Misogyny seen as behind Trump, Kennedy autism agenda

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As an autistic woman living in the United Kingdom, I find something deeply chilling about the most powerful men in America instructing women on what to do with their bodies and babies. This is even more so when their statements directly contravene all reputable evidence, causing immense confusion and chaos worldwide for highly vulnerable people.

U.S. Health and Human Services Secretary Robert F. Kennedy Jr. said, “President Trump believes that we should be listening to these mothers instead of gaslighting and marginalizing them like prior administrations.”

Freed from what Kennedy called their “silencing and demonizing,” these women are now center stage.

However, they now have a new responsibility, according to the clear instructions of President Donald Trump – even if that means rejecting scientific evidence.

“Don't take Tylenol if you're pregnant. … Fight like hell not to take it," the president of America passionately declared. "There's no downside."

Fevers in pregnancy can harm both mother and child. Migraines and infections can make everyday life unbearable. Shaming women for accessing safe, widely used pain relief is not noble – it’s dangerous.

Leading U.K. autism charities issued a joint statement warning that such claims are "stigmatizing," as well as a "distraction" and "act as an impediment to progress."

The science backs this up. The review cited by Trump’s team found only an association between prenatal Tylenol use and autism, not causation. Its senior author, Andrea Baccarelli, had previously testified in lawsuits against Tylenol manufacturers – which were thrown out because of inaccurate evidence.

As Judge Denise Cote ruled, "The unstructured approach adopted by the plaintiffs’ experts permitted cherry-picking, allowed a results-driven analysis, and obscured the complexities, inconsistencies, and weaknesses in the underlying data."

Large-scale studies tell a different story. As U.K. Health and Social Care Secretary Wes Streeting highlighted, a major Swedish study involving nearly 2.5 million births found that once sibling-control factors were applied, even small associations disappeared. Amid the confusion and public panic, Streeting stressed the truth: that there is currently no reliable evidence linking the use of paracetamol (also known as acetaminophen) during pregnancy to autism in children.

What Kennedy misunderstands about autism
This fits the broader consensus – autism is primarily genetic, with heritability estimates of 70-90%, not the result of a simple environmental exposure, such as taking Tylenol during pregnancy.

Kennedy dismissed the idea that autism’s rise reflects better awareness and screening, contrasting with numerous studies. The "common sense" he cited behind this was the lack of 70-year-old men head-banging or toe-walking in public.

Given that 97% of autistic people aged more than 60 years old are undiagnosed, it’s reasonable to assume that they have simply learned their limits within a neurotypical society, believing themselves to be "broken“.

Neurodiversity is as natural as biodiversity. However, our man-made society can often create distress for people who think differently. As a child, I was labeled "difficult" – running away from home, screaming in public and banging my head against the wall. Spending eight hours a day in classrooms where I was misunderstood and shamed for my differences left me feeling as though I didn’t belong, resulting in severe suicidal ideation that continued into adulthood.

It is only when we can "name it to tame it" that we can understand, support and harness these differences. For me, seeking an autism assessment after a screaming meltdown in an airport at the age of 31 finally unlocked support for my severe anxiety through targeted medication ‒ but most important, understanding.

Today, as an autism and attention-deficit/hyperactivity disorder coach, I’ve helped countless families, adults and children reframe their own approach. And they all have one thing in common, regardless of neurodivergence: blaming themselves.

But instead of shaming themselves, we work on acceptance. That can provide a gateway to understanding our needs and taking personal responsibility, contributing our unique talents and skills to society.

Autism is a spectrum, not a problem to be erased
Trump’s proposed "cure," leucovorin, misunderstands autism. It’s a spectrum – not a problem to be erased. Until now, medication hasn’t typically been prescribed for autism, because this neurodevelopmental condition affects brain structure, as opposed to neurotransmitters that can be targeted, as with ADHD.

Being different is not your fault. Trusting the widely proven medical advice from doctors and global health organizations was not a mistake. If you took Tylenol while pregnant, you did nothing wrong. If your child is autistic, it is not because you are weak – it’s because that’s simply how their brain works.

Being different can be incredibly lonely, but you are not alone. It is highly likely that if you’re a parent of an autistic child, or autistic yourself, that you have been dismissed and invalidated for years by those deemed experts – but this isn’t because of a great conspiracy.

It’s because they were doing the best they could within a broken system. This is what really needs fixing – not you, but you are not powerless. You have a choice, and in a world where trust is becoming a scarce resource, it’s best to start from within. Ultimately, you are the expert in your own life.

JJ Hanley can still remember the pediatrician’s words.

It was the early ’90s, and the mother of two in suburban Chicago had begun to worry that her toddler-age son, Tim, was showing language delays and other behaviors that didn’t align with his older brother’s development. Hanley turned to her son’s doctor, who declared: “There’s nothing wrong with him. What’s wrong with him is you.”

