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JMF1980
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12 May 2013, 9:52 pm

Thanks for reading my post, I have a question about if it is important to seek diagnosis as an adult if you suspect you might have "high-functioning" autism.

Recently, my mother was diagnosed with it and I read it is sometimes passed down.

About five years ago I was diagnosed with mild OCD. I took medication for several years, then decided to go off the medication. Upon reviewing some of the signs/symptoms of HFA, I could see the possibility in me.

My question is if there is a benefit to the diagnosis when you are an adult? My treatment and counseling for OCD has helped me learn more positive skills to handle my anxiety, but I stopped seeing my psychiatrist about a year ago.

Does anyone have any experiences to share?

Thanks!



GregCav
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12 May 2013, 11:00 pm

I don't know how old your mother is, or how "adjusted" she is, but for me, a diagnosis was a must, simply for my own understanding of self. I'm 46 btw.

I was diagnosed late last year, so I'm still new to the Asperger's thing. But it has given me a sense of relief, a more relaxed outlook on me not fitting in with society, not being "normal" so to speak without there being any reason. Now I have a reason, and I'm comfortable with that.

Anxiety around relationships, shopping complexes, social gathering etc., hasn't disappeared, but I don't fight it any more. I accept what I am, and I recognise its cause. When I've had enough of a social gathering, I leave. I no longer feel guilty or unsocial. I now know that I've had enough and must leave.

For me, the diagnosis has been a great relief. I no longer fight my natural needs.



one-A-N
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12 May 2013, 11:08 pm

You could try some of the screening tests first, to see if there is a reasonable chance that you are on the autism spectrum.

This thread here has a number of tests you could do - I'd suggest the AQ Test and the Aspie Quiz (see the first post in the thread). The AQ Test is used by some psychologists and other professionals as a screening test - it doesn't give a diagnosis, but it does give some kind of indication whether you have an Asperger-like personality. Most Aspies score 32 or more, while only about 2% of the general population score in that range (and many of those 2% may be on the spectrum, diagnosed or undiagnosed).

Whether you should get a diagnosis depends on many factors: do you need one? Will it help you understand yourself? Will it affect your health insurance badly? Do you want ongoing professional help based on that diagosis (assuming you qualify for one)?

I got a diagnosis two years ago in my fifties because I wanted to get some objective feedback, and because I wanted help with managing distress related to sensory sensitivity. I have learned to manage my emotion a bit better. It sounds to me like you have already done that via your OCD diagnosis.



zer0netgain
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13 May 2013, 9:50 am

JMF1980 wrote:
My question is if there is a benefit to the diagnosis when you are an adult?


I have only two reasons for why I may go and get "formally" diagnosed.

1. I need protection at my job as a disabled person being persecuted for not being like all the other NTs.

2. I need government assistance which required proof of being disabled.

Until that day, I see no practical upshot for an adult documenting their disability.



Sethno
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13 May 2013, 11:30 am

zer0netgain wrote:
JMF1980 wrote:
My question is if there is a benefit to the diagnosis when you are an adult?


I have only two reasons for why I may go and get "formally" diagnosed.

1. I need protection at my job as a disabled person being persecuted for not being like all the other NTs.

2. I need government assistance which required proof of being disabled.

Until that day, I see no practical upshot for an adult documenting their disability.


"Practical" isn't key.

Just plain "knowing" is. Confirmation. A clear answer.

These things are far from trivial.


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Tressillian
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13 May 2013, 12:08 pm

zer0netgain wrote:
JMF1980 wrote:
My question is if there is a benefit to the diagnosis when you are an adult?


I have only two reasons for why I may go and get "formally" diagnosed.

1. I need protection at my job as a disabled person being persecuted for not being like all the other NTs.

2. I need government assistance which required proof of being disabled.

Until that day, I see no practical upshot for an adult documenting their disability.


These are the main points towards a diagnosis. A 3rd reason could be socially. It's a lot easier to say "I have ASD" rather than explain your whole experience to every new person you meet. Additionally, an official diagnosis gives the weight of authority behind your statement. Without the authority, people could be less likely to believe you.



Nikkt
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13 May 2013, 7:47 pm

Sethno wrote:
zer0netgain wrote:
JMF1980 wrote:
My question is if there is a benefit to the diagnosis when you are an adult?


I have only two reasons for why I may go and get "formally" diagnosed.

1. I need protection at my job as a disabled person being persecuted for not being like all the other NTs.

2. I need government assistance which required proof of being disabled.

Until that day, I see no practical upshot for an adult documenting their disability.


"Practical" isn't key.

Just plain "knowing" is. Confirmation. A clear answer.

These things are far from trivial.

I completely agree. My job(s) don't know about my diagnosis nor does the government whose assistance I access for being a University student. But it has cut down dramatically on meltdowns and done wonders for my self esteem and ability to socialise.

GregCav wrote:
I don't know how old your mother is, or how "adjusted" she is, but for me, a diagnosis was a must, simply for my own understanding of self. I'm 46 btw.

I was diagnosed late last year, so I'm still new to the Asperger's thing. But it has given me a sense of relief, a more relaxed outlook on me not fitting in with society, not being "normal" so to speak without there being any reason. Now I have a reason, and I'm comfortable with that.

Anxiety around relationships, shopping complexes, social gathering etc., hasn't disappeared, but I don't fight it any more. I accept what I am, and I recognise its cause. When I've had enough of a social gathering, I leave. I no longer feel guilty or unsocial. I now know that I've had enough and must leave.

For me, the diagnosis has been a great relief. I no longer fight my natural needs.

^This all over. I do want to point out that it took me a year of identity crisis to really accept the diagnosis, and this was even after seeking out the diagnosis myself. But I can honestly say it has changed my life for the better.


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