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leejosepho
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25 Nov 2010, 10:09 am

Maybe someone here is familiar with this story:

http://health.discovery.com/tv/psych-we ... renic.html

Last night I watched the beginning of a TV show where this girl's parents talked about and even showed videos of their struggles and her life, and I just wonder what anyone here might be able to add. The part I found most interesting was her mother's telling of the difficulty they had in getting access to good doctors who could help them discover an accurate diagnosis. At the point I had to leave the show and go to bed, the school had just called and said they would be calling the police if the parents did not get there within a certain time ... and the parents decided to just let that happen because they could not get Janny into a certain facility any other way.


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Chronos
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25 Nov 2010, 12:18 pm

leejosepho wrote:
Maybe someone here is familiar with this story:

http://health.discovery.com/tv/psych-we ... renic.html

Last night I watched the beginning of a TV show where this girl's parents talked about and even showed videos of their struggles and her life, and I just wonder what anyone here might be able to add. The part I found most interesting was her mother's telling of the difficulty they had in getting access to good doctors who could help them discover an accurate diagnosis. At the point I had to leave the show and go to bed, the school had just called and said they would be calling the police if the parents did not get there within a certain time ... and the parents decided to just let that happen because they could not get Janny into a certain facility any other way.



Juvenile schizophrenia. I think it's quite rare. She was diagnosed at UCLA's Semel Neuropsychiatric Institute I think.



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27 Nov 2010, 9:57 am

A Beautiful Mind (movie)(2001) - A Beautiful Mind is a 2001 American film based on the life of John Forbes Nash, Jr., a Nobel Laureate in Economics. Directed by Ron Howard and stars Russell Crowe. (Wikipedia)



Stonecold
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29 Nov 2010, 3:04 pm

Yes, I know the story. Infact, I have it on my DVR. I find it interesting because juvenil schizophrenia is extremely rare and it is amazing to learn about it. I wonder if she still sees "Friday" and "9"?



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29 Nov 2010, 6:15 pm

I've seen the documentary about her... the link was posted on this forum a while ago. Her parents must be constantly exhausted, and worried about their daughter's future. I understand her brother is okay.



ChrisVulcan
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29 Nov 2010, 11:40 pm

I've seen this. Or at least I've heard of this particular person; I don't know if I saw the same documentary as you. I thought it was interesting how the parents said that, as a baby, she would be intensely focused on things that weren't there. Do you think that someone can really be born with schizophrenia? I have a feeling that I was born with whatever I have (I didn't cry when I was born).


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ChrisVulcan
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29 Nov 2010, 11:40 pm

I've seen this. Or at least I've heard of this particular person; I don't know if I saw the same documentary as you. I thought it was interesting how the parents said that, as a baby, she would be intensely focused on things that weren't there. Do you think that someone can really be born with schizophrenia? I have a feeling that I was born with whatever I have (I didn't cry when I was born).


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lostD
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30 Nov 2010, 4:59 am

I had already heard about her, some people claim that she is autistic and has been given the wrong diagnosis. I think schizophrenia is one of the more rejected disorder one can have since people are always thinking so badly about people who have it and fear them so much.



mgran
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30 Nov 2010, 11:07 am

ChrisVulcan wrote:
I've seen this. Or at least I've heard of this particular person; I don't know if I saw the same documentary as you. I thought it was interesting how the parents said that, as a baby, she would be intensely focused on things that weren't there. Do you think that someone can really be born with schizophrenia? I have a feeling that I was born with whatever I have (I didn't cry when I was born).

My son didn't cry when he was born either. His eyes were wide open, and he simply stared at everyone. He didn't actually cry for the first eleven days of his life, though he did make cute little baby "mewing" noises.

As far as I can tell, most babies are often intensely focused on things that aren't there. Or rather things so infinitesimally insignificant to adults that we don't notice them. (Shadows from spider webs, ripples of light, dancing dust in a sunbeam.

At least babies I've looked after are like that. Perhaps there was a difference in duration and quality of gaze with Janny. Anyway, it's obvious that by now she's very ill.



Chronos
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03 Dec 2010, 10:39 pm

mgran wrote:
ChrisVulcan wrote:
I've seen this. Or at least I've heard of this particular person; I don't know if I saw the same documentary as you. I thought it was interesting how the parents said that, as a baby, she would be intensely focused on things that weren't there. Do you think that someone can really be born with schizophrenia? I have a feeling that I was born with whatever I have (I didn't cry when I was born).

My son didn't cry when he was born either. His eyes were wide open, and he simply stared at everyone. He didn't actually cry for the first eleven days of his life, though he did make cute little baby "mewing" noises.

As far as I can tell, most babies are often intensely focused on things that aren't there. Or rather things so infinitesimally insignificant to adults that we don't notice them. (Shadows from spider webs, ripples of light, dancing dust in a sunbeam.

At least babies I've looked after are like that. Perhaps there was a difference in duration and quality of gaze with Janny. Anyway, it's obvious that by now she's very ill.


I do agree that babies do tend to stare at things that aren't there. I am betting though that she was doing it a way that would concern most parents. It's also very possibly that they did use brain imaging to diagnose her. Schizophrenia..at least in adults anyway, shows up on certain brain scans.



