:15 pm

madbutnotmad wrote:

I speculated that Brain damage caused by problems during the pregnancy, problems during the birth and problems during early development, especially if unilaterally present could cause unilateral problems with eyesight.

I also speculate that the anxiety caused by increased stress caused by the abnormally extra number of brain cells in Autistic people's brains (which has been proven by neurologists using fMRI scans), causes an increase in sense information and thus an increase in stress hormones, which if present for long enough will lead to the part of the brain that deals or regulates stress hormones and emotion getting damaged, which in turn tends to cause damage to one side of the brain that deals with stress hormones. Perhaps this causes abnormalities in eye sight as well?


thanks madbutnotmad, what you point out actually makes sense. I am searching for causality and its quite plausible that my daughter's neurology leading to comorbid anxiety might also create conditions that lead to optic neuropathy.

I am hoping the brain's potential for neuroplasticity might help in attempting to retrain her left eye. One technique used with small children is to use a "pirate" eye patch for 2hrs per day which forces the brain to reconnect/re-equilibrate with the lazy eye. I don't know if at 15 my daughter is too old but I guess we will found out.



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10 Jan 2021, 1:36 am

Sorry to hear this, cd.

My daughter's vision is at risk and closely monitored with annual eye tests by an ophthalmologist because of her medication but it's not an SSRI, it's an immunosuppressant. I haven't heard of risk from SSRI but it's unfortunate that you didn't know either, until this happened.

After my first stroke I had significant third nerve palsy, diplopia (double vision), and one eye that was turned. Part of my VRT involved visual rehab with patches like you describe. I had to look through a pinhole in paper lenses to force my eyes to open / work / look straight ahead. It took years but I was successful at regaining my driving licence after four years of not driving, with the use of prism lenses. I had enough neuroplasticity to recover. Now I only experience double vision occasionally.

I hope your daughter will be able to recover without any lasting deficit to her vision.

Good luck.


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cyberdad
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10 Jan 2021, 3:29 am

IsabellaLinton wrote:
Sorry to hear this, cd.

My daughter's vision is at risk and closely monitored with annual eye tests by an ophthalmologist because of her medication but it's not an SSRI, it's an immunosuppressant. I haven't heard of risk from SSRI but it's unfortunate that you didn't know either, until this happened.

After my first stroke I had significant third nerve palsy, diplopia (double vision), and one eye that was turned. Part of my VRT involved visual rehab with patches like you describe. I had to look through a pinhole in paper lenses to force my eyes to open / work / look straight ahead. It took years but I was successful at regaining my driving licence after four years of not driving, with the use of prism lenses. I had enough neuroplasticity to recover. Now I only experience double vision occasionally.

I hope your daughter will be able to recover without any lasting deficit to her vision.

Good luck.


Thanks Isabella,

Its reassuring the patch worked for you (you must have been relieved). I have also read stories about adults who gain some semblance of functional eyesight after using similar techniques to the one you have described.

I also wish you the best for your daughter. With all that's going on in the world it's ultimately our children that remain our biggest concerns.



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10 Jan 2021, 3:35 am

:ninja:

cyberdad wrote:
I'm not sure if this is the correct place to post this but last year we took our then 14 yr old daughter off SSRIs so she has been drug free for about a year.

Very recently she's started squinting so we took her for an eye test and she's been diagnosed with optic neuropathy with ocular dominance of her right eye over her left.

No cause has been suggested but a cursory review of literature suggest giving children SSRIs in childhood can increase the risk of ocular neuropathy 300 fold.

I am furious our paediatrician never warned us of this risk when prescribing SSRIs to a 6 yr old. At the very least we could have conducted annual eye tests (which BTW nobody told us was necessary including her GP).

I am just wondering if anyone else had this experience relating to exposure to SSRIs being linked to eye damage to themselves or their children?


I have heard SSRIs can cause Tardive Dyskinesia and that can at least cause uncontrollable eye twitching among other problems. But yeah SSRI's are not safe and are very much over-prescribed, they can have long term side effects. May want to have her tested for that...Also I even more hate to say this but as far as I know SSRIs have more risks when used on children, even has a black box warning that in use in younger kids can cause more suicidal ideation and bad thoughts. IDK why this is, but yeah seems it was not good judgment for them to prescribe those to a 6 year old. And at the very least they could have gone over with you all the potential risks before recommending it.

Like I don't want to tell bad news, but seems that doctor was not very transparent about the risks of prescribing such a drug to a young child.


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cyberdad
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10 Jan 2021, 5:05 am

Sweetleaf wrote:
I have heard SSRIs can cause Tardive Dyskinesia and that can at least cause uncontrollable eye twitching among other problems. But yeah SSRI's are not safe and are very much over-prescribed, they can have long term side effects. May want to have her tested for that...Also I even more hate to say this but as far as I know SSRIs have more risks when used on children, even has a black box warning that in use in younger kids can cause more suicidal ideation and bad thoughts. IDK why this is, but yeah seems it was not good judgment for them to prescribe those to a 6 year old. And at the very least they could have gone over with you all the potential risks before recommending it.

Like I don't want to tell bad news, but seems that doctor was not very transparent about the risks of prescribing such a drug to a young child.


Yes i knew about the suicide ideation because that's the only warning that's publicly known with SSRIs. Our paediatrician never discussed that either because he claimed the dosage was low.

When you google SSRIs like Prozac or Zoloft suicide ideation is the only warning the pharmas give for kids/teens. My wife and I were vigilant to watch for any signs. Nothing transpired.

BTW the eye twitching was happening a few years ago (good point) so I wonder if we should have picked up the signs. My daughter always claimed her eyes were fine so we never looked into it till this year. You have to do a really specific lit search to see other side effects. You are again right, the paediatrician should have known instead of behaving like a Dr Nick.



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10 Jan 2021, 4:25 pm

cyberdad wrote:
I'm not sure if this is the correct place to post this but last year we took our then 14 yr old daughter off SSRIs so she has been drug free for about a year.

Very recently she's started squinting so we took her for an eye test and she's been diagnosed with optic neuropathy with ocular dominance of her right eye over her left.

No cause has been suggested but a cursory review of literature suggest giving children SSRIs in childhood can increase the risk of ocular neuropathy 300 fold.

I am furious our paediatrician never warned us of this risk when prescribing SSRIs to a 6 yr old. At the very least we could have conducted annual eye tests (which BTW nobody told us was necessary including her GP).

I am just wondering if anyone else had this experience relating to exposure to SSRIs being linked to eye damage to themselves or their children?

Maybe look into sanaga
Disclaimer: when it is fresh to describe it as burning is a gross understatement. The sensation is more like it pierces the energetic essence of what formulates and eye into an eye and sends a wild shockwave throughout the entire body. It is Amazonian plant medicine which native believe helps cleanse the eye and broader energy field of "panema" or bad energy.

You are going to find sparse literature on sananga studied from a Western approach to medicine however. Look into it though. There are plenty of wild and too good to be true claims of it curing blindness and assisting with the clearing of cataracts.

I'd imagine a pediatric ophthalmologist has also gone over the option of patching the dominant eye to allow the weaker eye to strengthen itself. Usually 3-9 hours of daily patching.



cyberdad
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10 Jan 2021, 4:31 pm

adromedanblackhole wrote:
I'd imagine a pediatric ophthalmologist has also gone over the option of patching the dominant eye to allow the weaker eye to strengthen itself. Usually 3-9 hours of daily patching.


Yes we are seeing one on the 20th Jan and I suspect this is one of the last preventative options we have that's non-surgical.