The pediatrician, according to Hanley, said she was overthinking her observations.

I’ll never forget it,” Hanley said. “It was point blank, ‘You’re overbearing and neurotic.’”
Hanley later got a second opinion, which led to her son’s autism diagnosis and related care. He is now 32, lives independently and works as a roofing contractor. He is also a musician who writes, records and performs his own Americana music.

But in those early years, Hanley’s research brought her to the “refrigerator mother” theory, popularized in the 1950s and 1960s, that posited parental coldness — particularly a lack of emotional warmth from a child’s mother — causes autism. It was eventually discredited as more evidence-based research became available, but Hanley saw parallels to the self-doubt she felt at times as a young mother.

“I questioned it. Was it the one glass of wine that I had when I didn’t know I was pregnant? Is that what caused it? Was I in labor with him for too long?” she said. “You feel enough guilt naturally about your children no matter what, and then you have a child whose behaviors you can’t explain.”

For some mothers of autistic children, including those who are now adults, there are echoes of mother-blaming in how President Donald Trump and Health and Human Services Secretary Robert F. Kennedy Jr. are talking about autism, pregnancy and vaccines. Neither official has a medical or science background, but they’ve increasingly used their bully pulpits to target messaging to the parent most often in charge of their children’s health: mothers.

During a September 22 news conference, the president told pregnant mothers to “tough it out” and avoid using acetaminophen, the pain-relief drug sold under the brand name Tylenol, which the administration is trying to link to autism despite research showing no clear causal relationship. Trump also claimed inaccurately that vaccines cause autism, and advocated for changing the childhood vaccine schedule.

While some parents of autistic children support Kennedy’s moves to investigate the condition, the administration’s rhetoric — in April, Kennedy said autism “destroys families” — has added a layer of shame and confusion for other families. Tiffany Hammond, who is autistic and has sons with autism, expressed frustration that federal officials are pointing to acetaminophen instead of finding more ways to support autistic people here and now. Hammond’s older son, in particular, is non-speaking and requires significant support.

“You’re going to have so many parents, moms in particular, thinking, ‘Oh my God, I did this to my kids,’” she said. “How does that help them?”

But the search to better understand autism has also led to generations of mothers experiencing stigma about their parental choices.

In his landmark 1943 paper first identifying autism as a condition, psychiatrist Leo Kanner observed a “coldness” in parents of autistic children. He later attributed autism to a “maternal lack of genuine warmth,” saying that autistic children “were left neatly in refrigerators which did not defrost.” The theory later appeared in a 1948 Time Magazine article about Kanner and autism.

“All but five of the mothers had gone to college; all but one had been active, before or after marriage, as scientists, laboratory technicians, physicians, nurses, librarians, artists. Cold Perfectionists. But there was something wrong with all of them,” the article noted — nodding to mothers who chose to work instead of caring full time for their children

“We know that autism is strongly genetic,” said Alison Singer, president and cofounder of the Autism Science Foundation, which supports funding research into the causes of autism. “We know that autism begins during the prenatal period, and that certain genes may be affected by the prenatal environment.”

Singer has an adult daughter with autism, Jodie, who speaks in short phrases and requires full time care. Singer also has an older brother who was diagnosed with autism in the 1960s. Their mother was called a refrigerator mother.

“She was told that the reason my brother retreated into autism was because she was too cold to properly bond with him,” she said.

Singer’s brother was eventually institutionalized, in part because federal legal protections did not exist at the time to ensure his right to an education. Unable to watch their brother and son grow up, the experience altered the dynamics of Singer’s family. Today he lives in a group home.
“I think when RFK talks about how he’s never seen a person with profound autism in their 60s or 70s, it’s because they didn’t live at home,” she said. “We didn’t bring them into the community. They weren’t in school, they were locked away in institutions. But they absolutely exist.”

In the 1960s, Bruno Bettelheim, a psychologist at the University of Chicago, further popularized the idea that autism was caused by bad parenting. He was “the first celebrity ‘shrink’ in America — the psychoanalytic equivalent of Dr. Oz,” wrote the late writer Steve Silberman in his seminal history of autism and neurodiversity, “NeuroTribes.” The book was published in 2015, before Oz’s foray into politics. Unlike Oz, Bettelheim’s title had nothing to do with medicine — he had no formal medical or psychological training.

Bettelheim, who had a regular column in Ladies’ Home Journal and published articles in popular magazines throughout the 1960s, compared autistic children to concentration camp victims. The cure for autism was a “parent-ectomy” — placement at a residential school he operated.
Hanley read Bettelheim’s book “The Empty Fortress” during the early years of her son’s diagnosis, in part because there were few books about autism at her local library. The concentration camp comparison — which implied that parents are like Nazi camp guards — shocked her. The more she learned about refrigerator mothers, the more she felt compelled to find them.

