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Mr_F
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31 Dec 2023, 4:59 am

Since I received my diagnosis a few weeks back, I have been experiencing panic attacks which feel like they come from nowhere. So I could just be sat watching the TV and a panic attack kicks in. They can last for up to an hour every time. I have had panic attacks in the past but recently they feel much worse. I TRY to focus on breathwork as this was a coping mechanism of old, but even that seems to be doing very little.

Does anyone have any useful coping techniques for when that dreaded panic kicks in?

Many thanks



autisticelders
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31 Dec 2023, 6:18 am

see a doctor and make sure there are no physical reasons for it! They may send you to a specialist to get tests (neurologist, cardiologist, may find causes in testing)
Think about the foods and meds you are taking.
Limit caffeine, chocolate, many antihistamines can cause this, and years ago I found that I get anxiety attacks when I eat artificially yellow colored things... I gave up yellow cheese in all forms and that helped a lot. I have a lot of allergies, and the anxiety was a precursor for full blown allergy attack. Do you have food allergies?

When you have your attacks, does it help to move ? I change location or whatever I am doing. If I am not trapped in a situation surrounded by others, I get up and take a long long long fast walk.

I have tried squeezing ice cubes in my hand, sipping ice water, turning on loud music, turning off all noise makers and going to a dark room with a heated fuzzy blanket.

When the episode has passed, you might consider thinking about the times when it happens... is there something in common with the episodes?
Distress of a particular kind, foods you have eaten, coffee or pills you are taking.???

What has changed since the panic attacks have started coming more often?

I have only had a dozen true deep panic attacks in my life and each time I was in strange circumstances with people I did not know well, somewhere I could not just excuse myself and leave.
Once I stopped putting myself into those situations the attacks all but disappeared.
Try to find the trigger, then you can self accommodate to help prevent them. I am very interested to find out what the others here have to say about this. Good question.


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Mr_F
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31 Dec 2023, 9:23 am

autisticelders wrote:
see a doctor and make sure there are no physical reasons for it! They may send you to a specialist to get tests (neurologist, cardiologist, may find causes in testing)
Think about the foods and meds you are taking.
Limit caffeine, chocolate, many antihistamines can cause this, and years ago I found that I get anxiety attacks when I eat artificially yellow colored things... I gave up yellow cheese in all forms and that helped a lot. I have a lot of allergies, and the anxiety was a precursor for full blown allergy attack. Do you have food allergies?

When you have your attacks, does it help to move ? I change location or whatever I am doing. If I am not trapped in a situation surrounded by others, I get up and take a long long long fast walk.

I have tried squeezing ice cubes in my hand, sipping ice water, turning on loud music, turning off all noise makers and going to a dark room with a heated fuzzy blanket.

When the episode has passed, you might consider thinking about the times when it happens... is there something in common with the episodes?
Distress of a particular kind, foods you have eaten, coffee or pills you are taking.???

What has changed since the panic attacks have started coming more often?

I have only had a dozen true deep panic attacks in my life and each time I was in strange circumstances with people I did not know well, somewhere I could not just excuse myself and leave.
Once I stopped putting myself into those situations the attacks all but disappeared.
Try to find the trigger, then you can self accommodate to help prevent them. I am very interested to find out what the others here have to say about this. Good question.


Thanks for the detailed response. I have cut back my coffee intake as felt this may not be helping. Saying that, I only have 2 or 3 cups of coffee per day, and these panic attacks have only been present the last few weeks since I was diagnosed with autism.
I am not sure its food or allergy related to be honest because my diet has not changed (perhaps some extra naughty treats over Christmas but nothing excessive by any means).
I will contact my doctor to get checked out I think. The last time I had panic attacks 4 or 5 years ago they prescribed me some medication so perhaps I will look down that route again as a temporary measure to help while I am still trying to process my diagnosis. Ultimately I think that is the main factor as my anxiety levels have been a roller coaster while I am trying to make sense of it all. :cry:



yurguardianangel
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31 Dec 2023, 10:59 am

I've had countless panic attacks due to having vestibular migraines,SIBO,C-PTSD and PTSD,phobias,being bullied and many more things.

What helps me with them in the moment.

5.4.3.2.1
Belly breathing
The body scan.
Snapping a rubber band really hard against my arm. I've broken nice wristbands doing that before sadly.

And if I get a panic attack after a panic attack my last resort is taking prescribed diazepam(Valium). I don't like taking it as it makes me out of it,sedated,and I feel high on it.