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04 Dec 2010, 2:30 am

I have read about it and seen a show about it. I find it sad for her and her parents. I can't imagine having that life and I wonder how they deal with the stress. The father has a blog and I know his words have been twisted around and judgments have been passed on him and his wife. Some think he is abusing his child and so is his wife, some thing Janny isn't a schizophrenic and she has AS. Of course the parents have admitted that they have tried everything like hitting her back and other stuff and letting her starve so she eat other foods they make but then after she was diagnosed with a mental illness, they stopped treating her like a normal child. They also stopped taking other peoples advice since they don't have a sick child. Of course when Janny was starving, she lost like seven pounds if I remember correctly so the mother decided that method wasn't working and they went back to letting her have her mac and cheese. It was a doctor that told them to do that method and instead she starved and was losing weight. When people read that in his blog, they turned it around and said she acts that way because she is being abused. No the parents were doing that stuff because of how she was acting and they thought they had a brat. Heck my mom has done stuff back to me too growing up to show me how it feels. She has bit me, scratched me, spat at me, sprayed me, pinched, etc. me all because I was doing it to my brothers or to other kids. She used to tell me "this is how it feels."

Childhood schizophrenia is rare. Some people don't even think it exists in kids.


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mgran
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04 Dec 2010, 8:49 am

I agree League Girl that people have been very quick to judge Janny's parents. I'll admit, when I first heard about her I wasn't sure, but funnily enough, it was reading her father's blog that persuaded me. They're right not to listen to parents without experience of childhood schizophrenia... after all, they are the closest thing on the planet to experts on their own daughter. I wouldn't dream of telling them what to do. It's hard enough for them as it is.



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11 Feb 2012, 3:06 am

leejosepho wrote:
Maybe someone here is familiar with this story:

http://health.discovery.com/tv/psych-we ... renic.html

Last night I watched the beginning of a TV show where this girl's parents talked about and even showed videos of their struggles and her life, and I just wonder what anyone here might be able to add. The part I found most interesting was her mother's telling of the difficulty they had in getting access to good doctors who could help them discover an accurate diagnosis. At the point I had to leave the show and go to bed, the school had just called and said they would be calling the police if the parents did not get there within a certain time ... and the parents decided to just let that happen because they could not get Janny into a certain facility any other way.


I'm responding very late, but I just want to say:
Quote:
We believe this for the simple fact that if trauma caused psychosis, all humans would suffer from psychosis. Unfortunately, we all experience psychological trauma. It is part of the human condition. By the simply being alive and having to interact with the environment, a person will get psychologically hurt. The fundamental flaw with the trauma-based or “environmental” model of the development of psychosis is that if indeed the human mind was that fragile our species simply would not have survived to the present day. Such a glaring weakness in our psychological composition would have led to our extinction long ago. Our ancestors faced trauma on a daily basis and yet our social development has continued.

[From the blog of Jani's foundation]

What a steaming pile! 'Everyone is traumatized'. NOT. It's really no different than people who say 'everyone's a little depressed sometimes'. Trauma is a serious issue, I think it's better to work for finding cure for mental illness without telling victims of trauma they simply don't exist because it happens to EVERYONE.

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Doing something that one knows will result in punishment or the loss of privileges and doing it anyway is the very definition of “insanity” (which is a legal term, not a medical one).

OMG, WHAT.


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11 Feb 2012, 3:55 pm

Bun wrote:
I'm responding very late, but I just want to say:
Quote:
We believe this for the simple fact that if trauma caused psychosis, all humans would suffer from psychosis. Unfortunately, we all experience psychological trauma. It is part of the human condition. By the simply being alive and having to interact with the environment, a person will get psychologically hurt. The fundamental flaw with the trauma-based or “environmental” model of the development of psychosis is that if indeed the human mind was that fragile our species simply would not have survived to the present day. Such a glaring weakness in our psychological composition would have led to our extinction long ago. Our ancestors faced trauma on a daily basis and yet our social development has continued.

[From the blog of Jani's foundation]

What a steaming pile! 'Everyone is traumatized'. NOT. It's really no different than people who say 'everyone's a little depressed sometimes'. Trauma is a serious issue, I think it's better to work for finding cure for mental illness without telling victims of trauma they simply don't exist because it happens to EVERYONE.

Quote:
Doing something that one knows will result in punishment or the loss of privileges and doing it anyway is the very definition of “insanity” (which is a legal term, not a medical one).

OMG, WHAT.


The person who wrote the comment in your quote has no clue of gene-environment interaction. He might as well have said "if environmental factors would cause cancer, we would all have cancer".

All psychological conditions, and ultimately all human behaviors, have both a genetic component and an environmental trigger. Some people can cope with environmental stress, but people with a genetic predisposition for schizophrenia, anxiety disorders or OCD will develop these conditions in response to stress, trauma and abuse. (Not that I want to imply that this child was abused, mind you).



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11 Feb 2012, 4:04 pm

I found this part of the article very sad:

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"When we first brought her into the psychiatric system, Michael explains, "the first time she was hospitalized, we were still operating under the belief that they could fix this. Isn't that what they're supposed to do? They're psychiatrists."


No psychiatrist has ever cured anybody. Some people have cured themselves by changing their diet, their detrimental environment or their stressful lifestyle. But psychiatrists can't "fix" anything, nor can they diagnose anything with certainty. We need reliable diagnostic criteria based on neurology and genetics, as well as non-pharmacological treatment approaches that include lifestyle medicine.



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11 Feb 2012, 5:34 pm

Another really sad thing about Janni's situation is how her parents have stopped treating her like a normal child. She has debilitating problems, but they don't need to structure her home life like a mental hospital!