In the late ‘90s, Hanley did a nationwide callout and worked with Chicago documentary film company Kartemquin Films to produce the 2002 documentary “Refrigerator Mothers” that featured several mothers and their autistic children. The stories centered on how the moms had maneuvered years of blame and guilt as they advocated for their children’s care. She’s working with Kartemquin to rerelease the film to mark its 25th anniversary, given how timely it feels right now.

“Their stories were beautiful and profound and poignant,” Hanley said. “Their voices are unforgettable to me and their messages are as powerful today as ever.”

Bettelheim’s theories on autism are now wholly discredited, but mother-blaming lives on in various alternative treatments, diets and other solutions. In the late 1990s, mothers like Hanley were bombarded with claims that vaccines cause autism, launching a new era of mom blaming. While this theory has since been widely debunked and disproven, rumors have persisted online.
Shannon Rosa’s son, Leo, was born in 2000 and received a formal autism diagnosis three years later. At the time, it was difficult for parents to find information about autism. She remembers relating to actor and anti-vaccine activist Jenny McCarthy, who debated pediatricians on “Larry King Live” about the causes of her son’s autism.

“Most pediatricians are not trained to handhold or help parents of newly diagnosed autistic kids,” Rosa said. She felt like mainstream medicine had betrayed her, and the only people offering something she could do to help her son, right then, were parent groups talking about ways to cure autism.

Rosa added: “Like most people who are not already in the disability community, my perception of disability was negative.”

In retrospect, Rosa is embarrassed by the way she responded, but continues to share her story. She now operates a website called Thinking Person’s Guide to Autism, which is dedicated to sharing evidence-based and neurodiversity-related news, research and advice.

While Rosa isn’t old enough to have been labeled a refrigerator mother, she felt echoes of that blame in the cure-oriented parenting communities she joined. The anti-vaccine and alternative medicine movements exonerated mothers for causing their children’s autism psychologically, but the focus was still on mothers’ behavior — the decision to vaccinate, the decision to take or give certain medications, the decision to eat or feed their children certain foods. Rosa felt like if she didn’t do something, she was failing her son.

“I am the one who had vaccinated him, right? So I caused [his autism] and if I didn’t do everything within my power and spend thousands of dollars on supplements and medications and injections and all these bogus things to cure him, then I’m not good enough. I’m not being a good mom and I’m failing my child,” she said. “All of these books about [autism and vaccination, autism and special diets etc.] mentioned the refrigerator moms theory under the guise of rejecting it as empowerment. Like, ‘OK, you didn’t do anything wrong, but there is something you can do, right? You can take action,’” Rosa said.

The conversation around Tylenol, to Rosa, is much the same.

Today, Leo is a happy, healthy 24-year-old. He speaks a few words and needs full-time support, but he also loves hiking, swimming and adaptive surfing. Rosa, her husband or an aide help him do what he enjoys and live a joyful life.
“I am so furious about how badly supported I had been and how that shaped the first years of my son’s life,” Rosa said, reflecting that she wishes she’d focused on support instead of trying to cure him. She now incorporates those resources into Thinking Person’s Guide to Autism to help other parents.
The genetic component of autism brings up complex feelings for Hammond, who wrote the bestselling children’s book “A Day With No Words” about her family’s experiences with autism.

She has felt guilty, but not because of what a doctor or anyone else explicitly said to her.
“You never want your kids to struggle in the way that you do … I feel a lot of emotion and a lot of guilt for the struggles I know my kids will have, and have had. I feel like I haven’t done enough to prepare them for those struggles, but also that they live in this world that doesn’t make it easy for them,” she said.

Hammond sees the focus on Tylenol and vaccines not only as a way to blame moms, but as a way to distract from Trump’s cuts to the services and supports families like hers need.
“Look at what this administration is doing or not doing in support of disabled people. [Other moms] tell me, ‘Oh, nobody’s talking about high-support-needs autism. You know, the ones who are banging their heads. They appreciate RFK. But at the same time, [the Trump administration] keeps cutting the services that those families need. They keep cutting special education, they keep gutting Medicaid and they keep taking things away. They’re not offering any solutions on how to support these families. They’re just saying, ‘Here it’s Tylenol,’ and then there’s nothing else,” Hammond said.

Singer said there was “a lot of enthusiasm” that when Trump and RFK Jr. came into office, their focus on autism would be “gold standard science.” But that’s not what she heard during that last news conference.

“What we heard was what the president thinks and feels, and that is not science,” she said.
Hanley is concerned that the Trump administration is “selling and offering snake oil to families” at a time of rampant misinformation. She worries mothers are on the receiving end.
“In the end, it comes back to the mother,” she said. “Whether you tell her now, don’t take Tylenol … it comes back to putting such an enormous burden on the mother.”