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PennyDreadful
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13 Aug 2012, 1:11 am

Oh, yes, the BMI standards for "eating disorder" status totally need to be dropped. That kind of plays into the social glorification of thinness, doesn't it? Like oh, you're on harmful diets, you're starving yourself, you're vomiting on purpose, but hey, you're fat, so you probably needed to go on a diet anyway. That's horrible. Even an obese person can be anorexic or bulimic.



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13 Aug 2012, 1:45 am

PennyDreadful wrote:
Oh, yes, the BMI standards for "eating disorder" status totally need to be dropped. That kind of plays into the social glorification of thinness, doesn't it? Like oh, you're on harmful diets, you're starving yourself, you're vomiting on purpose, but hey, you're fat, so you probably needed to go on a diet anyway. That's horrible. Even an obese person can be anorexic or bulimic.


Totally agree- my BMI's 21/22 and my eating habits are 100% worse than when I was BMI 14/15, at least they were relatively healthy then even if not enough.



Rattus
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13 Aug 2012, 2:58 am

Bubbles137 wrote:
PennyDreadful wrote:
Oh, yes, the BMI standards for "eating disorder" status totally need to be dropped. That kind of plays into the social glorification of thinness, doesn't it? Like oh, you're on harmful diets, you're starving yourself, you're vomiting on purpose, but hey, you're fat, so you probably needed to go on a diet anyway. That's horrible. Even an obese person can be anorexic or bulimic.


Totally agree- my BMI's 21/22 and my eating habits are 100% worse than when I was BMI 14/15, at least they were relatively healthy then even if not enough.


absolutely agree, the thing that is so frustrating is that the medical profession so often forget to look beyond your BMI. I'm lucky that I have a good GP who after the latest potassium crash has insisted I am blood tested once a week but my old GP didn't use to blood test me any more than once every 2 months or so, even though after my last ED admission they discharged me with the strict instructions to blood test me every week. The problem is whilst my BMI may be stable, I'm b/p 6-12 times every single day, I cannot afford this to begin with. I've had three days in the last 9 months where I haven't vomited but I have to vomit because after a decade of vomiting my body just can't digest food easily and the pain is indescibable. I b/p the same foods every day, I keep down the same foods every day. Outside of the bulimia I have SED not because I think I'll get fat but just simply because I am scared of not eating the same foods, I get stuck on a food and that's all I'll eat. It's not a weight thing, that's relatively small in the scheme of things, it's how it feels in my stomach, it's numbers, it's rituals, it's change, it's obsessions etc. My trouser size is a relatively small worry. I don't like change.



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13 Aug 2012, 3:41 am

Rattus wrote:

absolutely agree, the thing that is so frustrating is that the medical profession so often forget to look beyond your BMI. I'm lucky that I have a good GP who after the latest potassium crash has insisted I am blood tested once a week but my old GP didn't use to blood test me any more than once every 2 months or so, even though after my last ED admission they discharged me with the strict instructions to blood test me every week. The problem is whilst my BMI may be stable, I'm b/p 6-12 times every single day, I cannot afford this to begin with. I've had three days in the last 9 months where I haven't vomited but I have to vomit because after a decade of vomiting my body just can't digest food easily and the pain is indescibable. I b/p the same foods every day, I keep down the same foods every day. Outside of the bulimia I have SED not because I think I'll get fat but just simply because I am scared of not eating the same foods, I get stuck on a food and that's all I'll eat. It's not a weight thing, that's relatively small in the scheme of things, it's how it feels in my stomach, it's numbers, it's rituals, it's change, it's obsessions etc. My trouser size is a relatively small worry. I don't like change.


That is my experience exactly! I hate it :( and that's basically what the psychologist said in my CPA, that i'm too scared to change so they can't really help any more. REALLY want to stop the b/p though, I hate it so much.



Rattus
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13 Aug 2012, 4:22 am

Issues with change is so much a part of ASD that given the amount of people who have both ASD and food disorders you would think there would be some kind of support within the system that combines the two. What makes me angry is that if CAMHS had of done their job 10 years ago and asked me and my parents questions about my past instead of assuming the social difficulties, anxiety, isolation, OCD, issues with change, strict adherance to routine, meltdowns, life long eating difficulties, sensory difficulties etc were as a result of having an ED this could have been sorted within about half an hour. However, as I was a girl they automatically assumed that I couldn't be on the spectrum, ignored my parents when they said this had been going on for a long time, split us up, told me I was doing it because I liked causing my parents pain (which I don't, my parents are the only people I've ever had a close relationship to), insinuated to my parents there was abuse (which there wasn't) and messed everything up.
If they'd of helped me 10 years ago in the way they are now it would never have got to this point ever. I wouldn't have a severe ED, Social phobia and OCD that's been going on for 16 years. My parents would have been told to kick me out because I was 'choosing' to behave like this, I wouldn't have been banned from going on holiday for 5 years because I was 'choosing' my ED and that means I shouldn't be given nice things (my ED 'expert' told them if I wouldn't choose recovery I shouldn't be allowed on holiday). I wouldn't be living in a horrible house with people who steal my stuff and hate me. I miss my mum and dad, I miss home, I don't fit anywhere and this could have been so easily sorted 10 years ago. All they needed to do was give me a damn AQ, BAP, EQ test to see I score significanly within the ASD area. The same with the SPD test, so why on earth didn't they?
Sorry, I'm angry with the damn system and I am tired of being let down by them. I'm not thick, I could have been well on my way to getting a Phd if they had just given me the damn tools to function, it wasn't hard they just needed to help me in an ASD way which they are now and suprise suprise it's helping. However, they've wasted 10 years and I'm in the adult system now which means there is no god damn funding!! !



