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dalurker
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28 Jun 2012, 11:48 pm

Dillogic wrote:
dalurker wrote:
That article doesn't contradict the reality of the many aspies out there who have academic success, followed by actual career success, who have learned social skills on their own, and who even have friends and families.


It doesn't contradict the reality of the many "auties" out there who have academic success, followed by actual career success, who have learned social skills on their own, and who even have friends and families.

When you have heaps of people with a disorder, there's bound to be lots of them who go against the grain. It doesn't mean that they're the majority though.


Of course they're not the majority.



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29 Jun 2012, 12:39 am

NTs who have academic success aren't the majority, either. But since when did the proportion of a group of people who are successful at school determine whether or not that group of people had satisfying lives? Since when did success in general make one group of people better than another?

Have you tried starting your reasoning from the premise that disability is not inherently negative? You may be surprised with some of the logical conclusions you come up with.


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dalurker
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29 Jun 2012, 12:55 am

Callista wrote:
NTs who have academic success aren't the majority, either. But since when did the proportion of a group of people who are successful at school determine whether or not that group of people had satisfying lives? Since when did success in general make one group of people better than another?

That's not fair either. I just don't think it's fair for some to be successful while others can't get success.

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Have you tried starting your reasoning from the premise that disability is not inherently negative? You may be surprised with some of the logical conclusions you come up with.

That premise doesn't make any sense.



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29 Jun 2012, 1:38 am

It makes a lot of sense: Being disabled is not an unending experience of negativity. I actually have a lot of positive experiences I associate with my disabilities, and I don't see being disabled as a horrible fate. If anything, my sense of self and how much I like myself has increased considerably once I came to terms with being disabled.

I don't like or dislike having the disabilities I do - investing energy either way is a waste of time because as far as I know there is no way to simply make them disappear. I like knowing that I have these disabilities and understanding how they work, so I can adapt my life around these things.

I consider there is a lot more negativity bound up in the social view (not the social model) of disability, which largely paints it as a terrible fate, characterizes disabled people as "suffering" and "victims" of their conditions. The truth is that disabled people tend to rate our quality of life at similar levels to abled people, despite how many abled people like to characterize our lives as much worse, or try to make judgments on "objective quality of life" to indicate that we can't possibly be correct about our own perspectives.



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29 Jun 2012, 7:53 am

Verdandi wrote:

I consider there is a lot more negativity bound up in the social view (not the social model) of disability, which largely paints it as a terrible fate, characterizes disabled people as "suffering" and "victims" of their conditions. The truth is that disabled people tend to rate our quality of life at similar levels to abled people, despite how many abled people like to characterize our lives as much worse, or try to make judgments on "objective quality of life" to indicate that we can't possibly be correct about our own perspectives.


You are so right. I've worked with a lot of people with intellectual impairments, who apparently according to some people here can't possibly be happy with the way they are, and most of them rate their quality of life as very good. They are happy. They may not be living the life we think is best, most I've encountered are not working and living in group homes, but they don't consider their lives to be bad at all. They're okay with who they are. Obviously some people from any group will be unhappy, tons of people without disabities are unhappy, but I haven't found that they are any more unhappy than the rest of the population.



dalurker
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29 Jun 2012, 8:43 am

McAnulty wrote:
Verdandi wrote:

I consider there is a lot more negativity bound up in the social view (not the social model) of disability, which largely paints it as a terrible fate, characterizes disabled people as "suffering" and "victims" of their conditions. The truth is that disabled people tend to rate our quality of life at similar levels to abled people, despite how many abled people like to characterize our lives as much worse, or try to make judgments on "objective quality of life" to indicate that we can't possibly be correct about our own perspectives.


You are so right. I've worked with a lot of people with intellectual impairments, who apparently according to some people here can't possibly be happy with the way they are, and most of them rate their quality of life as very good. They are happy. They may not be living the life we think is best, most I've encountered are not working and living in group homes, but they don't consider their lives to be bad at all. They're okay with who they are. Obviously some people from any group will be unhappy, tons of people without disabities are unhappy, but I haven't found that they are any more unhappy than the rest of the population.


I don't believe what you're saying.



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29 Jun 2012, 8:45 am

dalurker wrote:
I don't believe what you're saying.


