aurea wrote:
One of the things that J's evaluation team have said is that this is something we will have to teach J. How to recognize his triggers before things get to bad, and to teach him it is ok to break internal rules sometimes and remove himself from situations that are causing him stress.
Only dx'd few yrs. ago, so it takes work trying to integrate new info. & insight about ASD & sensory problems that I've had all my life but never knew of (didn't have the words for, nor did I know how to explain) consciously.
Often doesn't occur to me that I have other choices in a situation, it helps if someone can remind me what my options are-because I tend to get narrow focus & feel stuck. Not wanting to complain (and draw negative attention), not wanting to be uncomfortable (and behave negatively due to that, which will not exactly draw positive attention).
If I complain, I worry that I'll use up my chances to change/switch (if we're talking about where to sit, as in your example)-the other person will become impatient & intolerant. Don't want to have situation like in story of "boy who cried wolf"-so feel I have to put up with (and try to ignore) things that bother me, because I never know when I'll
really need that chance to complain about something
much worse.
aurea wrote:
He was given the small consession of being able to choose his new seating postion first. Well he did and was happy till he'd sat there for a little while and realised he was very uncomfortable. He told his teacher he'd made a mistake, His words were "I made a mistake, I have sensory issues and the light through the window is annoying me, I have to move my seat sorry!". Teachers response " Oh, hmmmmm hurry up then", all said with her hands on her hips. J said she wasn't to happy. I had to laugh and congratulate him with a big high 5. J is usually so complacent/ nonconfrontational and will not upset anyone on purpose ever, this was hugh.
Just had to share my small but very proud break through. Yay!! !! :lol:
It's a big deal to me, too. I'm an adult (not a parent) and have plenty of sensory issues-some of which I'm not conscious/aware of (one can be affected by things one doesn't know about or notice-extreme example is carbon monoxide, which kills people yet it's odorless).
Anyway, I take it seriously when I can see something happening
before it reaches critical point-that's progress towards prevention (or at least minimizing the disturbance & distress). It's very hard for me to say I've made a mistake, it's so embarrassing for me to do. Being able to tolerate admitting that, changing one's mind, and telling someone about it-those are steps worth noting.
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*"I don't know what it is, but I know what it isn't."*