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13 Aug 2012, 4:44 am

I think that an even bigger problem than anorexia for young aspie girls/women is comfort eating. I've done that since I was a teenager. I just felt so empty and had to fill myself with something. Right now, I try to be strict with myself, I watch what I eat and exercise regularely



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13 Aug 2012, 5:30 am

My doctor thought I was anorexic at 12, but I refused to get tested. I'm fine now though :D.

For 2 years, I was obsessed with calorie counting, and for about 14 months, I exercised all I could, even though I was exhausted from school, and was behind on homework from the exhaustion.


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13 Aug 2012, 5:43 am

I know it doesn't help to contradict all your experiences here, but I just want to say that the anorexia thing isn't universal. I do sometimes get obsessive with my diet and calories, but I always end up eating quite a lot, anyway. I've always loved food and eating. It's very difficult for me to control, even when my mind is on it. I have to exercise a lot and try to distract myself to stop myself gaining. I'm overweight right now and trying to get back to a healthy BMI. It's impossible for me to diet. I just try to be mindful of portions and exercise a lot.


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Kenjitsuka
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13 Aug 2012, 5:59 am

Issit wrote:
Girls, I struggled with bulimia for years.

Now, for a long time though it seems to be OK though.

What got me out of that was not using the scales at all.

I just look at my legs and try my clothes how it fits.
Plus...drink lots of water.
-With apple vinegar. Morning and evening.


Issit, I drink four liters of water each day.
If I wouldn't use the scale I'd loose tons of weight instead of being stable...
Because what I see when I look at my body is not consistent with what others claim to see.
I *need* to see the numbers staying the same, or else I'd absolutely KNOW I was gaining and would restrict at full force...
On a sidenote; I'm not a girl, I'm male and nearly 30 years old.

Puddingmouse: It's dangerous to get "obsessive" with these things, as you only need a little push to fall through, and then your brain changes and going back will be very, very, very hard.
It started like that for me too, obsessing over the calories. Then cutting more and more of them out...


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13 Aug 2012, 6:05 am

Kenjitsuka wrote:
Puddingmouse: It's dangerous to get "obsessive" with these things, as you only need a little push to fall through, and then your brain changes and going back will be very, very, very hard.
It started like that for me too, obsessing over the calories. Then cutting more and more of them out...


My medication makes my appetite huge, and I hate throwing up. I crave much more food than I need. This is how I got fat in the first place.

I see anorexics post online and say they struggle to eat 500 calories a day. I struggle not to eat over 2000.


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13 Aug 2012, 10:36 am

Rattus wrote:
Issues with change is so much a part of ASD that given the amount of people who have both ASD and food disorders you would think there would be some kind of support within the system that combines the two. What makes me angry is that if CAMHS had of done their job 10 years ago and asked me and my parents questions about my past instead of assuming the social difficulties, anxiety, isolation, OCD, issues with change, strict adherance to routine, meltdowns, life long eating difficulties, sensory difficulties etc were as a result of having an ED this could have been sorted within about half an hour. However, as I was a girl they automatically assumed that I couldn't be on the spectrum, ignored my parents when they said this had been going on for a long time, split us up, told me I was doing it because I liked causing my parents pain (which I don't, my parents are the only people I've ever had a close relationship to), insinuated to my parents there was abuse (which there wasn't) and messed everything up.
If they'd of helped me 10 years ago in the way they are now it would never have got to this point ever. I wouldn't have a severe ED, Social phobia and OCD that's been going on for 16 years. My parents would have been told to kick me out because I was 'choosing' to behave like this, I wouldn't have been banned from going on holiday for 5 years because I was 'choosing' my ED and that means I shouldn't be given nice things (my ED 'expert' told them if I wouldn't choose recovery I shouldn't be allowed on holiday). I wouldn't be living in a horrible house with people who steal my stuff and hate me. I miss my mum and dad, I miss home, I don't fit anywhere and this could have been so easily sorted 10 years ago. All they needed to do was give me a damn AQ, BAP, EQ test to see I score significanly within the ASD area. The same with the SPD test, so why on earth didn't they?
Sorry, I'm angry with the damn system and I am tired of being let down by them. I'm not thick, I could have been well on my way to getting a Phd if they had just given me the damn tools to function, it wasn't hard they just needed to help me in an ASD way which they are now and suprise suprise it's helping. However, they've wasted 10 years and I'm in the adult system now which means there is no god damn funding!! !