You're entitled to your own opinions, but you are not entitled to your own facts:

Here's one example (not intellectual impairment, but supportive):

http://www.ncbi.nlm.nih.gov/pubmed/3161178

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Abstract

Thirty-six severely mobility-disabled subjects aged 24-52 years using a wheelchair and in need of daily assistance and 36 non-handicapped, matched control-subjects were interviewed. They were asked to rank 30 different abilities involving physical and mental functions, interpersonal and social relationships, and to rate their overall quality of life (QOL) on a 0-10 point scale. Among the severely mobility-disabled subjects the mean value of self-reported QOL was 8.0, which differs only slightly from 8.3 among the controls. The mean QOL among the disabled showed no significant difference regarding congenital/acquired and progressive/permanent disability. The 'abilities' ranked 1-9 were not directly related to mobility and corresponded among the disabled and non-handicapped. The functions lacked by the severely mobility-disabled persons were rated as less important by the disabled. The undiminished QOL is probably a result of personal adjustment, compensation by medical rehabilitation and society, as well as positive features of the disability.



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29 Jun 2012, 8:54 am

You can go ahead and tell them they aren't happy, but most of the ones I worked with are. They enjoy watching movies and helping pick out their meals and going to their day programs and being friends with each other. They have hobbies and friends and active lives. It may not be what you consider a good life, but you don't know how they experience their lives. I actually bothered to ask them instead of just assuming they thought their lives sucked.



dalurker
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29 Jun 2012, 9:08 am

Verdandi wrote:
dalurker wrote:
I don't believe what you're saying.


You're entitled to your own opinions, but you are not entitled to your own facts:

Here's one example (not intellectual impairment, but supportive):

http://www.ncbi.nlm.nih.gov/pubmed/3161178

Quote:
Abstract

Thirty-six severely mobility-disabled subjects aged 24-52 years using a wheelchair and in need of daily assistance and 36 non-handicapped, matched control-subjects were interviewed. They were asked to rank 30 different abilities involving physical and mental functions, interpersonal and social relationships, and to rate their overall quality of life (QOL) on a 0-10 point scale. Among the severely mobility-disabled subjects the mean value of self-reported QOL was 8.0, which differs only slightly from 8.3 among the controls. The mean QOL among the disabled showed no significant difference regarding congenital/acquired and progressive/permanent disability. The 'abilities' ranked 1-9 were not directly related to mobility and corresponded among the disabled and non-handicapped. The functions lacked by the severely mobility-disabled persons were rated as less important by the disabled. The undiminished QOL is probably a result of personal adjustment, compensation by medical rehabilitation and society, as well as positive features of the disability.


I'm not talking of physical disability.



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29 Jun 2012, 9:08 am

McAnulty wrote:
It may not be what you consider a good life, but you don't know how they experience their lives. I actually bothered to ask them instead of just assuming they thought their lives sucked.


Indeed. I know someone who was once told by her GP that she doesn't have a good life. Unless you've been there and have the same quality of life, I don't think you can decide for them whether they have a good life.



dalurker
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29 Jun 2012, 9:22 am

McAnulty wrote:
You can go ahead and tell them they aren't happy, but most of the ones I worked with are. They enjoy watching movies and helping pick out their meals and going to their day programs and being friends with each other. They have hobbies and friends and active lives. It may not be what you consider a good life, but you don't know how they experience their lives. I actually bothered to ask them instead of just assuming they thought their lives sucked.


I guess such happiness could be attained by only focusing on the lower part of Maslow's hierarchy of needs. I for one can't stand others being better than me and getting to do things I can't do. I wonder what is so innate in me that I loathe my position with such envy of others.



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29 Jun 2012, 10:04 am

I think that it's because not everyone has the same needs. I also think acceptance has a big role to play in happiness. A lot of the people I work with have relatively sheltered lives, so everyone around them is more accepting of them because we all made a life choice to work with people who have disabilities. The other main group of people they are encountering are people with similar problems as theirs, so there is no judgment and they all accept each other as they are. This is their "normal" They aren't thrown out to fend for themselves in the world. I think what happens a lot with Aspergers is that they are left to navigate a world that doesn't really understand them with little to no help. Some cope remarkably well while others struggle. The rest of society doesn't do much adapting.



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29 Jun 2012, 10:25 am

dalurker wrote:
I'm not talking of physical disability.


You missed the point - people with all kinds of disabilities tend to rate their quality of life close to the same as able-bodied and neurotypical people who have no disabilities.



dalurker
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29 Jun 2012, 11:34 am

Verdandi wrote:
dalurker wrote:
I'm not talking of physical disability.


You missed the point - people with all kinds of disabilities tend to rate their quality of life close to the same as able-bodied and neurotypical people who have no disabilities.


You didn't prove it.