GAD and health anxiety I find is much much harder to control when you have it 24/7.
I've tried various prescribed meds(5 meds) so far all with severe side effects. Including severe depression,bad thoughts,memory issues and brain fog,libido issues,numbed emotions,extreme anger/rage,aggression, all caused by the side effects.



Mid Life Aspie
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31 Dec 2023, 8:32 pm

My panic attacks only last about 5 seconds. But the worst bit is the hangover from them and the fear of when the next one will be.

The neuro I’ve been seeing hasn’t offered much help/advice…just says to ignore them and they’ll go away. But they’ve only become more common :cry:

So I googled yesterday and found a psychologist who sounds interesting. Explains why CBT wouldn’t help stop panic attacks.



autisticelders
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01 Jan 2024, 7:01 am

seems natural that we would be upset over diagnosis, because it changes our perspective on absolutely everything! I finally learned that there were things my struggles with sensory processing just couldn't handle and I don't make me do those things any more!

Were you in similar circumstances every time your panic happened?

I got diagnosed at age 68, and it took quite a while to go through all the old "stuff" from the past and see how autism affected all of it without any of us suspecting. Nobody knew!

If you can find similarities in circumstances or situations that lead to these attacks, you might find some clues to the way processing struggles, sensitivities, etc might cause problems, and that can lead to making adjustments in where you go, what you do, etc that can help keep them from continuing to happen. (self accommodations )


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Mr_F
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02 Jan 2024, 4:25 am

yurguardianangel wrote:
I've had countless panic attacks due to having vestibular migraines,SIBO,C-PTSD and PTSD,phobias,being bullied and many more things.

What helps me with them in the moment.

5.4.3.2.1
Belly breathing
The body scan.
Snapping a rubber band really hard against my arm. I've broken nice wristbands doing that before sadly.

And if I get a panic attack after a panic attack my last resort is taking prescribed diazepam(Valium). I don't like taking it as it makes me out of it,sedated,and I feel high on it.

GAD and health anxiety I find is much much harder to control when you have it 24/7.
I've tried various prescribed meds(5 meds) so far all with severe side effects. Including severe depression,bad thoughts,memory issues and brain fog,libido issues,numbed emotions,extreme anger/rage,aggression, all caused by the side effects.


Thanks for the tips mate I have been trying out the 5,4,3,2,1 method as I hadn't heard of that before and it seems to be a good option so appreciate it.

I was on and off meds for 12+ years. I was taking x3 different types, x3 times a day at my worst around 5 years ago. A couple of years back I decided to come off everything as I just felt numb and like a zombie all the time. Since I came off them I felt fine up until being diagnosed with autism a month ago and its triggered all my old mental health struggles again as I can't make sense of knowing I have lived with autism for 41 years. I am sure once I make sense of things everything will slowly slip back into place again.

I have just contact my GP for an appointment to get checked because these panic attack feelings aren't going away and I am naturally worried more so now due to my anxiety being so intense. I think now I am scared of having another panic attack because it felt so bad the other day so constantly feel like one is brewing up. No win situation right now :(



Mr_F
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02 Jan 2024, 4:26 am

Mid Life Aspie wrote:
My panic attacks only last about 5 seconds. But the worst bit is the hangover from them and the fear of when the next one will be.

The neuro I’ve been seeing hasn’t offered much help/advice…just says to ignore them and they’ll go away. But they’ve only become more common :cry:

So I googled yesterday and found a psychologist who sounds interesting. Explains why CBT wouldn’t help stop panic attacks.


This is exactly how I feel right now!! Like my body and mind is scared of when its going to happen next so its like my body is in shock and preparing for the next time it happens. :cry:



Mr_F
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02 Jan 2024, 4:32 am

autisticelders wrote:
seems natural that we would be upset over diagnosis, because it changes our perspective on absolutely everything! I finally learned that there were things my struggles with sensory processing just couldn't handle and I don't make me do those things any more!

Were you in similar circumstances every time your panic happened?

I got diagnosed at age 68, and it took quite a while to go through all the old "stuff" from the past and see how autism affected all of it without any of us suspecting. Nobody knew!

If you can find similarities in circumstances or situations that lead to these attacks, you might find some clues to the way processing struggles, sensitivities, etc might cause problems, and that can lead to making adjustments in where you go, what you do, etc that can help keep them from continuing to happen. (self accommodations )


It really does change your perspective on anything else. I am very much at the stage where I am thinking of every single thing I struggled with in my previous 41 years and thinking "oh that happened because of my autism". I keep wondering how different my life would be if it was identified sooner, but I guess hindsight is a wonderful thing.

