"Born Schizophrenic" - The Story of Janny
leejosepho
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Joined: 14 Sep 2009
Gender: Male
Posts: 9,011
Location: 200 miles south of Little Rock
Maybe someone here is familiar with this story:
http://health.discovery.com/tv/psych-we ... renic.html
Last night I watched the beginning of a TV show where this girl's parents talked about and even showed videos of their struggles and her life, and I just wonder what anyone here might be able to add. The part I found most interesting was her mother's telling of the difficulty they had in getting access to good doctors who could help them discover an accurate diagnosis. At the point I had to leave the show and go to bed, the school had just called and said they would be calling the police if the parents did not get there within a certain time ... and the parents decided to just let that happen because they could not get Janny into a certain facility any other way.
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I began looking for someone like me when I was five ...
My search ended at 59 ... right here on WrongPlanet.
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http://health.discovery.com/tv/psych-we ... renic.html
Last night I watched the beginning of a TV show where this girl's parents talked about and even showed videos of their struggles and her life, and I just wonder what anyone here might be able to add. The part I found most interesting was her mother's telling of the difficulty they had in getting access to good doctors who could help them discover an accurate diagnosis. At the point I had to leave the show and go to bed, the school had just called and said they would be calling the police if the parents did not get there within a certain time ... and the parents decided to just let that happen because they could not get Janny into a certain facility any other way.
Juvenile schizophrenia. I think it's quite rare. She was diagnosed at UCLA's Semel Neuropsychiatric Institute I think.
I've seen this. Or at least I've heard of this particular person; I don't know if I saw the same documentary as you. I thought it was interesting how the parents said that, as a baby, she would be intensely focused on things that weren't there. Do you think that someone can really be born with schizophrenia? I have a feeling that I was born with whatever I have (I didn't cry when I was born).
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Well, I was on my way to this gay gypsy bar mitzvah for the disabled when I suddenly thought, "Gosh, the Third Reich's a bit rubbish. I think I'll kill the Fuhrer." Who's with me?
Watch Doctor Who!
I've seen this. Or at least I've heard of this particular person; I don't know if I saw the same documentary as you. I thought it was interesting how the parents said that, as a baby, she would be intensely focused on things that weren't there. Do you think that someone can really be born with schizophrenia? I have a feeling that I was born with whatever I have (I didn't cry when I was born).
_________________
Well, I was on my way to this gay gypsy bar mitzvah for the disabled when I suddenly thought, "Gosh, the Third Reich's a bit rubbish. I think I'll kill the Fuhrer." Who's with me?
Watch Doctor Who!
My son didn't cry when he was born either. His eyes were wide open, and he simply stared at everyone. He didn't actually cry for the first eleven days of his life, though he did make cute little baby "mewing" noises.
As far as I can tell, most babies are often intensely focused on things that aren't there. Or rather things so infinitesimally insignificant to adults that we don't notice them. (Shadows from spider webs, ripples of light, dancing dust in a sunbeam.
At least babies I've looked after are like that. Perhaps there was a difference in duration and quality of gaze with Janny. Anyway, it's obvious that by now she's very ill.
My son didn't cry when he was born either. His eyes were wide open, and he simply stared at everyone. He didn't actually cry for the first eleven days of his life, though he did make cute little baby "mewing" noises.
As far as I can tell, most babies are often intensely focused on things that aren't there. Or rather things so infinitesimally insignificant to adults that we don't notice them. (Shadows from spider webs, ripples of light, dancing dust in a sunbeam.
At least babies I've looked after are like that. Perhaps there was a difference in duration and quality of gaze with Janny. Anyway, it's obvious that by now she's very ill.
I do agree that babies do tend to stare at things that aren't there. I am betting though that she was doing it a way that would concern most parents. It's also very possibly that they did use brain imaging to diagnose her. Schizophrenia..at least in adults anyway, shows up on certain brain scans.
I have read about it and seen a show about it. I find it sad for her and her parents. I can't imagine having that life and I wonder how they deal with the stress. The father has a blog and I know his words have been twisted around and judgments have been passed on him and his wife. Some think he is abusing his child and so is his wife, some thing Janny isn't a schizophrenic and she has AS. Of course the parents have admitted that they have tried everything like hitting her back and other stuff and letting her starve so she eat other foods they make but then after she was diagnosed with a mental illness, they stopped treating her like a normal child. They also stopped taking other peoples advice since they don't have a sick child. Of course when Janny was starving, she lost like seven pounds if I remember correctly so the mother decided that method wasn't working and they went back to letting her have her mac and cheese. It was a doctor that told them to do that method and instead she starved and was losing weight. When people read that in his blog, they turned it around and said she acts that way because she is being abused. No the parents were doing that stuff because of how she was acting and they thought they had a brat. Heck my mom has done stuff back to me too growing up to show me how it feels. She has bit me, scratched me, spat at me, sprayed me, pinched, etc. me all because I was doing it to my brothers or to other kids. She used to tell me "this is how it feels."
Childhood schizophrenia is rare. Some people don't even think it exists in kids.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
I agree League Girl that people have been very quick to judge Janny's parents. I'll admit, when I first heard about her I wasn't sure, but funnily enough, it was reading her father's blog that persuaded me. They're right not to listen to parents without experience of childhood schizophrenia... after all, they are the closest thing on the planet to experts on their own daughter. I wouldn't dream of telling them what to do. It's hard enough for them as it is.
http://health.discovery.com/tv/psych-we ... renic.html
Last night I watched the beginning of a TV show where this girl's parents talked about and even showed videos of their struggles and her life, and I just wonder what anyone here might be able to add. The part I found most interesting was her mother's telling of the difficulty they had in getting access to good doctors who could help them discover an accurate diagnosis. At the point I had to leave the show and go to bed, the school had just called and said they would be calling the police if the parents did not get there within a certain time ... and the parents decided to just let that happen because they could not get Janny into a certain facility any other way.
I'm responding very late, but I just want to say:
[From the blog of Jani's foundation]
What a steaming pile! 'Everyone is traumatized'. NOT. It's really no different than people who say 'everyone's a little depressed sometimes'. Trauma is a serious issue, I think it's better to work for finding cure for mental illness without telling victims of trauma they simply don't exist because it happens to EVERYONE.
OMG, WHAT.
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Double X and proud of it / male pronouns : he, him, his
[From the blog of Jani's foundation]
What a steaming pile! 'Everyone is traumatized'. NOT. It's really no different than people who say 'everyone's a little depressed sometimes'. Trauma is a serious issue, I think it's better to work for finding cure for mental illness without telling victims of trauma they simply don't exist because it happens to EVERYONE.
OMG, WHAT.
The person who wrote the comment in your quote has no clue of gene-environment interaction. He might as well have said "if environmental factors would cause cancer, we would all have cancer".
All psychological conditions, and ultimately all human behaviors, have both a genetic component and an environmental trigger. Some people can cope with environmental stress, but people with a genetic predisposition for schizophrenia, anxiety disorders or OCD will develop these conditions in response to stress, trauma and abuse. (Not that I want to imply that this child was abused, mind you).
I found this part of the article very sad:
No psychiatrist has ever cured anybody. Some people have cured themselves by changing their diet, their detrimental environment or their stressful lifestyle. But psychiatrists can't "fix" anything, nor can they diagnose anything with certainty. We need reliable diagnostic criteria based on neurology and genetics, as well as non-pharmacological treatment approaches that include lifestyle medicine.
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