I had no experience as a teenager because when I first went to the doctor at 13, I was told it was a phase and because I b/p a lot as a teenager, my weight was relatively stable. I was only diagnosed anorexic at 18 and was a inpatient on and off till I was 21 and have seen various people as an outpatient since then but ASD was only brought up a few years ago. Weirdly, I was babysitting last week for two kids whose mum works for CAMHS and she picked up on AS the first time she met me which I thought was really strange, I was too surprised to deny it and it was kind of a relief to be open with someone for once. I know the feeling of everything being related to ED- that's the experience I had for years until the woman I was seeing thought to give me an AQ/EQ/BAP test too and then concluded that I was very likely to have AS. I can totally relate to the lack of support in the adult system, so frustrating. I failed a teaching course last year and the woman who picked up on AS said she thinks it could be because of AS issues (I had problems with classroom management and coping with the noise levels) and said I should have been open with the school but I don't have an official diagnosis and because I already have an ED diagnosis and inpatient treatment, I'm not sure whether I can mention it?



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13 Aug 2012, 10:51 am

puddingmouse wrote:

My medication makes my appetite huge, and I hate throwing up. I crave much more food than I need. This is how I got fat in the first place.


Time to switch to alternatives? There's always alternatives to a drug, with different side effects!! !


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The Broad Autism Phenotype Test: You scored 132 aloof, 126 rigid and 132 pragmatic. IQ: 139. AQ: 45/50


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13 Aug 2012, 10:53 am

Bubbles137 wrote:
said I should have been open with the school but I don't have an official diagnosis and because I already have an ED diagnosis and inpatient treatment, I'm not sure whether I can mention it?


Sure, why not? If they require an official diagnosis you can always think about getting one.
If your ASD is making you fail where you could succeed with some minor adjustments you owe it to yourself to give it your all to make those changes happen!! !
Not going all out to get what you want/deserve is typical with the low self esteem generally attached to ED's, no?

About noise levels; wear earplugs untill the teacher begins to speak?
Or listen to music... I *always* do that to block sounds.


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Empathy quotient: 14
Your Aspie score: 185 of 200
Your neurotypical (non-autistic) score: 14 of 200
The Broad Autism Phenotype Test: You scored 132 aloof, 126 rigid and 132 pragmatic. IQ: 139. AQ: 45/50


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13 Aug 2012, 2:12 pm

Kenjitsuka wrote:

Sure, why not? If they require an official diagnosis you can always think about getting one.
If your ASD is making you fail where you could succeed with some minor adjustments you owe it to yourself to give it your all to make those changes happen!! !
Not going all out to get what you want/deserve is typical with the low self esteem generally attached to ED's, no?

About noise levels; wear earplugs untill the teacher begins to speak?
Or listen to music... I *always* do that to block sounds.


It's definitely something to think about, think I'm going to ask the woman who brought it up what she thinks. Bit worried it didn't work out because I'm just a rubbish teacher though! I love working in schools though, I'm voluntary atm and have been for 5 years, would love a 'proper job' in a school.

Can't use earplugs because I'd actually be teaching and would have to be able to hear the kids; I think it's something I need to either work on learning to tolerate (or at least not go into 'panic' mode where I can't see straight or communicate anything to the kids) or to control the noise level before it gets too much. Needs a lot of thought I think... My mum seems to think that one of the reasons it didn't work last time was because people knew I'd been an inpatient for ED which is why she doesn't think I should get an AS diagnosis. No idea what to do!



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13 Aug 2012, 2:22 pm

Bubbles137, you're pursuing a teaching career with an ASD?
Depending on where on the spectrum you are this might be impossible to keep up with in the long run, stress wise.
The noise, the completely random and 100% unpredictable nature of it....

I thought classes at Amsterdam University... They where all 18+, but still.... couldn't do it for more than half a year. And that was my very best period of being EVER...
Saw a documentary about a very mild case actually trying to be an assistant at a kindergarten. She'd shutdown several times a day completely for periods of time. Not sure that could be called healthy!

About people knowing you where IP; who knows that should impact your job? Surely not the students?


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The Broad Autism Phenotype Test: You scored 132 aloof, 126 rigid and 132 pragmatic. IQ: 139. AQ: 45/50


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13 Aug 2012, 2:48 pm

I've thought about it a lot... I started working in schools when I was 16 because I needed the structure and routine of school and I love that side of it. I also really liked planning lessons and marking the kids' work. I can't do early years because of the noise level and chaotic nature of the classroom, but a 'properly managed' KS2 (age 7-11) classroom could work if I could control the class, I've helped in KS2 classrooms for a long time and if the kids are quiet and getting on with what they should do, it's really nice and I usually get on with kids and can communicate with them a lot better than with adults. I find it really hard with other adults though and I have no idea how I'd cope with parents, and with feeling adult and professional which I could never do. I really want to work on it though because I genuinely can't think of another job I'd feel comfortable doing, I feel really comfortable in a school setting. I only have mild AS which is why I didn't follow through with the diagnosis but if it helps, it might be worth looking into. Definitely going to ask the woman who mentioned it though, her kids were in the class I was trying to teach so she knows both sides of it. I never told the kids about ED but I had to mention it on the health form so the teachers knew and some parents did because I'd babysat their kids at some point so it got around which I hate. Really don't like people talking about me.