I cannot understand why these panic attacks have been triggered though. Not sure if my mental resilience has just taken a battering and I have lost my strength to deflect these feelings for the last few years. Now my body is just in fear of another panic attack and feeling like I am going to die again and again.

I have contact my doctor so hoping they will arrange an appointment. Unfortunately where I live in the UK, getting an appointment is like trying to draw blood from a stone. :x



Mr_F
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04 Jan 2024, 3:58 am

So I saw my doctor yesterday and I am back on medication to try and help with the anxiety/ panic attacks. Also booked for blood tests and an ECG to just check me over due to the palpitations and tightness in my chest area. I had another doctor prescribe me with an asthma inhaler due to the tight chest feeling which the GP yesterday said is likely causing the palpitations as its not needed. The NHS incompetency strikes again. Had nothing bad bad experiences with doctors at my local surgery. I have no doubt the majority are amazing but my experiences are really bad. Giving me an inhaler which is making me worse - great! :x



IsabellaLinton
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04 Jan 2024, 5:00 am

Mr_F wrote:

Does anyone have any useful coping techniques for when that dreaded panic kicks in?




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Fenn
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04 Jan 2024, 11:10 am

Google DBT and watch YouTube videos on DBT.

I recently did a DBT intensive out-patient program.

Google DBT and TIPP - and actually try it.

Talk to your doc about anxiety and meds. I had to change my SSRI dose recently - but it wasn’t obvious at first that that would make the biggest difference.

Walking. Stairs.

For me Prayer helps. (No flames please from the anti-prayer folks)

Trying to recite and recalculate the powers of 2 (2,4,8,16,32…1024,2048,…).

Sudoku

Music


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Mr_F
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05 Jan 2024, 3:31 am

IsabellaLinton wrote:
Mr_F wrote:

Does anyone have any useful coping techniques for when that dreaded panic kicks in?




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Thanks so much for these really useful tips to try out :heart:



Mr_F
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05 Jan 2024, 3:33 am

Fenn wrote:
Google DBT and watch YouTube videos on DBT.

I recently did a DBT intensive out-patient program.

Google DBT and TIPP - and actually try it.

Talk to your doc about anxiety and meds. I had to change my SSRI dose recently - but it wasn’t obvious at first that that would make the biggest difference.

Walking. Stairs.

For me Prayer helps. (No flames please from the anti-prayer folks)

Trying to recite and recalculate the powers of 2 (2,4,8,16,32…1024,2048,…).

Sudoku

Music


Thanks will have a look on Youtube. I have spoken to my doctor whos prescribed me medication so been taking for two days - not kicked in just yet but hoping it will help take the edge off how awful I feel right now.



Vander571
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06 Jan 2024, 9:02 pm

Yes!

Suffered from massive ones, usually caused by other people/situations. One time all the blood ran from my head and I turned blue. I could not stand for 45min

They can set off IBS too.

I also get the smaller ones, like when watching TV that comes out of nowhere.

What has done the trick for me (and really well too) is the teachings of Eckart Tolle (he has plenty of meditation videos on Youtube) His wife Kim is also good.

ET teaches not just to focus on the breath, but the inner body and become very quiet and still within.

It took a few years, but I reckon I have reduced the attacks by about 90%

I still get a few, and the occasional bigger one. but i also recover a lot quicker now too.
And to just add, I have been able to reduce a lot of other issues this way as well, like anger. (I used to be so angry! :evil: )

Hope this helps. :D


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Eyeselation
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06 Jan 2024, 11:07 pm

Mr_F wrote:
Since I received my diagnosis a few weeks back, I have been experiencing panic attacks which feel like they come from nowhere. So I could just be sat watching the TV and a panic attack kicks in. They can last for up to an hour every time. I have had panic attacks in the past but recently they feel much worse. I TRY to focus on breathwork as this was a coping mechanism of old, but even that seems to be doing very little.

Does anyone have any useful coping techniques for when that dreaded panic kicks in?

Many thanks


Ashwagandha is a life saver for me. It’s an over the counter dietary supplement. My anxiety, social phobia, PTSD and IBS used to be so bad that I couldn’t leave the house for months at a time. Prescribed meds never worked for me, couldn’t tolerate. But after a few weeks of taking the supplement I noticed improvement in my symptoms with no side effects. Been taking daily for years now. Works so well that last year I went on a group tour to Ireland by myself. Never in a million years did I think I could do something like that when I used to panic and break out in a sweat just thinking about leaving my house let alone getting on a plane packed with people. Not saying it will work as well for you but it might be worth giving a try.
Hope you find relief from your symptoms.

https://www.healthline.com/nutrition/ashwagandha