Autism Speaks and the "Gold Standard" treatment
Again and again Autism Speaks claims to a gullible media that ABA is "the gold standard" treatment for autism and is "evidence based". And I see the media repeating this like parrots, and it's just propaganda. It's Goebbels stuff.
Here is an article that challenges the lie of the gold standard re ABA that AS spreads as part of its political campaign:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2686987/
http://www.wisaba.org/wp-content/upload ... y-Ugly.pdf
PLEASE NOTE: The links to the articles are back to front - this one should be in the opening post, and the challenge to it should be in this second post. So it will make more sense if you read this one first.
You're welcome. I am very concerned that they are using this "gold standard" claim to support proposed legislation - at the moment a Bill in Utah which Aspie Utah posted a thread about last week. AS wants all states to legislate for state government support of the "gold standard" (their claim) in each state - ie to set in place in every state legislated protocols and funding that means ABA is established as the "most effective" and "best" treatment for children and young people on the spectrum.
I am not basing this on my opinion but on statements that AS have made.
The gold standard claim - even in the critique article - is acknowledged as a falsity.
These academic writers also question the claim (and other kinds of fad claims):
http://www.srmhp.org/0101/autism.html
I am not basing this on my opinion but on statements that AS have made.
The gold standard claim - even in the critique article - is acknowledged as a falsity.
These academic writers also question the claim (and other kinds of fad claims):
http://www.srmhp.org/0101/autism.html
So they want a law made that could make it potential negligence for ABA to not be the go-to treatment? A controversial treatment that has a long history of severe abuses and with questioned efficacy?
_________________
Now take a trip with me but don't be surprised when things aren't what they seem. I've known it from the start all these good ideas will tear your brain apart. Scared, but you can follow me. I'm too weird to live but much too rare to die. - a7x
What worries me is that there is no co-ordinated counter-lobby, or none that I know of.
Well no good will come of that...
_________________
Now take a trip with me but don't be surprised when things aren't what they seem. I've known it from the start all these good ideas will tear your brain apart. Scared, but you can follow me. I'm too weird to live but much too rare to die. - a7x
androbot01
Veteran
Joined: 17 Sep 2014
Age: 53
Gender: Female
Posts: 6,746
Location: Kingston, Ontario, Canada
webmd
^an example of mainstream acceptance of ABA.
So what?
And this is presented as acceptable.
I still don't get why people put their kids through this. They are telling their children that their value lies in their ability to suppress their identity. That what's important is the pretense not the person.
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,494
Location: Long Island, New York
^an example of mainstream acceptance of ABA.
So what?
And this is presented as acceptable.
I still don't get why people put their kids through this. They are telling their children that their value lies in their ability to suppress their identity. That what's important is the pretense not the person.
""The idea for early detection is not only that you can intervene early, which is beneficial, but there's the notion that not all children who ultimately have autism are doomed to it at birth," David Amaral, PhD, research director at the MIND Institute, tells WebMD."
Bolding and italics mine
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
It is Autism Acceptance Month
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
androbot01
Veteran
Joined: 17 Sep 2014
Age: 53
Gender: Female
Posts: 6,746
Location: Kingston, Ontario, Canada
Bolding and italics mine
I cant believe that there are still professionals out there who are spouting this crap.
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,494
Location: Long Island, New York
Bolding and italics mine
I cant believe that there are still professionals out there who are spouting this crap.
With all the experiences people positing here have had with professionals I don't doubt this at all. Even if they don't say it they think it. ABA as "gold standard" is further proof.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
It is Autism Acceptance Month
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
androbot01
Veteran
Joined: 17 Sep 2014
Age: 53
Gender: Female
Posts: 6,746
Location: Kingston, Ontario, Canada
ischemgeek blog
Found this blog ^ linked from AWN, "What if?"
What if they told you the way you move is wrong? What if your body language and movement was monitored, policed, and controlled whenever you were around people? What if other people saw you slip up and laughed and made fun of you for it? What if they told you that you were a freak and freaks should die? ...
The post captures the feelings caused by the mixed messages of society, for me.
That's a good article.
Im not sure why I'm responding but I think it's because I have a bit of an outsider's perspective. Having not been diagnosed with autism as a kid.
Some of this stuff I read about ABA (sometimes I get bored so I read about things) sounds outright abusive.
I think it is really sad that some parents have so much faith in therapists. I admit there are some smart ones out there, but as a whole, the field is really just junk science. Yes, there are some empathetic smart therapists. But ABA is BS.
What's better, autism or ptsd caused by emotional abuse? I tend to think autism.
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,494
Location: Long Island, New York
Here is another expert who thinks autistics may be "recovered" by ABA
Questions for Deborah Fein: Defining 'optimal outcome' .
To be fair in all the wonderful news(sarcasm) she does mention the limitations which are severe.
Only 11 people were "recovered"
The study only looked at people that got ABA early are still children or teens.
Not everybody "recovered" received ABA
Why the hell did Simons Foundation usually pretty good publish something so inconclusive (with such ableist language)?
Why the hell did Deborah Fein want to talk about a project in public that is at an infant stage?
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
It is Autism Acceptance Month
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
Greatest difficulties???
There were children who were unable to walk because of inherited conditions, there were children born without limbs because of the thalidomide disaster, children born blind and deaf, children born with brain damage; there were always groups of children and parents who had it worse and parents who had more challenges than parenting autistic offspring... but the claim that parents of autistic children have it worst is really typical of the inflationary claims that AS makes - always stating these as "fact" - just like the delusionary "gold standard" ABA claim. Anything to keep the income stream as inflated as possible.
It's very manipulative and obviously there are many people who fall for it (unfortunately).
Similar Topics | |
---|---|
White House Wants a Standard Moon Time for New Space Race |
04 Apr 2024, 7:39 pm |
Autism |
13 Mar 2024, 7:44 am |
A father with autism |
08 Apr 2024, 10:51 pm |
Autism and lying |
01 Apr 2024, 6:20 am |