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29 Jun 2012, 3:27 pm

I know I said I wasn't going to reply, but you're misunderstanding so much.

dalurker wrote:
I think they could come up with solutions to the other problems you mentioned too. They don't have to stop anyone from procreating. I think gene therapy could get rid of harmful genetic variations.


How do you suppose we'd get rid of natural disaster, war, abuse, fatal accidents, etc? I really am curious, I'm not attacking you, I'm seriously curious as to how this is possible. As for the gene therapy, again, our genes would adapt and something else considered a disability would pop up. That was the whole point of what I said.

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Why not make it like that, with there being no weaknesses?

Do you understand what I'm talking about when I say strengths and weaknesses? If you didn't have weaknesses, you'd excel at everything. This simply isn't the way people are. We are all good at some things (our strengths) and not so good at other things (our weaknesses)
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Not all have weaknesses. Some have very few weaknesses, while some have overwhelming weaknesses. That's not fair.

Yes, everybody has weaknesses. EVERYBODY. You're right in saying some have few and others have more and can be overwhelmed by it, I never said it was fair, not once. I know life isn't fair, though. Do you think that this hierarchy you keep bringing up is only in humans, or that other living beings don't utilize their strengths and focus on them instead of their weaknesses to stay alive?

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You should consider that you may be saying inflammatory things that undermine goals. I have a right to respond. If dissenting and questioning others is "causing trouble", then I bet you want only conformity and obedience, with nobody daring to debate those who agree with you, and all just saying things to repeatedly confirm the ideas you favor.


You are causing trouble. I don't care that your opinion is different than mine, but the way you present your opinion is the problem (This may sound crazy to you, but I also understand this is MY opinion of the situation, and I'm aware not everybody will agree.. Even more, I'm OK with the fact that not everyone will agree.) My original post was about how I take issue with the OP saying that people with LFA need to be cured because they're the reason the world is in financial sorrow as if there are no other disabilities out there, or other causes for the financial downfall. It talked about how I took issue with the OP acting as if people with HFA aren't needing any services and aren't needing to be helped by tax payers and as if people with HFA (or asperger's, whatever you'd like to call it.) only have social issues, and no other problems- That if we just worked on our social problems, all of our sensory, coordination, learning disabilities would suddenly also disappear (or the OP has decided those are only things people with LFA deal with, which isn't true.) You're making absurd accusations about things I never said. I also never said we SHOULDN'T look for a cure for things, I just said the reality is there are so many factors and other things, that it's not likely every single thing that's considered bad and a disability and not normal, etc. Won't ever be completely wiped from the face of the earth. An example- PTSD, it's purely trauma based, meaning you won't get PTSD if you never experience a traumatic event. What constitutes as a traumatic event and how a person will react all depends on that one individual, and to find a "cure" for such a thing is impossible in the sense that it won't ever be completely rid from the world. The best we can do is treat it once it's popped up in someone. If that treatment is what you would consider a "cure," then I see we have differing opinions of what a cure is. That's ok.

I'm the one that wants conformity and obedience, coming from a person who thinks everybody should be cured of everything and that nobody should be considered to have strengths and weaknesses? You mean.. You don't want anybody to have the things that make us unique? Wouldn't that mean you are in favour of conformity and so on? I encourage people to have their own opinions, I like people to be diverse, I find "normal" people EXTREMELY boring, but I still let them live how they please as long is not illegal or harming anyone. I know not everybody is the same as me and to be honest, I wouldn't want them to be. Life would be mundane without differing opinions.

I never said you couldn't have your own opinion, but when you're presenting it in the way you did, don't be surprised when people feel the need to argue their point, especially when you've been so insulting (I've read your posts to other people, you're quite rude and assuming)
and telling people their facts prove nothing when you don't even present facts at all.



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29 Jun 2012, 4:20 pm

Green89tom wrote:
Well When John Elder got Tms treatment help him with social skills and he was happy. You guys let your disability get the better of you.


I have AS and I don't consider it a disability for me, nor does it "get the better of me". It really doesn't bother me all that much. I was diagnosed in my 40s and had learned to adjust by then. Up until then, I thought everyone else thought and felt like I do but had learned to just put up with things, so I did that.

Like anything else, there are degrees of severity with AS/ASD.

I do agree that there should be a cure or better treatments for low functioning autism, but not because of how much money it may cost taxpayers. I think the people who have it may very well want a cure or better treatments. I also believe it should be optional and not forced on anyone, but available to those who choose to take it. I do not think that having LFA makes someone less valuable, I simply think it makes their life harder.


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