Seizures

Post Reply New Topic

Hi, I had a seizure (clonic) the other day. It was kinda horrible because I felt a bit weird before I fell over and now I have a massive bruise up my right arm where I fell. Just wondering how many other people have seizures/diagnosed epilepsy because I don't know whether I have it or not yet. My doctor thinks I might have been having petit mal seizures and partial seizures for years! When she mentioned epilepsy I merely said, 'Oh well, just another one to add to the list...' I feel like I am falling apart!

hi there i thought i would read your post and rep to it i have epilepsy. i had it sence 2005, and for a long time my boyfriend and friends new what was wrong but the doctors did not wont to now but i have noctual meaning i have them in my sleep. i often get it anytime of the day i had one a few weeks ago and i went very tiyed and i fallasleep and then woke up and i had a seizure i had one last week as well the same happind again.

if you wonna talk to me pm me and we can chat about it and your feeling with it all.

take care caz

Mayhaps I'm just noticing it more, but it seems like this is the 12th thread on epilepsy started this week.

I have temporal lobe seizures. I usually don't fall - just get funny feelings, hallucinations and intense anger. Not sure which is better. I haven't been hurt, but just as you could fall, I'm likely to wallk out in the middle of a freeway because I think I'm in the middle of the woods

How often do you get your aura? - that weird feeling you had before you fell. And does it last long enough that you can get somewhere safe before it happens.

Aside from my nocturnal ones, which seem to be the most common for me, I've always been able to tell 2 hours in advance when I'm going to have a bad seizure. That gives me plenty of time to lay somewhere safe so I'm not in danger of falling and hurting myself

i had all ways nocturnal sz

i can get them anytime of day, for almost 8months i a new kind of sz if it a sz or not.

i go to bed or it can be in the day time i go to sleep and feeling very tiyed. and have to lay down and i fallasleep and then i woke up and i feel myslef shaking. it can be really bad becouse they come out of anywhere.

caz

I have complex-partial seizures, sometimes simple-partial. Suspected absence, but never caught one on an EEG. Normally mild and infrequent these days. In the past, have also had myoclonic seizures and atonic seizures.

Yes, I have a seizure disorder that're mal-petite. So they aren't as big as epilepsy.

I'm now on klonopin for it which has done wonders. Also I used to drink, that's one thing you have to watch out for. After the drink has worn, I'd have full blown seizures. I would do the same thing and find myself in bruises.

Most of mine are tremors or little jerks or tics from my body joints like my arms and hands. That can be annoying.

I have a seizure disorder. Fortunately, however, I am well-controlled with medication and haven't had a problem in over five years.

That doesn't make sense

Epilepsy isn't a kind of seizure, it is a condition of recurring epileptical seizures. If you have recurring seizures, that aren't NES, you have epilepsy, regardless of the type. If you had more than 2 E seizures, you have epilepsy. If your seizure disorder isn't as big as epilepsy, there is no reason at all to be on medicine. No one needs to be put on medicine because they've had one seizure.

There are people with epilepsy who don't need meds and can live fairly normal lives, and their are people with epilepsy who even with meds and brain surgery can't do much. Epilepsy consisting of absensce seizures as just as much epilepsy as epilepsy consisting of atonic and tonic-clonic seizures


Also, absence seizures are called petite-mal, not mal petite

In addition to getting the names of your seizures wrong, not knowing what E is, identifying a type of seizure that doesn't match your description of the type you experience, and remembering a type of seizure (petit-mal) that is a lapse of concious activity, it is also rather odd that you would be put on a medicine that is never to be used for those with a history of depression unless all alternatives have been ruled out, and one in which extra care needs to be taken when administered to those with a drinking problem, as you've previously stated you experienced severe depression and alcohol addiction Not to mention its a drug that is only used for short term AED therapy

Last edited by Triangular_Trees on 27 Sep 2008, 9:02 pm, edited 4 times in total.

I was diagnosed with temporal lobe epilepsy many years ago, and was told I would have to take carbamazapine (tegretol) for the rest of my life. I only took it for a year and a half. After that, I started taking magnesium and vitamin B6 supplements - no more complex partial seizures! Then I started to miss them, because I used to have some really amazing, 'other worldly' experiences. So, I learnt how to deliberately put myself into a theta state at will, just like shamans do.

I used to have convulsions. Not as violent or prolonged as seizures, but they were significant. What's a "clonic" seizure btw?

I don't miss the creepy illness feelings, or seeing nuclear bombs explode on my hand.

though I suppose if all my aura's were like the one that seemed a memory from a distantly passed life I might like them a lot more. I was sitting with "poor" people in reddish clothing around a campfire - this obviously was in the far past, when people were wanderers. In some ways it was kind of disappointing to learn that was a seizure - it seemed so real and so right. But then maybe it was real

People who have visions ... they do not always need to dismissed as mentally ill. In the Bible, all kinds of people had visions, holy visions. I'd love to have some of those.

I didn't have the epileptic sort. I had some sort of seizure disorder caused by a congenital brain tumor. I only had the whole collapsing and convulsing thing happen once, though. The other sorts were I'd feel really dizzy, like I was trying to walk on a spinning platform that was floating through the air; I'd feel incredibly cold and exhausted; I'd have deja vu; and I'd smell anesthetics in places nowhere near hospitals or other medical establishments (olfactory hallucinations). I had the tumor removed several years ago, though, and besides occasional twitchiness, I've otherwise been fine.

My son has epilepsy, he has tonic clonic seizures that last for around 10 minutes ( fortunately not too often - he normally ends up in hospital with these )
He has small absence seizures and complex partial seizures. We're currently trying to find a medication that works for him, he gets a fear aura before his complex partial seizures, and runs around terrified completely unaware of what he is doing .. he's hurt himself and others with these ones. I hate them, and I know he does too We are trying carbamazapine atm.
H has roughly 6-8 complex partial seizures a week and absence seizures many times during the course of a week. The big tonic clonic ones only happen roughly 3-4 times a year.

I had seizures in the past, but I don't have them now. Mine weren't caused by epilepsy, but rather "conversion disorder." That is when the seizures aren't real but rather a result of stress, anxiety or past trauma. Mine looked like grand mal seizures and I had many of them a day back in 2006. Sometimes they were constant and had 60 of them a day. I would fall on the floor, hurt myself, and seize. Conversion disorder is usually temporary, Oh thank God for that! It was so bad at one point that I had to be taken around in a wheelchair because of safety reasons. To the outsider, the doctors thought they were real. My eyes would roll back into my head, I would lose color, of course the shaking, and I wouldn't be able to speak after a seizure for awhile. Back then it was scary and the only reason why we know it isn't real, is because I was tested on 24 hour monitoring EEG and none of the seizures registered on the EEG. Its all in my head.

Saffy,
try magnesium and vitamin B6 supplements for your son .